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Old Mar 4th, 2011, 18:24 PM   1051
nkbapbt
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KrystalDawn - Where did you get the gloves?



 
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Old Mar 4th, 2011, 18:34 PM   1052
KrystalDawn
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Oh it wont let me post the web address link for the exact page as im a new member. Its the CarePlan Vph Test Gloves - from access diagnostic website x



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Old Mar 4th, 2011, 20:15 PM   1053
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Originally Posted by HelenGee View Post
Thank you mommy a, your kind words made me feel even more selfish. Fortunately, I haven't had a loss and recently delivered a healthy baby girl at full term. I had an emergency cerclage at 20 weeks and was on bed rest until stitch removal at 35 weeks. I am so grateful for my little girl and my 3 year old boy, I just think the strain of incompetent cervix is beginning to show now I'm getting back to some kind of normality. When I talked about grieving, it was about the right to grieve for the kind of normal pregnancy we should all have, but didn't happen for us.

I am so sorry for your loss and I'm sorry too for the insensitivity of my previous post in the face of all the brave, wonderful women on here who have come through much worse than I have. I think what I'm experiencing at the minute is just shock and trying to deal with a difficult pregnancy so I can be a level headed mum to my children. I now realise that I was repressing that shock and guilt I feel for putting my family through hell! It's kind of like surviving a train crash and walking out with a few scratches but knowing how close I came to not making it. I think the whole time I was on bed rest I was utterly afraid but never allowed myself to admit it. Now I feel afraid of making a mistake with my baby as she is so precious.

This doesn't even come close to what you have experienced mommy a, and I think you are doing amazingly well at remaining so level headed. Thank you again. Please don't think that I don't appreciate my little girl being born healthy, we are having a wonderful time with her and she started smiling which is melting my heart. We are just going through the phase if adjusting back to normal life! X
Oh no, I didn't post that for you to feel selfish. I think it's just a way to share that even through our darkest moments there is HOPE and Strength and through perseverance we find VICTORY.

Sometimes it takes these moments of trial to find out we actually HAVE the strength by the grace of God.

I understand and I'm sure many others understand your fears and heartache. I think we all have either felt it or are feeling it at this time. Everyone goes through their own journey. With this pregnancy I was SO on edge. It took me a moment to catch my breath a bit and understand that I needed to rest easy. Thanks to this thread and a couple others, I'm finding SO much peace and knowledge through others who have been there.

So don't feel selfish hunny. We've all been there. It's a journey



 
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Old Mar 4th, 2011, 20:33 PM   1054
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Hi all.

Well, I had my appointment with the perinatologist. She was very kinda and compassionate.

So, I'm a bit hesitant at the plan she's set forth for me, and I'm praying that this will be enough to prevent another loss and not wait too darn long before actually putting things in to play.

First of all, baby is doing well. Heart Rate is 176. I'm having nausea and the baby is literally at my bum and it's causing me to have a bm every 15 to 30 minutes. It feels awful.

As far as the plan, she said that with my last pregnancy there was no Incompetant Cervix showing at the time throughout my pregnancy. She said this is a case that's in her words "unique". She said what does show up is the issue of inflammation. I lost my mucus plug on the highway and then the nurse practitioner overlooked the chronic BV I had at the time. We know that the BV infected the cervix area where there was no mucus plug to protect. NOW, I DID feel like baby was waving through my vagina. We're unsure if that was actually IC because she said there were no signs of my cervix showing IC.

What she said she wanted to do is for the next several weeks, she wants to measure the cervix and watch it closely. She said she wanted to start Progesterone shots week 16 and then depending on the measurements, she said she would place the cerclage in at 16 to 20 weeks.

From everything I've heard in here, it's more beneficial to place the cerclage in as PREVENTATIVE 14 wks or sooner.

I lost my son at 22wks, but she's not so sure it was IC and says I really don't have a history of showing it. So I don't know what to think of it all

She seems on top of things, but I'm quite confused. What if I don't know enough to be able to advocate the right care? Should I be demanding this happen sooner?!



 
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Old Mar 4th, 2011, 22:45 PM   1055
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I think alot of people have alot of difficulties in diagnosing IC and PTL.

I went through MANY different surgeons, and researched ALL cerclages, because I wanted to know what to do.

Half of the surgeons I talked to said what had happend with Greg was complete IC, without a doubt.

The other half said it wasn't IC with him, but PTL, in which case a stitch wouldn't help.

When it came to Devon, no one knew what to say, as no one knows how I would have reacted had it not been for the infection I had.

This is exactly, to the letter, what happened with Greg. At 23 weeks, I started getting chunks of yellow discharge. I went to the ER and they said I had a yeast infection, no swab. They gave a 7 course treatment of some cream that I needed an applicator for. I did it for a week. At 24+0, I had some pink spotting. I decided to wait it out as I was in no pain. At 24+2, some blood and membranish looking stuff came out, so I went to the Dr. He did an internal and alot of blood and membraney stuff came out, so he sent me for an emergency scan. The tech called my Dr instantly as my cervix was 1.2 cms long. I was in NO pain. They kept trying to give me pain relief while we waiting on the Air Ambulance. I refused as I had no idea what the hell they were going on about. I wasn't in pain. When I flew into Victoria, they put me into a delivery room right away as they were informed I would be delivering that night. But I WASN'T in pain!! So the next day they switched me to the mother/babe ward, as there were no antenatal rooms. I thought I would be going home as I was in NO pain. But the next day, I started bleeding. And the bleeding was just steady all day. Ian took me for a ride in a wheel chair and I started contracting. That was the beginning of the contractions. They were very irregular, but painful, and no Dr would check my cervix again as they said I wasn't in true labour. At 24+6, I had a massive bleed and a nurse finally checked me and I was 3cms dilated. So who knows when that happened. That was about 11PM, I was wheeled to a delivery room, and at 6:20AM, at 25+0 exactly, I delivered Greg.

I honestly believe that shows IC, which half of the surgeons do.

The other half said that since they couldn't know for sure if I dilated first or had contractions first, they have to say PTL. I believe the reason for the confusion was that no one was checking me.

So I think there is alot of confusion with Drs when diagnosing IC, because too many don't check often enough. My cervix was definately shortening without pain at all, and then no one checked me again for almost 5 days, by which time I'd started contracting.

Having a stitch placed preventatively is definately better than a rescue cerclage. It is far better to preserve the ENTIRE length of the cervix, before hormones, or the weight of the baby, change it. Which can happen, for some people, as early as 13 weeks. So yes, a preventative cerclage is way better. I believe it leaves you less prone to infection as well, as the cervix should still have a relatively good lenght, therefore, more length for an infection to climb through.

The reason no one knows what to classify Devon as, is because I was so severely infected in the end. BUT, I had been incubating the infection for a week at least, and no one would help me. And when my Dr finally admitted I was infected at 8:00AM Thursday morning, I was contracting heavily, BUT my cervix was still 3 cms long. At 2:00PM when he rechecked me, I was still 3 cms long. At 9:00PM that night, I had finally dilated. This was with a McDonald stitch in place.

Was this IC, or was this PTL, or was this all due to an infection?? Did the McDonald stitch cure my IC, and I would have had a good pregnancy if the infection had have been stopped?? No one knows. All I know is, my stitch stayed in place until after I delivered. It moved out of the way, and I ripped beside my cervix, which was where Devon came out. I believe now I have IC for SURE!!

Nikki, do you mind if I ask who did your Sharodkur?? I had mine done at BC Womens back in January. It was supposed to be done by Dr Nancy Kent, but she couldn't complete it after an hour, so she had to call in a Dr Gupta, who also struggled for an hour before finally completing it.

I don't think this is the same Sharodkur that Lizzie had, because I know for sure they didn't go through my bladder. They referred to mine as the Modified Sharodkur. It is still halfway up, or a little more than halfway up, but it never went through my bladder. They pulled my bladder up and away to expose the cervix (after they'd cut the vagina away from it), but they never sewed through it. After they placed the Mercilene stitch, they let the walls of the vagina fall back down and used disolvable stitched to secure the vagina back onto the cervix, thereby covering it instantly with my own flesh.

I actually didn't have a hard time at all with the recovery of the stitch. I was in the hospital for a full 24 hours post op, but that was to watch my heart. I did bleed... more so than with the McDonald. With the McDonald, the most I had was some pink spotting for about 12 hours. This time there was bright red blood. It slowed down 24 hours after surgery, but the toiled bowl was looking pretty red for the first little bit after surgery. I did have a hard time peeing for the first 24 hours. They said my bladder was irritated from being handled. The baby did NOT move for a few days after surgery. He had previously moved ALOT, the day before the surgery, and then, all of a sudden... nothing. They couldn't even get him on the doppler, which was why I received an ultrasound the morning after my surgery. He was moving around great in there.

Two days after surgery, the bleeding was pretty light, and I was pretty mobile. The next day, though, I started bleeding more, and it was very mucousy. I took matters into my own hands and did a one week course of Flagyl. Within a day of being on Flagyl, the bleeding had stopped and the mucous dried up. So I tend to think I was starting to develop a post op infection.

I have since taken another dose of Flagyl, as I started getting symptoms of some sort of infection at 18 weeks. I ended up needing to follow that up with a course of Monistat.

While looking at the Monistat, I noticed a product called RePhresh Pro-B. They are little pills you take daily like a vitamin. I discussed the use of these with both my GP and OB and neither saw a reason for not using them, so I have added them to my daily regime. I have not had a recurrence of any other type of infection since. I have almost no mucous discharge now, and when I do, it is only first thing in the morning, it's scant, and it is white and lotiony, which they say is normal for a woman with a stitch in place.

I developed acute chorioamniotits with Devon, for which I needed a D&C 4 weeks post delivery, after a week of IV antibiotics didn't take care of it.

Because it was a concern with this pregnancy, I have been on low dose Erythromyacin since 8 weeks. They figured my chances of the chorioamniotitis reoccurring was pretty high. I take 250mg daily, and so far I've been good. My OB said this would also help to prevent BV, which I seem to suffer from continually as well.

The other things my OB and I have decided on to help reduce my risk of vaginal infections are, cotton underwear only, using a laundry detergent that is dye/fragrance free, no fabric softener or bounce sheets, yogurt to help put healthy bacteria into my digestive tract to replace what is killed by the Erythro, no more pop, limited sugar intake, using a mouth wash twice daily, no baths, using a hair dryer to blow cool air over the vagina in order to dry it instead of using a towel, and changing my underwear the second they start to feel a bit 'moist.'

I don't know if anyone else gets the 'moist' feeling. Its not from mucous, and it isn't urine... Maybe its sweat or something?? But I change my underwear the minute I feel that way, to keep things as dry as possible down there. I also don't receive any sort of internal exams or scans. If I end up needing a swab, it will be done without a speculum, and the swab will only be inserted about a cm, and just onto the vaginal wall.

Who knows if any of these measures will help, but I have to do everything I can think of, so if something does go wrong, I can't say 'if only I'd have done this....'

I saw my GP and she read out the entire report of my heart. It is as follows. Holter monitor, frequent Premature Atrial and Ventricular contractions which are symptomatic (?). Echo results, my mitral valve is regurgitating quite a bit of blood, my atral valve is regurgitating blood but in lower quantities. My mitral valve appears to be thickend. My mitral valve appears to be either missing all, or a portion of one of the leaflets, or there could be a hole in the leaflet, they can't tell for sure yet. One portion of my heart is enlarged. I have an Atrial Septal Defect in which quite a bit of blood flow was viewed, through this hole.

So I guess there are a few defects. I don't believe it will kill me right now, but they are worried about how I will tolerate a delivery again.

They do believe I would benefit from a Medic Alert bracelet after I see the drs at St Pauls, as this increases my risk of stroke and heart attack.

As for the baby, they really aren't too worried about him, they really just want to follow up with me because of my history. I was informed that if they thought it was 'that' big of a deal, the tech doing the scan, would have called my Dr while he was scanning me.

I don't know how we will work this trip to Vancouver, as it appears it will fall during my bedrest at the Williams Lake hospital. I don't see how they can send me in a car, for an 8 hour car ride, during my most perilous weeks. Especially with a Sharodkur in place, and especially since they are unsure of how my heart will handle a delivery. So I think I would like them to either wait til after I get to 25 weeks, or they will have to transfer me by ambulance. I don't see any other way really....



 
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Old Mar 4th, 2011, 23:59 PM   1056
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Sherri, you and your husband as well as the baby are in our prayers over here. There's alot going on in your life. We'll continue to pray for answers and healing for both you and baby.

It seems like you and I have similar situations with our firsts. I'm SO concerned now as to whether this will be assertive enough for me. She kept saying they don't like to put cerclages in without KNOWING because there are still high risks to infection, rupturing, and wripping.

I literally don't have any other options. This perinatal center is the only one if 14 counties. I'm SO frustrated and concerned!!



 
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Old Mar 5th, 2011, 00:32 AM   1057
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Is there no one else you can see??

I will tell you this.... I DON'T get along with 'my' MFM in Vancouver. The very first time we met, it was like oil and water.

He is very old fashioned, and at one point, when I said 'well, in the States they do this.' He said 'then if you like them so much, why don't you go down there.'

Whoa! I was simply asking him about tocolytics to try to prevent preterm labour and get me over that 'hump' period.

In the States, you can get preventative Terbutaline pumps, you can be sent home on Nifedipene preventatively. They'll give you therapeutic levels of Ibuprofen for home use... etc... All, with the aim of preventing pre term contractions before they even start.

All I was doing was asking if any of these things were available to me, when he gave me attitiude.

He is stuck in the 60's which was when he was trained. I am proactive. I want new, current medical interventions. I am okay with being a guinea pig for Canada, as long as it has been proven to work in other countries. When I asked about the P17 injections, I was told they aren't even available in Canada. When I investigated with the help of my OB up here, we found out that they are doing trials in Edmonton, as well as, Vancouver.

So where the hell is he getting his outdate information from?

Thankfully I have a proactive OB. I have an OB who takes me seriously. I have an OB who has no problem contacting other Drs, in other countries, to see what can be done for me.

When I mentioned that I had heard of a Dr out of Mt Sinai in Toronto who was prescribing Erythromyacin for people who had previously had 2nd Tri losses, with, or without, chorioamniotitis. My OB called her and talked to her for hours, and was finally convinced to try it for me. I am her first patient of a therapeutic dose.

My MFM in Vancouver said this was something they would never consider doing.... prophylactic antibiotics...

Before they found out about my heart condition, my OB was going to give me Nifedipene at about 19 weeks, to prevent pre term contractions. Now, she believes the use of it will kill me, so its off the table.

BUT, my MFM in Vancouver, he said no Dr in Canada will prescribe prophylactic tocolytics (which is one of the off lable uses of Nifedipene).

My MFM in Vancouver tried to make me do speculum exams the day after placing my Sharodkur. My MFM in Vancouver said he was so happy I wasn't asking for preventative antibiotics anymore, when he saw me at 13.5 weeks into this pregnancy (and 5 weeks since starting the Erythro). My MFM in Vancouver said there was no need for me to be on blood thinners, despite the fact that the 2 pregnancies I have had recently, since taking them, have been healthy viable pregnancies. My other ones, pre blood thinners, all died between 11-13 weeks.

When I saw this MFM in September, right after Devon died... I knew, if I left it up to him, any future baby of mine wouldn't have a shot. They would die if left in his hands.

This is why I am trying to avoid Vancouver as much as possible. My OB up here, she is willing to prescribe tocolytics the instant I get a possible contraction. Anything basically, to get me over my danger threshold.

In Vancouver, I have to be in regular labour, be 24 weeks, and have no sign of infection, before they will administer a tocolytic.

My OB is putting me on hospital bedrest for observation at 21+4. In Vancouver, they said they would never preventatively place me on bedrest.

She will be administering IV antibiotics once daily while I am on hospital bedrest. In Vancouver, they won't give antibiotics until a culture comes back positive.

She won't do internals on me, of any sort. All cervical exams will be done by external scan. In Vancouver, they insist on internal digital exams, internal speculums, and internal scans.

If I get to Vancouver before I am viable, I don't think I have a shot in hell. My best chance of getting this baby safely here, is to get to 25 weeks, at least, up here, before letting Vancouver step in at all.

I realized after seeing my MFM in September, that they can't be the people to look after me. I needed someone I could trust, someone who was modern, someone who was proactive, someone who didn't mind conversing with other Drs... Someone who was working with me.

Thankfully, my OB is that woman. I have been seeing her since 2007. We have a great raport. She is modern. She wants to help me.

You need to find someone like I have. I would have thought that being in the greater New York area, you would have had access to someone knowledgable.

Have you ever heard of a Dr George Davis in New Jersey? I don't know who far away that is for you (keeping in mind, my OB is one hour South of me, and my MFM is 8 hours South of me). He has been a pioneer in the Trans Abdominal Cerclage, but I know he performs other cerclages as well. He is also an MFM who seems to be very proactive. I actually talked to him while researching which cerclage I'd want with a future pregnancy. I ended up with the Sharodkur...

But I don't know... If you haven't heard of him, he might be worth a call. Maybe if you don't see him, he can recommend someone who isn't such a dolt, closer to you.



 
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Old Mar 5th, 2011, 00:48 AM   1058
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Quote:
Originally Posted by Sherri81 View Post
Is there no one else you can see??

You need to find someone like I have. I would have thought that being in the greater New York area, you would have had access to someone knowledgable.

Have you ever heard of a Dr George Davis in New Jersey? I don't know who far away that is for you (keeping in mind, my OB is one hour South of me, and my MFM is 8 hours South of me). He has been a pioneer in the Trans Abdominal Cerclage, but I know he performs other cerclages as well. He is also an MFM who seems to be very proactive. I actually talked to him while researching which cerclage I'd want with a future pregnancy. I ended up with the Sharodkur...

But I don't know... If you haven't heard of him, he might be worth a call. Maybe if you don't see him, he can recommend someone who isn't such a dolt, closer to you.
No. I'm in Central New York, NOT the city. Which means we get what comes here. I'm 5 hours away from the City and New Jersey is around 6 or 7 hours away from me depending on where abouts he's located.

The only specialised High Risk hospital is the one that was negligent. In fact, the night I was found to be 3cm dialated, the resident Dr. gave me two choices...One, to stay at the hospital with my legs up in the air with hopes Jackson would go back down (she refused to offer me preventative meds to stop preterm delivery until the Dr. came in the morning) OR I could go home. She said nothing could be done and nicu wouldn't step in at 22wks. So given the dark options I went home....that's when she said, "well, are you sure?? You could birth in the bathtub". THIS coming from a well known hospital for babies here in our area.


As far as perinatologists, they are THE ONLY high risk for fourteen counties.

It's awful.

I DO feel comfortable and like this perinatologist, I'm just not sure about the plan she has set forth. I think the fact that she's planning to measure the cervix regularly has me feeling more comfortable...it's the weeks she's planning to start progesterone and add a cerclage that I'm concerned about. I'm just not sure its aggressive enough.



 
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Old Mar 5th, 2011, 12:47 PM   1059
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Hi, Has anyone encountered infection with their TVC? I had my stitch put in on Monday and have already developed an infection x



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Old Mar 5th, 2011, 13:14 PM   1060
nkbapbt
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KrystalDawn - No I haven't but two doctors did tell us that most infections or complications from the stitch should or likely happen in the first 4 days. I know this doesn't help much, but it's not uncommon either.



 
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