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Old Aug 4th, 2016, 16:12 PM   31
Amygdala
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That sounds really positive! Hopefully soon this will all just be a horrible scare in the past and you'll be able to finally enoy your pregnancy. Will be checking back for good news. :-)



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Old Aug 19th, 2016, 20:41 PM   32
cnote
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Update! Level 2 ultrasound went well!


So we had our level 2 ultrasound a few hours ago, and the doctor said the baby looks great! Everything was in normal range, including the NT which was at 4mm (at 18-20 weeks, 6mm is max for normal range). We got to see our little guy sucking on his hand and kicking his legs. He's so cute! We still have an echocardiogram at 22 weeks and we're still waiting for noonan's results, although we're pretty optimistic now. I think what really disturbs me so much at this point is reflecting on this whole journey, and realizing how much pain and stress could have been avoided if the doctor would have just delivered the news of the increased NT better. Literally, that first conversation about the what ifs made a tremendous impact on both me and my husband and we nearly terminated the pregnancy because of it. But our baby appears to actually be healthy. I'm not the type to complain, but I do want to let the Kaiser OBGYN Dept know at some point that they really need to work on their communication skills when it comes to difficult conversations with patients because poor communication skills can literally result in unnecessary death, not to mention the psychological scarring for the patients. Anyway, end of rant. Will continue to update when the other results come in but so far, so good!



 
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Old Aug 20th, 2016, 02:01 AM   33
Amygdala
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I'm so glad to read your good news!
I also know what you're talking about regarding interpersonal skills in medical professionals. I'm having a pretty tough time at the moment, worrying much more than I should. And I realised it's because of the very abrupt attitude of the sonographer at my last scan. It just makes you feel uneasy when people aren't saying anything reassuring. So I can only imagine the impact of someone presenting something as worrying as your situation in a bad way. I'm so glad it turned out well but I think you're right, your doctor should have tried to help you worry less. Apart from the risk that parents decide to end what is really a healthy pregnancy, the psychological impact of losing faith like that shouldn't be underestimated. It's tough to trust your body and a pregnancy again after thinking that it may be over.



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Old Aug 20th, 2016, 08:16 AM   34
MoBaby
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cnote I am so happy your baby is okay!! I know how you feel after we were high risk. I think your dr presented it to you like our dr did which ws not appropriate. Actually my OB even mentioned termination before any confirmation tests were back and we had an NT of 2.97-3.1mm. You are right there are unnecessary baby deaths. I think these days the drs have to CYA if you know what I mean so they basically have to give worse case scenario and all the options. I agree there is an appropriate way to go about things which can make the world of difference and if you feel you werent treated right or given the best care you should have you should complain. I am relieved for you (which I know you are as well!!) and will keep all crossed this pregnancy continues to go smooth from here on out.



 
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Old Aug 20th, 2016, 08:32 AM   35
Willow01
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Brilliant news!!



 
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Old Aug 20th, 2016, 08:41 AM   36
tag74
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Best news ever!!



 
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Old Aug 25th, 2016, 16:49 PM   37
cnote
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Thanks so much ladies for all your comments! It's really comforting to know others have gone through this process and can relate to how I felt/am feeling. I wish none of us have had to suffer this way, but I am very grateful that all of us are luckily experiencing healthy pregnancies (and healthy deliveries! Congrats MoBaby on your handsome guy!). I do hope that in time, the whole screening and diagnostic process can develop better practices when it comes to patient communication and tough discussions. More than anything, I hope I (and none of you) ever have to even have a conversation like that with a doctor again.

all that being said - our noonan's results are negative! So for anyone surfing the web desperate for reassurance after a high NT - have hope!

Here is my timeline for anyone going through all the testing and wondering when the madness will end!

7/6 - 3.7 NT, 1/5 chance of downs, 1/10 heart defect
7/12 - CVS
7/22 - CVS Clear
8/3 - Microarray Clear
8/19 - Level 2 ultrasound great
8/25 - Noonan's results clear

There is now a 95% chance of a good outcome.

Thank you again ladies for all your support! Xo



 
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Old Feb 3rd, 2017, 08:54 AM   38
cnote
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Just wanted to update this thread for anyone going through an abnormal NT scare. I know I hated it when I was reading similar threads online and no one would come back to update! My baby boy was born on 1/15 weighing 6 lbs 15 oz and is perfectly healthy and normal.



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Old Feb 5th, 2017, 23:20 PM   39
justplay91
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Congratulations! He's beautiful!



 
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Old Feb 8th, 2017, 11:00 AM   40
crazylilth1ng
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Awww so cute congrats!!!



 
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