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Old May 6th, 2010, 08:18 AM   1
Steffy&Roo
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Help! Nuchal fold 3.9mm CVS booked for Monday


Hope anybody can help me. I had my first scan at 12 wks + 6 days on Tuesday and they found the nuchal fold to be 3.9mm above the cut off rate of 2.8mm.

I returned the next day to speak to the midwife and doctor who explained that I am high risk and I am now booked in for the CVS on Monday. I am so scared, worried & confused. I am 26 years old and my partner is 29 year old, we have no genetic disorders than run on either side of our families.

I am hoping and praying that when we have the test the results come back clear but I am also preparing myself for the worst. I know that for the next few week they will be the hardest, I wanted to see if anybody else has been through this and how you got through it. I am crying one minute then trying to be strong the next.

Thanks

Steff



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Old May 6th, 2010, 09:48 AM   2
tenerife
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hi there i had a result of 3.3 plus the results of my screening showed 1 in 50 chance of down syndrome i had an amniosentesis 3 weeks ago and am awaiting results i know how you feel.. i am now 18 weeks and still dont know..be strong love zoe



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Old May 6th, 2010, 10:03 AM   3
Mindy_mini
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No advice Im affraid steff but didnt want to read and run

Tenerife, I find it hard to beleive that they make women wait that long for results such as this! Surely the kindest thing is to give women the information asap to allow them as much time as possible to make a decision about whats going to happen next.

I hope they dont keep you ladies waiting too much longer

x



 
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Old May 6th, 2010, 10:24 AM   4
Aidedhoney
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Hiya, i was in the same position my nuchal was roughly 3.9mm, i had an amnio(got rapid results within 24hours) All negative turned out my son had/has a heart defect which is often another reason for a higher than average nuchal measurement.

Did the doctors do a screening scan to check for soft markers? Often these are picked up on by a scan ie nasal bone etc etc my son had no soft markers.
Have they put you in touch with a counsellor?

I found the mw counsellor a god send she really guided me through the whole screening process which was like been on a rollercoaster.

Good luck hun xx



 
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Old May 6th, 2010, 10:29 AM   5
Samemka
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Hope everything is ok hun x



 
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Old May 6th, 2010, 11:32 AM   6
genies girl
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hi one of my twins has a 2.8 measurement and with my blood results the put me at very high risk , we decided against further testing and are waiting for a scan to look for soft markers .
It is such a hard thing to get your head around and it does make you feel how can i carry on as normal but i just try to put it too one side and will only worry if there is something to worry about, at the moment these are just computer generated guidelines that the nt scan gives you so try to stay strong, hope it works out for you xx



 
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Old May 7th, 2010, 02:51 AM   7
Nataliem78
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Hi I went for my scan yesterday ay 11 wks 4days, NT is 5.3mm. Had CVS yesterday and waiting for results. Am waiting for my blood results today. I know just how you feel am terrified it is like a rollercoaster don't know what to do with myself. Am just the same ok one minute a wreck the next. Both myself and my husband are 31.



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Old May 7th, 2010, 03:11 AM   8
kglo
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Hi Steffy,

These tests do have a high percentage of false positives.

You age is in your favour. Did they give you any other results, does baby have a nasal bone present?

I know its hard but try not to worry as this is quite a new type of testing and like I have said there are lots of false positive results.

I am thinking of you.



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Old May 7th, 2010, 04:29 AM   9
Steffy&Roo
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Hi Everyone,

Thank you so much for all your support it has been so helpful and made my mind at ease lots. Iím trying to be as optimistic as I can be. My OH is being very positive which helps but I also want to be prepared.

Nataliem78 Ė I hope your CVS results come back clear, I will be thinking of you. Let me know how you get on.

Aidedhoney Ė No the doctor didnít do a screen test for markers and this is one of many questions I will be asking on Monday. They havenít put me in touch with a councillor either which Iím a little upset by because Iíve had to do all the research myself and I think I would be coping better if I had somebody at the end of the phone to answer them.

The nasel bone looks visible from the scan but this hasnít been confirmed, I asked the midwife & the doctor and this information hadnít been recorded by the sonographer. So again I will be asking this questions too.

Another little added worry was some blood visible this morning after I had been toilet. I had bowel movement after being constipated and it was watery but red so I am praying that it was a result of BM and not another sign of something being wrong. I have had nothing like this up to now? If I see any more blood today I will go straight to A&E.

Thanks
Steff



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Old May 7th, 2010, 05:32 AM   10
Nataliem78
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Hi Steff

Thanks for your note. Try googling ARC (Antenatal Results and Choices) they are a charity help through the Antenatal screening process, they are really nice I spoke to a lady there yesterday who was lovely. Good luck for Monday and let me know how you get on too. Natalie x



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