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Old Aug 23rd, 2010, 00:48 AM   11
Tulip
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Hey Andrea, I'm sorry you're having to go through this worry

They have told us to go home and enjoy him abs that he seems normal. The combined scan at 12w gave us 1:22000 and 1:12000 risk of trisomy 18 and 21 respectively and is has not been mentioned at all in respect of the ventriculomegaly.

The measurements were taken exactly a week apart and we were not offered an amnio. In fact, the initial measurements were so borderline that the sonographer did not order a TORCH screen, so she was obviously unsure of her results. It seems perfectly plausible for your little ones vents to have reduced to that extent, having read the longest thread ever on another forum (you've probably found it on your Google journey). Trying to measure something so small on a little wriggler is also v tricky and if the angle of the slice-through on the u/s isn't exactly right the vents WILL appear bigger. I do think there was an element of operator error with us as she was measuring both vents from the same image the one being measured must be at the bottom of the shot (furthest from the probe) according to the consultant who signed us off

I'm sure all is fine - please, please let us know how you get on xx



 
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Old Aug 28th, 2010, 18:19 PM   12
butterfly71
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Thanks for answering, I didn't get an email update so I didn't know until I checked today.

You had great results for your NT scan, mine are much lower (1:1800) but I am 39 so I guess that is why!

I have wondered about measuring error as well although they had 4 different doctors look at the scan pics so I don't know.

Pretty interesting that you didn't get a TORCH screen, it seems like they really weren't too worried about it for you - which is great! I wish they had been more relaxed with us it has really caused a great deal of stress.

I'll keep an eye out for your updates as well, you are only 3 weeks ahead of me so we'll be having both our maybe/slightly ventricularly enlarged (at one point!) babies around the same time.
Best wishes to you.
Andrea



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Old Aug 29th, 2010, 00:34 AM   13
Tulip
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It is a shame the docs can get so over excited, sometimes they don't realise exactly how much it will affect us. Good luck to you and keep in touch. If it's any consolation we had a 4D scan yesterday (pics in my journal) and Little Munch looks perfectly normal and very, very happy. xx



 
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Old Jun 1st, 2011, 00:53 AM   14
Tulip
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I just stumbled across my old thread and thought I should post an outcome. They didnt scan us again after 23 weeks and Munchkin arrived safely six days late. Here he is at six months and he is such a clever boy

I know Ventriculomegaly can have terrible outcomes but it does seem there are a lot of scares and mismeasurements around. I hope these stories can reassure people while they're being referred xx



 
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Old Jun 3rd, 2011, 11:58 AM   15
janey1975
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Thanks for the update and so glad your little boy is doing so well. He looks absolutely gorgeous by the way.

I also want to reassure anybody that searches to get info on this. Our little boy (apparently it is much more common in boys as they have larger heads and more fluid than girls normally) was measuring 10mm at the 20 wk scan. She did 3 measurements and got 9, 9.5 and 10mm but because of the 10mm we got referred to the Fetal Medicine specialists at Kings that day. I was so upset thinking the baby had a problem with his brain. However, when we got to Kings the highest they could get was 8.9mm but they took blood for TORCH screening and said to come back in at 28 weeks and if it had progressed a fetal MRI would be needed. They did stress, however, that there was a very big likelihood it would be a variant of normal.

I was still really worried and 8 weeks seemed like a lifetime so I decided to book to have a scan privately with consult with Professor Nicolaides in Harley Street at the Fetal Medicine Unit. I was about 24 weeks then. We were scanned there and the measurement was recorded as 7.9mm. Like before, they looked at everything else including conducting a heart doppler scan and all was normal. The wonderful Professor came in and was so very reassuring. He said it was assymetrical (his right ventricle measurement larger than the left) but both are within the normal range (i.e., below 10mm). He said we did not need to worry and we should not have been worrying. He is amazing and I would recommend anyone who is worried to see him, he was the person who came up with the Nuchal scan amongst other wonderful things. Also, any profits from there go to the Foundation that conducts important fetal research. I immediately relaxed and started to enjoy my pregnancy.

We did still go to Kings at 28 weeks as the Prof said we might as well. The scan there found the measurement to be 7.5mm and the TORCH screen test came back negative. We were then 'signed off'. What a relief.

I think so much of this was down to the local hospital measuring incorrectly and being over-cautious. She even said at the time that had she got the 9 and 9.5mm she would not have referred. Also, she did say he was wriggling all over the place and made it hard for her to measure.

I hope anyone else going through this finds this tale reassuring. Please do not google or read too much as it will scare you (it did me!) If all the other aspects of the scan are good then it is likely to be okay.



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Old Jun 19th, 2011, 03:55 AM   16
Fuchsia1412
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Tulip you're at Medway Maritime...??that's not the same as medway marina though is it..? We've just been to see a massive vessel at port Medway marina as my Dad decided he wanted to live on a boat...



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Old Jun 26th, 2011, 02:05 AM   17
Tulip
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Quote:
Originally Posted by Fuchsia1412 View Post
Tulip you're at Medway Maritime...??that's not the same as medway marina though is it..? We've just been to see a massive vessel at port Medway marina as my Dad decided he wanted to live on a boat...
Haha I live not far from the Marina Some of the boats down there are COOL AS!



 
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Old Dec 30th, 2011, 17:21 PM   18
mare
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Quote:
Originally Posted by janey1975 View Post
Thanks for the update and so glad your little boy is doing so well. He looks absolutely gorgeous by the way.

I also want to reassure anybody that searches to get info on this. Our little boy (apparently it is much more common in boys as they have larger heads and more fluid than girls normally) was measuring 10mm at the 20 wk scan. She did 3 measurements and got 9, 9.5 and 10mm but because of the 10mm we got referred to the Fetal Medicine specialists at Kings that day. I was so upset thinking the baby had a problem with his brain. However, when we got to Kings the highest they could get was 8.9mm but they took blood for TORCH screening and said to come back in at 28 weeks and if it had progressed a fetal MRI would be needed. They did stress, however, that there was a very big likelihood it would be a variant of normal.

I was still really worried and 8 weeks seemed like a lifetime so I decided to book to have a scan privately with consult with Professor Nicolaides in Harley Street at the Fetal Medicine Unit. I was about 24 weeks then. We were scanned there and the measurement was recorded as 7.9mm. Like before, they looked at everything else including conducting a heart doppler scan and all was normal. The wonderful Professor came in and was so very reassuring. He said it was assymetrical (his right ventricle measurement larger than the left) but both are within the normal range (i.e., below 10mm). He said we did not need to worry and we should not have been worrying. He is amazing and I would recommend anyone who is worried to see him, he was the person who came up with the Nuchal scan amongst other wonderful things. Also, any profits from there go to the Foundation that conducts important fetal research. I immediately relaxed and started to enjoy my pregnancy.

We did still go to Kings at 28 weeks as the Prof said we might as well. The scan there found the measurement to be 7.5mm and the TORCH screen test came back negative. We were then 'signed off'. What a relief.

I think so much of this was down to the local hospital measuring incorrectly and being over-cautious. She even said at the time that had she got the 9 and 9.5mm she would not have referred. Also, she did say he was wriggling all over the place and made it hard for her to measure.

I hope anyone else going through this finds this tale reassuring. Please do not google or read too much as it will scare you (it did me!) If all the other aspects of the scan are good then it is likely to be okay.
Thank god I came across these threads, Im not worrying as much anymore
My baby has a 10.2mm measurement



 
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Old Dec 31st, 2011, 01:35 AM   19
Tulip
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Glad we can help Mare Are you being rescanned soon? x



 
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Old Dec 31st, 2011, 08:06 AM   20
mare
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Yes I have a scan on 12th Jan (seems so long to wait though)



 
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