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Old Mar 2nd, 2018, 12:30 PM   1
red_head
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Stomach outside baby’s body


We’ve just had a second 12 weeks scan (although I’m actually 13+3) as last week things weren’t clear. We’ve been told baby has gastroschisis as a best case scenario and at worst prenatal ruptured membrane omphalocele. There were no doctors available as we were last scan of the day and everyone had left due to snow. Apparently mortality rates are about 10-15% for the best case, and 95% for the other. Does anyone know anything about this? Please? I can’t believe this is happening.



 
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Old Mar 2nd, 2018, 12:34 PM   2
bbbbbbb811
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No advice sorry, but didn’t want to read and run



 
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Old Mar 2nd, 2018, 12:38 PM   3
red_head
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Thank you x



 
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Old Mar 2nd, 2018, 13:27 PM   4
harley81
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I don’t know anything either, but didn’t want to read and run.

There was a story in our local paper about a baby with gastroschisis a few days ago. The parents had been worried all pregnancy and the baba had to have an op to put the gut back inside, but he’s made a really good recovery. They’ve set up a Facebook support group for other social in the same situation. Just wanted to share a story with a happy ending xxx



 
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Old Mar 2nd, 2018, 14:30 PM   5
red_head
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Thank you that is really helpful - I will have a look on hubbys Facebook for the group



 
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Old Mar 2nd, 2018, 16:24 PM   6
xarlenex
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When will you have another scan for a definite diagnosis? I'm so sorry yous are being faced with this all I can say is that my consultant during my first pregnancy sent my referral for counseling to give birth to a still born baby because she knew the chances weren't great, now he's 10 cheeky and fighting fit despite her initially having no hope for his outcome. Our doctors can do fantastic things



 
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Old Mar 2nd, 2018, 19:16 PM   7
Nuthatch
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Oh, red, i am so sorry. I have no information or advice, but i just want you to know i will be thinking of you.



 
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Old Mar 3rd, 2018, 01:18 AM   8
red_head
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Thank you all. I think we should find out more Monday, or possibly over the weekend, depending on what doctors get to the hospital in this weather. I just want to speak to a doctor.



 
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Old Mar 3rd, 2018, 15:16 PM   9
harley81
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Here’s a link to the article I mentioned https://www.liverpoolecho.co.uk/news...after-14340896
The Facebook page is called gastroschisis awareness 2018 x



 
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Old Mar 3rd, 2018, 15:19 PM   10
chellesama
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I'm sorry you've had such awful news, Red.

I've heard about it, and even seen it once while visiting a NICU, but there's not much more I could say than that, since the outcomes depend on a lot of factors like the size of the gastroschisis/omphalocele, when the baby is born, and the type of repair. I do know that you're in for a c-section to protect the baby's delicate organs, but I know that's the least of your concerns right now.

I hope they're able to get you more information soon, because this is a terrible thing to have to worry about.



 
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