Bronte- I was wanting to proceed but I'm currently feeling "unwell" with all over swelling of my hands and feet and legs. It's just odd. So if that continues I'm not sure I can proceed given the risks.
As for the clotting issue. I was diagnosed with this in 2014! And THREE doctors said I only needed baby asa to treat it. My hematologist who was called in when I developed the clot said that the Follistim increasing my E2 levels likely caused me to clot and that I should ALWAYS be on Lovenox before, during, and after EVERY pregnancy. Having said that, the clotting issue didn't cause this mc. Baby was a boy and had trisomy 15. My 3rd loss was trisomy 21. My first 2 losses however did not grow and my OB always felt it was a probable blood flow/clotting issue but we weren't aware of my clotting disorder until she tested me after I lost the 2nd baby.
I'm hoping this swelling issue resolves soon. I was cleared last week to run/walk as I tolerated it and I ran 16 miles in the last week. Hoping my body just needs a break and recovery time. Gonna back off the cardio a bit but it's tough because I've been told not to just sit around. 😕 I feel doomed either way.
Sophie - what a horrible position to be put it and it does sound like you have to be very cautious, especially now that you aren't feeling well.
Maybe the running 16 miles didn't help. You might want to hold off a bit to help alleviate any clots. Short walks might be best for awhile. I know that's hard if you are an avid runner (my husband is as well and he had a really hard time keeping off it for several months after his heart surgery - and was back to running way earlier than he probably should have been). Anyway, take it easy.
It's good you know the reasons for the miscarriages then and it sounds like they worked out the clotting issue so that isn't the reason for that specifically, but you just need to be monitored very carefully if you proceed once you are feeling better.
I know if I were you; I'd have a very hard time deciding to proceed or not. Even just after my ectopic pregnancy I was very scared to get pregnant again because of the issues I had. I can't imagine it being even more dangerous.
Sophie - I've never heard of people having to come off Lovenox around egg retrieval. I know several people who started that or Fragmin early and stayed on through egg retrieval and transfer, etc. I myself start Fragmin (same as Lovenox) the day of the retrieval and have never had any issue with bleeding ovaries...maybe something worth checking. I would think that the life threatening condition of clots would be more serious than some peripheral ovarian bleeding (if it happens at all)?
Bronte- I was cleared to run. Encouraged to even. And I felt great doing it. So not sure why I'm feeling so bad now?!
3chords- It's because my dose is double what a normal Lovenox dose is. Because I'm being treated for a current clot and that clot and treatment will take up to 3 months to dissolve so I'll be on a therapeutic dose until at least January. If I was on the normal 40mg twice a day dose it'd be fine. But my dose is currently 80mg twice a day plus baby asa.
Hi ladies. As long as my labs and such look good this week and next we are scheduled to start ivf with pgd with my next cycle in November. I have mixed feelings. I've enjoyed having a somewhat normal life these last almost 8 weeks waiting for AF to return (you know, minus the PE event and hospitalization). I'm not sure I'm ready to start in with stressful tests and the fear of failure. This will be our final attempt. But we've met our drug out of pocket max plus our medical out of pocket max so makes more financial sense to start ASAP. Plus I just turned 44. Anyway. Just needed to vent I guess. Hope you all are well.
Ha...we can all hope to be younger during this process!
No I have no news and have not been doing great mentally to be honest. I'm not extremely confident in our next attempt and have lost alot of my hope. It doesn't help that I've had so much to do and my grandmother isn't doing well, which is never fun. However, I've been keeping super busy which is kind of a blessing to keep my mind off other things. I'm so ready for January to get here already!
Sometimes the waiting is harder than the process. At least for me. I start to worry about all the negative what ifs. I did it this time as I waited longer and longer for AF to finally show. And once she did I worried it was too light, I had scar tissue, etc. So far nothing seems to be wrong. My body acts like I never even lost baby 5 and hemorrhaged etc. I do so much better once the process of things starts. I hope that'll be the case for you in January.
Honestly I'm not terribly optimistic about our chances. Trying to go into it calmly knowing all my eggs are bad. Hoping I won't worry as much.
You are right that the waiting itself makes it worse. That's one of my least favorite things.
I'm sorry you aren't having much confidence either, but I really hope everything goes well for you. The fact you have made it so far a few times suggest your eggs aren't horrible, but you just never know until you get through the process.
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