Crooked butt crack??? Just got call from doc with results!
I took my twins in for their two month check up and vaccines. The doc looked at their butt cracks and my daughter's has a crooked crease right at the top. She said this could mean she has a tethered spinal cord. Monday she will see a neuro sergion for a physical exam. From there they would recommend an MRI to see if her cord is tethered. If it is, she would need surgery to have the the tethered cord snipped. I am so scared she will need surgery. It makes me so sad. Even sedating her for the MRI freaks me out. Has anyone heard if this or had experience with this? If she has a tethered cord and it doesn't get fixed it causes neurological problems as she gets older.
Also their vaccines were Monday and they are still fussy and not eating like normal. No fever. How long were your babies fussy after their shots?
Robyn has a twisted bum crack and dimple too, the paediatrician spent a long time checking at her new baby check up (1 day old) but it's not been mentioned since.
I will be bearing it in mind when she's older though, if she gets any strange symptoms- there's a lady on here (BlueHadeda I think her name is) whose daughter really struggled due to occult tethered cord.
My daughter had a tethered spinal cord and had the surgery. It's scary but it needs checking out, my daughter had a dimple that was checked by a hospital and gp, we were told that it was fine - well it was far from fine! A dr at our children's hospital noticed the dimple, checked via ultrasound and the diagnosis was confirmed by MRI.
If your lo needs surgery just remember that tethered cords can cause nerve damage if left leading to incontinence and loss of feeling in legs so its really worth it. I'm so thankful that a dr noticed my daughters dimple as we had been told on two occasions that it was fine!
Yes, we too are unfortunately very familiar with tethered cord. My eldest daughter has no signs on her back. She developed normally until age 3 when we pottytrained. She just never stopped having the odd accident (about once a week). At age 4.5 she started having bowel accidents too, about once a month. Around age 5 we noticed she's developing slight foot abnormalities, really really slight only. At age 7 only was she diagnosed with an occult tethered cord (occult means hidden, thus not showing up on MRI). Between ages 5-7 she has been with about 10+ of the best qualified specialists and none of them could diagnosed her, even though some suspected tethered cord. The operation was a huge success and we've gained loads of function back, but unfortunately she has some permanent nerve damage to her bladder, bowels and feet. We deal with this every day, and there's nothing more they can do for her.
My 2nd daughter, 6 months old, also has a slightly crooked butt. I'm absolutely terrified of her having a tethered cord as well. Our pead is unconcerned though, even after going through the whole ordeal with my eldest. So for now, I'm not pushing an MRI. But if she were to show any sign (foot weakness or deformaty, bladder infections or severe constipation, etc.) I'll insist.
Good luck to your baby. It's awful that she needs sedation. But if it is a tethered cord, the earlier they catch it, the better chance you have of there being no permanent nerve damage. If I've known what I know now, during my daughter's first year of life, I would've almost happily have put her through the surgery before age 1. But don't worry too much just yet. By far the most "markers" on the back is actually innocent, and not indicitave of a tethered cord. Let us know what the dr says on Monday?
Thank you for all your replies. Blue, I am so sorry your daughter had to go through all of that. Poor thing. Mrsmitch and Blue, if we have to go further, I will definitely hit you up with questions. I had never even heard of this tethered cord thing before and was caught off guard. I am happy their doc noticed it and we have access to good medical care. I will update after her appt as soon as I can.
That's great news, at least with an MRI you will get a reliable answer. Try not to worry too much about the sedation, they use a mask and gas for little ones usually, you will cuddle your lo and the anaesthetist will slowly move the mask towards their face whilst the gas is running so they become a little drowsy before its fully on their face although my daughter at that age would grab the mask and try to eat it so it never took long to sedate her!
Then they wake your lo up a little before you are called in, by the time they're awake enough to know what's going on they will be having a cuddle in your arms! Honestly she will have no idea that you weren't there xxx
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