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Old Jan 23rd, 2012, 09:06 AM   41
janey1975
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Sweetk1, Thanks for sharing your story. Please do let us know how it goes in two weeks time. It sounds like all is well, although I know how difficult it is not to worry about it. My sons measurement was larger on one side than the other but Professor Nikolaides did not seem concerned.

One thing I still don't understand is what is mild VM? I know that sounds strange but do you know what the outcome/effect of this is? It's weird because for many of us on here it has been a case of boys with rather large heads, so can't that just be the way they are? I mean, before scans were used and this measurement taken it's entirely possible many people have a larger measurement on one side and are none the wiser? My baby's head is on the 98th percentile but he is also on the 91st percentile (or just above) for weight and height, so just a big boy. It sounds like your case is similar.

I am not sure this technology is a help or a curse. We have all been put through quite a bit and yet all seems 'normal' if that makes sense?



 
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Old Jan 23rd, 2012, 09:28 AM   42
Sweetk1
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My paediatrician said exactly that! We have no idea how many people are walking around with one vent larger than the other or large vents. If I had not had the scan at 33 weeks I would have been none the wiser.

Mild VM is a measurement between 10mm and 15mm anything over that is classed as severe. If it's progressive it turns into Hydrocephalus (water on the brain) and some babies require a shunt. I think it's important to rule out any other brain abnormalities.

There have been various studies on VM and some children have minor problems meeting milestones and intellectual problems but the studies are old and have not been followed up properly. Other studies say that when the enlargement is an isolated finding, and unilateral it's often just a benign thing.

They do say boys Vents are generally bigger than girls.
My sons weight and height are on the 95th centile too, his head was on the 98th but now around 91st. It's been that way since 20 weeks of pregnancy.

I worried so much for so long but I have cone to accept what will be will be, he's my son and I love him no matter what.
I am hopeful though as he seems great, I just hope it hasn't increased at all.



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Old Jan 23rd, 2012, 09:53 AM   43
janey1975
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Thanks for the reply Sweetk1. What you have said is very similar to what I had heard too. I really do think it's such a scary experience to go through. It really does sound like your boy is just big, like mine. Also, we are talking mm's. I am not convinced sometimes that all measurements are symmetrical. Prof Nicolaides put it well to me when he said that nobody is perfectly symmetrical and with no other issues found I should never have been worried.

In terms of my baby's development, he seems to be meeting all the milestones. I am super vigilant though (far too much) and panic if I think he is behind at all. I did (and sometimes still do) worry about his head control but the health visitor was not concerned and thought it was good. I just think because he has a big head it can wobble a little. I do hate the way I scrutinise his every move because of what happened and wish I could relax more. How are you about it all? I know your boy is a lot younger.

I am also from Essex too, another thing we have in common. I won't name my hospital but I don't have much faith that the original measurement that triggered the referral to King's was that reliable (she got 9, 9.5mm and 10mm but felt she needed to refer because of having one measurement of 10mm). The equipment at the hospital was really old, especially when you compare it to Kings and the Fetal Medicine Unit. It says it all when within 4 hours it went from 10mm (local hosp) to 8.7mm (Kings).

Anyway, enough of my moaning. I am sure his measurement will not have increased and nothing more will come of it. Good luck for two weeks time and do let us know x



 
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Old Jan 25th, 2012, 08:55 AM   44
blkdiamond
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Oh thank goodness for this thread. I had a growth scan because I was measuring big and they found enlarged ventricle of 12.1 on the left and 10.3 on the right at 29 weeks. I also have a big baby (girl),she was measuring large on everything, with polyhydraminos thrown in too. Obviously I am distraught. I get rescanned in 2 weeks and told I may need fetal MRI scan. At least I feel a little hope now that things work out in most cases.



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Old Jan 25th, 2012, 10:24 AM   45
Tulip
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Good luck to you mama I hope your little girl is fine



 
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Old Jan 26th, 2012, 11:35 AM   46
janey1975
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Good luck to you blkdiamond. I know that these two weeks will seem to go really slow, so try to keep yourself busy and your mind off it (if at all possible). Sounds like you have a strong little girl. Please let us know how you get on. Lots of love to you x



 
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Old Jan 28th, 2012, 04:34 AM   47
Sweetk1
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Blkdiamond- please google I am pregnant-ventriculomegaly.
It is a forum specifically for VM. Ignore the first couple of posts as some ladies were having a disagreement but if you go back through the pages (there are hundreds) you will read some really encouraging stories. Loads of mums with VM diagnosis. And you will fine 90% of them have perfectly fine babies



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Old Jan 28th, 2012, 06:51 AM   48
blkdiamond
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Thank you so much for the support and info. I will keep you all updated with how things go.



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Old Jan 28th, 2012, 16:34 PM   49
mare
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Quote:
Originally Posted by blkdiamond View Post
Oh thank goodness for this thread. I had a growth scan because I was measuring big and they found enlarged ventricle of 12.1 on the left and 10.3 on the right at 29 weeks. I also have a big baby (girl),she was measuring large on everything, with polyhydraminos thrown in too. Obviously I am distraught. I get rescanned in 2 weeks and told I may need fetal MRI scan. At least I feel a little hope now that things work out in most cases.
Hi Hun,
What would we have done without this thread!!!
I know its so hard to cope esp when you start to google I wasnt too bad until I googled it!
After speaking to many people and reading this thread I realised that enlarged ventricles was quite common!
The 2 week wait feels like a lifetime!!
Sending my hopes and prayers for your family and your baby girl to be safe and well x x x



 
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Old Feb 6th, 2012, 14:59 PM   50
blkdiamond
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Had my follow up appointment today. Things were very much the same. The left ventricle was still 12mm and the right had gotten a little smaller and is now below 10mm. I have to go for a MRI scan next week and have weekly ultrasounds aswell.



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