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Old Sep 14th, 2017, 21:23 PM   1
campn
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Concerned.


My baby just turned 12 months old and we had her one year checkup and the doctor is concerned cause she seems physically weak. She referred us to a neurologist which means she thinks it's a muscular dystrophy.

She was rolling over at 3 months, she was sitting up by 7 months old then stopped doing it, like HATED it and cried, even though she could do it (she sits up in high chairs and strollers just fine)

She crawls on hands and knees, pulls herself up and her motor skills are all fine but now I'm freaking out. It's just the sitting up part that is making her doctor worry.

I'm trying so hard to stay off google cause the horror stories are just too much, so I wanted to hear real stories from you mamas.



 
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Old Sep 14th, 2017, 21:27 PM   2
Take2
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I don't have any experience but I didn't want to read and run. Only thing I can say is that I hear of many people who have doctors raise concerns about this and that only to go onto a specialist and hear their child is totally fine. I hope this is how things turn out for you too!



 
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Old Sep 15th, 2017, 05:10 AM   3
MrsButterfly
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My eldest was slow with physical development. Didn't crawl until 11 months and didn't walk until just over 18 months. He wasn't pulling to stand at his 1 year check. Our health visitor was worried but I could tell he was progressing just slowly. It's good that they're taking a look but hopefully there is nothing to worry about.



 
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Old Sep 15th, 2017, 15:36 PM   4
Ashley1012
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My DS1 who is almost three was referred to a neurologist for muscle weakness as well. He could sit, but his muscle tone was low. Shortly after that visit he started having seizures. We went into the neurologist and they did an eeg with showed abnormalities so we started him on meds. He had one or two seizures over the following year. We recently weaned off the meds and he's been fine ever since.

Not saying this will be your scenario, but I hope it works out for the best!



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Old Sep 15th, 2017, 19:09 PM   5
campn
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Quote:
Originally Posted by Ashley1012 View Post
My DS1 who is almost three was referred to a neurologist for muscle weakness as well. He could sit, but his muscle tone was low. Shortly after that visit he started having seizures. We went into the neurologist and they did an eeg with showed abnormalities so we started him on meds. He had one or two seizures over the following year. We recently weaned off the meds and he's been fine ever since.

Not saying this will be your scenario, but I hope it works out for the best!
Oh I'm so sorry. What was he diagnosed with? Did they figure out what his actual issue was? I'm glad he's doing fine now!



 
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Old Sep 17th, 2017, 07:32 AM   6
Ashley1012
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They diagnosed him with complex partial seizures, and just hoped he would grow out of them, which he did! They still comment on the lower muscle tone in his legs when we go to the doctor, but there has never been an issue. He walks, runs, skips and anything else a normal 3 year old should do!



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Old Sep 26th, 2017, 20:20 PM   7
campn
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Wanted to update,

Neurologist thinks it’s a benign hypotonia that she’ll outgrow by two. It’s genetically passed from mother to daughter. My mother must have had it and passed it to me and I passed it to her. She’s going to run labs anyway just to be sure.

It’s not a big deal, she just needs to get stronger with physical therapy. Just wanted to update in case someone runs into the same issue!



 
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Old Sep 26th, 2017, 23:17 PM   8
Take2
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Please to hear it isn't anything to serious, thanks for the update!



 
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Old Sep 27th, 2017, 08:03 AM   9
Bevziibubble
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That's great news



 
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Old Sep 30th, 2017, 03:00 AM   10
mara16jade
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That's great news. I'm sure you must be so relieved



 
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