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Old Jul 17th, 2010, 01:38 AM   1
Tulip
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Borderline bilateral ventriculomegaly at 22w - support thread!


This is now a support thread for those who have received an initial diagnosis of borderline ventriculomegaly at their anomaly scan.
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Hello lovelies.

My little active man is doing so well but yesterdays scan showed the ventricles in his brain slightly enlarged (0.1mm about the normal range).

It's not a lot and may well resolve itself over the next couple of months, but after losing his big sister to a poorly head, naturally I am pooping my pants. We have a consultant appointment next Thursday, so Google and BnB will have to suffice in the meantime

On the up side his growth seems fine, he's VERY active and he responds to the sonographer's touch (turning over when commanded ) so neurologically he seems fine at the moment. I think we just have to hope it doesn't grow. I guess that means we get to see him more often anyway! We've not yet seen any soft markers for Downs, and his hands are open which seems to rule out Edwards Syndrome. Though I anticipate yet another (our third!) anomaly scan to check these things closely.

Anyone had any experience with this? Am trying to stay calm and carry on planning for his arrival....



 
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Old Jul 17th, 2010, 05:21 AM   2
Drazic<3
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Hey hun,

I am so sorry you are being put through this, it's no wonder you are scared. Chances are, it will resolve itself and it will be one of those things you would never even have known about if it wasn't for the extra scanning. 0.1 is very little, and could even be some kind of blur on the scan! All other signs seem fantastic - and don't forget they are more likely to be enlarged without problems in boys.

Sending love



 
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Old Jul 22nd, 2010, 03:39 AM   3
Tulip
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OK I think three things are key today:

1. Does the initial measurement of 10.1mm appear to have been correct?
2. Has the measurement changed since Friday?
3. Can you find any other abnormalities which have so far not been picked up?

And also: does the cerebellum look normal? Can you see the corpus callosum? Will we be sent for a TORCH screening?
Up to this stage we have seen NO markers for Downs - nasal bone is present and good. Nuchal Translucency was normal at 12w, nuchal fold in normal range at 22w. His movement is free and his hands are unclenched, suggesting no Edwards Syndrome. Fetal growth, amniotic fluid and cord are normal. His head, face, spine, neck and skin, chest, four-chamber view and great vessels, abdominal wall, gastro-intestinal tract, kidneys and bladder, extremities and skeleton all appear normal. It's just his brain missing from that list.

We will be requesting that they change his EDD to that which he measured at his 12w scan (since we had our 12w scan hospital policy has changed and they now amend EDD based on those measurements). I know that I ovulated four, probably five days late, and at 12w he was measuring three days behind my LMP (indicating implantation at 5 dpo like his big sister - maybe I have short tubes ). I want his EDD changed because he is showing small on all the charts apart from his head and I want to have a better idea of how he's doing. Granted, it'll push his head measurement up, but by my calcs not excessively. From what I've seen all his other measurements are bang on.

If no other abnormalities nor an increase in ventricular size are found then I will be inclined to relax a little. If not.... the worry ramps up.



 
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Old Jul 22nd, 2010, 07:53 AM   4
Megg33k
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Stalking for your update this afternoon! Text me! Please?



 
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Old Jul 25th, 2010, 02:07 AM   5
Tulip
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UPDATE:
OK so we went back on Friday.

The same lady that scanned us last week did another full anomaly scan and straight away we could see that the vents were measuring smaller (9mm max).

Consultant came in and also did full scan. The biggest measurement she could get was 8.6 and this was at the worst angle possible (baby is a real little wriggler - breech, cephalic and transverse positioning withing the space of 5 minutes). She was explaining to the sonographer that the vent you're measuring should be on the bottom of the screen (furthest from the probe I think) in order to get an accurate measurement due to the angle. I clearly remember her measuring BOTH vents from the same screen shot last week and think this is where it went wrong.

I also drank less on the day of the scan to see if that made any difference, but I think the major reason for our borderline measurement was operator error.

After losing Ruby to a poorly head, and having this hang over us for a week, having someone say "Your baby appears to be completely normal" is the most amazing feeling. For the first time in six months I can relax He has, after all, had four anomaly scans!

Hope this helps someone in the future x



 
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Old Jul 25th, 2010, 02:58 AM   6
babybel
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HI hun,
So glad to hear its good news :-) I see your in Kent, not far from me, can I ask where you had your scan?

xx



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Old Jul 25th, 2010, 03:06 AM   7
Tulip
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Thanks hon! We are at Medway Maritime. I didn't have high hopes but they have been absolutely fantastic and looked after us fabulously - there must be a flag on the system saying 'treat with compassion' because as soon as they pull up my record they are very thoughtful x



 
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Old Jul 26th, 2010, 16:57 PM   8
Emmylou27
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Quote:
Originally Posted by Tulip View Post
After losing Ruby to a poorly head, and having this hang over us for a week, having someone say "Your baby appears to be completely normal" is the most amazing feeling. For the first time in six months I can relax He has, after all, had four anomaly scans!
This is fabulous news hon. Have been following your story with interest - despite folic acid being taken our first has undetected spina bifida and hydrocephalus so I can kind of sympathise with what you've been through and am so, so pleased for you that everything looks ok.

To be told everything looks normal is a huge weight off your mind isn't it? I would say with four detailed scans, it looks like everything is

Hope all goes well for you xx



 
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Old Jul 27th, 2010, 00:13 AM   9
Tulip
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Thanks Emmy - maaaaan, Daisy is gorgeous! Xx



 
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Old Aug 22nd, 2010, 21:21 PM   10
butterfly71
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Hi Tulip,
I found this thread while googling ventriculomegaly, I hope you don'tmind if I ask you a few questions.
I've just been going through a similar thing with my baby - at the 19 week scan they found enlarged ventricles, just over 10 for one and just over 11 for the other. But when they were measuring (my baby is a wriggler as well!) they actually ranged from 9 - 11mm. One week later as I was being prepped for an amnio they measured again and they had gone down to 7.6 and 8.3mm. Couldn't believe it!
It seems like an unusual thing for them to go back down to normal so quickly and so I was really interested to read your case. We have still been warned of a risk of chromosomal error just becuase it was above 10mm at any point so are contemplating having an amnio at around 27 weeks. (I'm 24 weeks now)
How long between scans did your baby's ventricles change size?
Did you have an amnio?
Even though our baby looks like yours (everything else measuring and behaving perfectly, all views of the brain showing normal structures, TORCH neg etc) they are still saying that because of that one bad ultrasound it increases a risk of trisomy by 9. I would be really interested if you had been told the same thing, or they just said now that its normal you can relax!
Thanks,
Andrea



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