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Old Jun 10th, 2013, 07:17 AM   251
Jacobnmatty
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Haven't been back for while.. We had repeat ultrasound at 24 wks and both left & right vents measured 14mm. I am having an MRI on June 21 and another ultrasound at 34 wks.
Dr said now out of the 'probably a normal variant' and 'something is up'.. But Drs have a real way of scaring us!



 
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Old Feb 12th, 2015, 03:10 AM   252
pompeyfc
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Advice needed


I appreciate that this forum is quite old but if anyone is still around I would appreciate some further advice.
Currently pregnant with twin boys and at 26 weeks it was identified that one of the boys had a LV reading of 12mm no other abnormalities have been seen on the quite detailed US. Two weeks later there has been an increase to 14mm and of course this has raised concerns. I am awaiting blood tests to eliminate infection but this seems unlikely that only one twin would be infected and then an MRI. All of the reading from the internet is extremely gloomy especially as it seems to be progressive ventriculomegaly.
Any words of wisdom if anyone is still reading this would be gratefully received.



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Old Jun 17th, 2016, 15:49 PM   253
miracle101
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21 week scan


Hi everyone,
I'm new to this so getting through all the pages of info on this thread. It's helping me so much so first of all, thank you to eveyone for sharing.

I was told I would never have children, went through years of treatment and eventually we had one miracle baby. The pregnancy was horrendous and he was almost born at 26 weeks. Luckily they stopped the process and I was on bedrest for the remainder of the pregnancy.

I was told after that I would never get pregnant again. Hey presto! We got another positive pregnancy test. We thought, finally we can enjoy a normal pregnancy...until we came to the 20 week scan. And then our lives fell apart and my pregnancy has been destroyed.

The doctor told us the baby had hydrocephalus. I had no idea what it was so just listened to her. She said 2ventricles in the head were enlarged to 10.5 & 10.7 and the future was bleak. She told us that most people end the pregnancy as the quality of life for a child is so bad. You can imagine our reaction....We were scheduled another scan a week later and to think about having an amnio.

Through researching, we have discivered that were not even at the hydro stage yet but VM. Were furious with the doctor for how she presented the information. All this is also being done through Spanish as I live in Spain. An added complication. Anyway we went back on Wednesday where a team of 4doctors were waiting to talk to us. The head of the department told us that it's not looking good and the effects will be horrendous if this continues. In his experience he said this always gets worse and that termination could be on the cards. He said that the ventricles also look compressed so he's not happy with the outlook. However beyond that, our baby boy is perfect. No other complications and the head is perfect.
They did an amio that day and the initial test came back today saying there are no alterations in the chromosomes. Now theyre checking for infections and in 4weeks we'll have an indepth study of the chromosomes in case soemthing else comes up.

So this thread has given me some bit of hope. It's a relief to hear of so many positive stories. Ive lost 3kilos from the stress of the whole thing and I'm so drained emotionally. I just can't believe this is happening to us. What are the chances!



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Old Jun 17th, 2016, 16:17 PM   254
miracle101
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vm


Ive just realised that no-one has posted on this for ages. Is it still active?



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Old Jun 17th, 2016, 16:21 PM   255
miracle101
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Hi,
I presume by now you've had your babies. How did everything go?



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Old Sep 25th, 2017, 14:16 PM   256
xanzaba
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I hope that this thread can be revitalized. I read through and followed everyone's posts like a suspenseful novel, waiting for the updates. It was really good to hear so many positive stories, and the sad ones broke my heart. But it is good to get a real world view of this condition to balance Dr. Google.

I went for my 20 week anatomy ultrasound for our little boy and the tech was really quiet, which always freaks me out. She left saying the baby was measuring on time (even though I know I ovulated 5 days late, so he's actually measuring about a week ahead). The doctor came back in and started doing more measurements. He told us that the tech thought the ventricle was borderline large at 10.6, but looking at it he didn't think it looked big. He measured again and had two measurements at 8.6 and 9.1mm and said that he was more confident with those measurements because he thought the original measurement was taken on an angle.

So, we have another ultrasound in 2 weeks. The doctor brought up amnio and MRI. I turned down amnio because I had the cell free DNA test that was negative, and I can't see what it would tell us. Ruling out Edward's Syndrome was the only reason I would risk miscarriage. If the next measurement has gone up, I'll want an MRI to make sure there are no other anomalies.

I keep worrying that I ate something wrong or did something to cause this, and am renewed to being a good pregnant lady. I know rationally that there's nothing I did, but it can't hurt to behave extra well, can it?



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