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Old Feb 6th, 2013, 07:47 AM   11
BlueHadeda
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Thanx for updating us. Did the dr mentioned anything about his findings after the physical exam? Does she have any neurological deficits, or is the MRI purely just to rule out tethered cord for sure? It's good that they want her a little bit older for the anaesthesia, but just horrible that you now have to sit with this sword over your head for 2 months. If you remember, please update us after the MRI?



 
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Old Feb 6th, 2013, 14:18 PM   12
san fran shan
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The doc just said we needed MRI to be sure. She has no other symptoms besides the crooked butt crack. I'll update when the MRI is done. Thank you for your support



 
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Old Jun 1st, 2013, 04:30 AM   13
AmyB1978
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Good luck San Fran Shan, glad it,is,getting checked out!

I also need some advice. My lo has what I swear is a slight dimple and her butt crack "continues" past where I think it should end, it's a kinda red line. It concerns me, especially as my DH had a sister who passed away as a child from a surgery relating to spina bifida. I showed the pediatrician and she says its fine but never seemed to really look at it. Since the last check up I also notice to hard/bony bumps kinda right where the butt crack ends and the sacral dimple, if it is one, begins. I want a 2nd opinion but don't know where to take her. DH is acting like I am crazy and tells me I should trust her pediatrician or find a new one. He also seems to think it is ok to leave it to be looked at again at her 6 month well baby (she just had her 4 month) but if there is something going on I don't want to waste time plus I already had her look at it (she did nothing more than a quick glance) at the 2 and 4 month appointments.

Do I wait? Do I go back to her dr and demand she really look at it and have her referred to get it checked out further? Do I take her somewhere else for a 2nd opinion? If so, where?

Please someone help me figure out what to do! Sorry to the OP for stalking, taking over, but I searched for this and figured if I tag into your post people might see it.



 
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Old Jun 2nd, 2013, 19:52 PM   14
margarita1979
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Stalking this, as well. I didn't know there was such a thing as a tethered cord. I just happened to read this thread and then checked DS later that night. He also has a crooked butt crack. My doctor has never mentioned anything about it, but now that I think of it, she doesn't really flip him completely over during his exam. We just had his 6 month visit a few weeks ago and aren't due to see her again until 9 months. Should I call and book an appointment? Not sure what to do.

OP, hope everything goes well during the MRI.



 
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Old Jun 2nd, 2013, 23:56 PM   15
san fran shan
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Hi ladies! I think if you have any concerns definitely get it checked out or ask for a second opinion. I had no idea this was even a thing. I guess my doc routinely checks. She flipped both babies and looked.

Emma's butt crack is in a Y shape as opposed to straight up and down. Her MRI is next Monday June 11th. I'm really nervous about her being sedated. I have these horrible thoughts that she won't wake up But I know it has to be done.



 
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Old Jun 3rd, 2013, 00:56 AM   16
Feronia
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Best of luck for the MRI.
My DD has a crooked butt crack as well (2 sacral dimples -- one larger), and my midwife noticed right after she was born. She examined them thoroughly, though, and said that they're closed and that there's no reason to get them further examined. It sounds like your doctor is recommending the MRI just to be safe.



 
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Old Jun 3rd, 2013, 04:53 AM   17
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Oh I don't think my lo was checked for this? I'm in the uk. He's 6 months. Unless they did but I wasn't aware.

I hope everything goes ok. You sounds like your a brave mummy and you'll get thought what ever the outcome is x



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Old Jun 7th, 2013, 11:21 AM   18
BlueHadeda
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OP, good luck for next week!! And don't worry, the sedation they give is extremely light. More like a sleeping pill, if I understand it correctly.

Quote:
Originally Posted by AmyB1978 View Post
Good luck San Fran Shan, glad it,is,getting checked out!

I also need some advice. My lo has what I swear is a slight dimple and her butt crack "continues" past where I think it should end, it's a kinda red line. It concerns me, especially as my DH had a sister who passed away as a child from a surgery relating to spina bifida. I showed the pediatrician and she says its fine but never seemed to really look at it. Since the last check up I also notice to hard/bony bumps kinda right where the butt crack ends and the sacral dimple, if it is one, begins. I want a 2nd opinion but don't know where to take her. DH is acting like I am crazy and tells me I should trust her pediatrician or find a new one. He also seems to think it is ok to leave it to be looked at again at her 6 month well baby (she just had her 4 month) but if there is something going on I don't want to waste time plus I already had her look at it (she did nothing more than a quick glance) at the 2 and 4 month appointments.

Do I wait? Do I go back to her dr and demand she really look at it and have her referred to get it checked out further? Do I take her somewhere else for a 2nd opinion? If so, where?

Please someone help me figure out what to do! Sorry to the OP for stalking, taking over, but I searched for this and figured if I tag into your post people might see it.
I've replied to your pm.

Quote:
Originally Posted by margarita1979 View Post
Stalking this, as well. I didn't know there was such a thing as a tethered cord. I just happened to read this thread and then checked DS later that night. He also has a crooked butt crack. My doctor has never mentioned anything about it, but now that I think of it, she doesn't really flip him completely over during his exam. We just had his 6 month visit a few weeks ago and aren't due to see her again until 9 months. Should I call and book an appointment? Not sure what to do.

OP, hope everything goes well during the MRI.
I would just wait until her 9 months appointment. My baby has a crooked butt crack, and they did an x-ray at 9 months for uneven hip fat rolls. It clearly showed the bottom spine, where there was no spina bifida occulta (opening in the bones). My eldest daughter had tethered cord without spina bifida occulta, but it's extremely rare. Almost unheard of. Usually, there will be a SBO noticed on an x-ray. I'm taking it as a good sign that my baby's crooked butt crack means nothing. 9 Months isn't bad timing in identifying a tethered cord, if it indeed turns out to be something. They only rarely operate before 9 months in any case, for a tethered cord. So I think you should be fine waiting until 9 months to get it checked out. And remember that though a sign could be indicating a tethered cord, most signs turn out to mean just nothing.



 
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Old Jun 12th, 2013, 10:04 AM   19
san fran shan
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Emma's MRI was yesterday. I was very anxious and scared but it went just fine. It was so hard to leave her there. They wouldn't allow me to be in the room when they sedated her. My DH and I went for a walk during the MRI to pass the time. It took an hour. When she woke up she was so sad and would cry, then fall asleep, then cry this sad weak cry. We gave her a bottle and she was better. After about 2 hours she was back to normal. I have an appt scheduled for Tuesday to get the results. I am not sure why it would take so long. I am going to call sooner than that and get my answers!!



 
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Old Jun 12th, 2013, 10:06 AM   20
AmyB1978
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Glad the MRI went okay, let us know how you make out with the results.



 
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