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Old Jan 2nd, 2017, 13:50 PM   1
mummyoneday
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Starting new round of Ivf 2017. Feeling worried. Please read


Hi everyone,, thanks for looking at this thread. So... 3 years ago hubby and I married. 6 months later had our first round of Ivf which all went really smooth. When on the final evening of my injections I took my stimulation ovetrelle I think it was called... Next thing I new I was in bed with 4 paramedics in my room all I could hear was the dog barking in other room... Turned out I had a seizure.. This was a surprise as have never suffered anything like this before... I was due for egg collection 2 days after this at Nuffield however was told I could not be sedated due to seizure. I would ovulate as normal and loose all the follicles... Day 4 I then had OHsS.. I was told I was extremely lucky my ovarie had not burst. . . Anyways. Long story short... I continued from then to have seizures which then resulted in them becoming life threatening.. I was then diagnosed with a brain tumour. Had surgery to have this removed last February.. I am now almost off all my meds and seizure free now. Want to start our ivf again this year by July hopefully. Just need someone to chat to really. Thanks. Xx



 
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Old Jan 2nd, 2017, 21:49 PM   2
Lucinda7981
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Im so sorry to hear all this happened.....how scary! Im happy to read that you are seizure free and despite such a scary experience will try IVF again. I've done 4 fresh cycles and 3 frozen cycles. One frozen was sucessful two years ago and im currently in limbo with my dec FET...i say limbo because i have ultrasound in a week to see if there is hb as my clinic only does 2 betas and two sonos. I currently was told that i have swollen nerves in my eye and need to see a specialist to find out whats causing pressure to my brain.
Anyway wanted to say hello



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Old Jan 3rd, 2017, 16:22 PM   3
mummyoneday
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Quote:
Originally Posted by Lucinda7981 View Post
Im so sorry to hear all this happened.....how scary! Im happy to read that you are seizure free and despite such a scary experience will try IVF again. I've done 4 fresh cycles and 3 frozen cycles. One frozen was sucessful two years ago and im currently in limbo with my dec FET...i say limbo because i have ultrasound in a week to see if there is hb as my clinic only does 2 betas and two sonos. I currently was told that i have swollen nerves in my eye and need to see a specialist to find out whats causing pressure to my brain.
Anyway wanted to say hello
That's sounds so scary hun do they know what's wrong with your eyes. I was worried after the seizure and was completely convincedt it was the ivf hormones etc but then they found my tumour. So worried this time round. That's great news hun I will keep everything crossed for you. What age is your other wee one xx



 
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Old Jan 4th, 2017, 09:46 AM   4
Lucinda7981
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Okay so dr wants to see me after I deliver as he's thinking my symptoms are due to the medications and pregnancy. He said that I should be on the lookout for severe headaches or swooshing noises. Feeling relieved to say the least!
So are you feeling comfortable with your dr and the ivf protocol that you will be on? Are you planning on a fresh cycle?



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Old Jan 4th, 2017, 12:31 PM   5
Lucinda7981
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Oh my lil girl is 2 yrs old.



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Old Jan 4th, 2017, 13:02 PM   6
scoobybeans
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Hi ladies

mummy- Wow, what a terrifying thing to happen! I'm so sorry you had to go through that but glad everything seems to be good now. I'll be starting my first IVF treatment in February & I'm nervous too!

Lucinda- Congrats on your BFP & good luck with your ultrasound! If you don't mind me asking, which doctor told you to wait until after delivery to follow up with your eye issue? Did that come from a neuro OPT or your OBGYN? Only asking because my DH worked in the eye care field for years and if your optic nerves are swollen that's definitely something you should get checked out ASAP.



 
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Old Jan 4th, 2017, 21:16 PM   7
Lucinda7981
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scooby that was the neuro opt that said this;he said everything looks fine for now....maybe ssome calcium deposits...at least that is what it appears to be.
Im originally from NY...moved 2 yrs ago...what practice will you be cycling with in Feb?



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Old Jan 4th, 2017, 21:20 PM   8
S_secret
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I start in 5 days. Eeeeeks. Kind of nervous but more excited than nervous!



 
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Old Jan 5th, 2017, 09:07 AM   9
scoobybeans
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Lucinda- Oh good, then you're in good hands I'm glad it wasn't anything serious! I'll be at Montefiore. I really like them so far, they seem very thorough. Where in NY did you live?

secret- Wow that will be here before you know it! Are they starting you on BCP first or are you just jumping right in with meds?



 
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Old Jan 5th, 2017, 14:02 PM   10
S_secret
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Quote:
Originally Posted by scoobybeans View Post

secret- Wow that will be here before you know it! Are they starting you on BCP first or are you just jumping right in with meds?
I have been on bcp for a while now, 30 days or so. I am just eager to et started but trying to keep the one day at a time mind set. Deep breath.



 
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