Yes that's the policy I have. I haven't re-read it recently but I don't recall anything about miscarriages.
It's a tough one, I read on here before that in some PCT's the clock re-sets if someone has a miscarriage while awaiting referral, ie if it's 3yrs to referral and they miscarriage the 3yrs starts again from their miscarriage. I thought it horribly unfair and didn't think our pct was the same. I know women who get pg through IVF and miscarriage don't lose funding.
IVF can help the carrying part to some extent as the stimulation boosts your natural cycle and the extra meds in the lp do help sustain a pg......plus developing embryos to 3 or 5 days helps weedle out the strong ones.
I hope I'm not being really insensitive, but is the Dr sure that the IVF cycle pre your BFP didn't perhaps help you fall pg? ie it boosted your hormones maybe or in fact, since our clinic don't do blood tests you did perhaps fall pg from the IVF but had very low and slow rising hcg? My test was negative on the clinic advised clearblue test on OTD.
I don't blame you for not having the energy, i'm just mad at H&E who to all intents and purposes have written a lovely letter but are essentially the ones that have made contact to 'check' on your funding starting all this uncertainty for you
They presumably only knew you'd fallen pg because you took the time to call them
I do feel a bit of an idiot for telling them now and wonder how things would be if we hadnt. Im too honest! Also, when you do finally get a BFP, you dont expect to lose it 2 weeks later and so arent really thinking of the repercussions of telling them.
I looked on the policy and you are eligible of you have a reason for infertility or are unexplained for 3 years. Im not sure that premature ovarian aging counts as it doesnt mean im completely infertile.
I do wonder if the fact that it was straight after ivf meant the ivf drugs helped. They were sure that from the numbers, there was no way it could be from the ivf. But the consultant at the follow up after the failed ivf had said that thought there was no medical reason, there was statisically a higher chance of conceiving straight after ivf so to make sure we keep trying. I just didnt know I was about to find out I already was.
I know the ivf affected that cycle as I have never ovulated earlier than day 16 (usually nearer cd20) and it had to have been much earlier than that as we only bd'd on day 6!! Im pretty sure the old spermies dont last 10 days!!!
I've had 4 bloods, the last being wednesday and I won't be having any more that I know of.
I've found it very nervewracking rather than reassuring doing bloods tbh as although numbers were rising they are just very low for my dpo, so I'm just waiting for my scan which is booked in as next friday, it may be a touch early to see a heartbeat even if all is well but because i've been having brown bleeding now for 5 days I really just want to see if there is something there at all tbh.
I'm not really considering myself pg, which is sad because I always thought i'd be ecstatic when this day came. But not getting a +ve test and a low beta was just really hard, I feel a bit in limbo and like i'm on another TWW.
I can really sympathise with you. When I started spotting, I thought it was all over and then I had bloods done and the levels had gone up a fair bit but still not doubling. I then had to wait over the weekend to have them repeated which was when I started to have more than spotting. Then the bloods showed there was no rise in levels anymore.
If your levels are doubling then you are definitely in a better position to begin with so keep positive, though I know its hard. It is worse that the 2ww as you have so much riding on it, but keep sight of the positives!!!!! Do you mind me asking what your betas are? I drove myself crazy scouring the internet for figures etc but decided to listen to my gp who said not to pay too much attention....they are rising and thats good.
First beta was 20 at 14dpo, that's the scarey one really as 25 or less at that stage with IVF is very closely linked to non-viable pg....wish I'd never read that bit.
Beta 2 at 16dpo was 68, Beta 3 at 18dpo was 204. Then I had one at 23dpo which was 1200, so they rise within the 48hrs doubling time but are at the low end for my dpo and very low for an IVF v's natural pg.
I'm trying to just stay balanced but deep inside I don't feel positive, I have all this brown spotting and no symptoms at all, I think the only thing stopping a full bleed is the progesterone tbh.
I think they are great numbers! So what if it was a slow starter, its gaining speed nicely. Something is producing the hcg and causing it to rise and that is the important thing!!! As long as the spotting is brown and not red or full flow then I think all is ok.
I was also told at the early pregnancy assessment unit, when they were monitoring my levels as they came down, that they were looking for a level of less than 10 as a marker that all was out of my system. So 20 in their eyes is a definite, though early, positive.
Thanks Fluffy, I really thought that when I got a positive I wouldn't be a worrier but I'm just finding it really hard to believe this could be happening and go well. I think I might be just tryin to protect myself and prepare for more bad things.
Firstly congratulations Nell! I think those numbers are good but I understand your reservations! You did indeed keep that FET quiet!!! What was your lining then?-as I know this has been issue for you. Try to have faith, those doubling numbers are great! I don't know if I will be a worrier or not once pregnant, probably! Where did you go for the betas? I have my FX for you!! come on little bean!xxx
Fluffy-great to hear from you! Sorry you having such problems with the funding, I hope something gets sorted soon. Its ridiculous all this your having to go through....of course you wouldn't think at the time about telling them about your pregnancy would have repercussions! xxxxxxxxxx
Lisa-how ru? did you speak to the clinic about that letter?x
AFM-well having bad days and good days.... I'm starting counselling soon (not with clinic) and I do need it I think. Finding it harder and harder to deal with the situation of ongoing infertility. My last ivf cycle (for the forseeable future as they are only letting us egg share one more time as my recipeint got PG in 1st cycle, but the one from last cycle didn't) will be end of may/june. Well that's if my may AF shows up at the start of may which I sincerely doubt as my cycles are wacky. On cd21 of the cycle before the ivf cycle they going do this pipelle thing, where they scrape away some of your lining to leave a little 'hole' for embie to hopefully snuggle into? Thats my understanding anyway!-Lisa ru having that too?
I will also be having extra progesterone (3 cyclocest instead of 2-which surprised me as I'm sure one of you said they wouldn't let you do that?), more steroids, and this time Heparin. Nell-are you on Heparin now? What do you think about it? xxxxxx
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