She is so beautiful. My son was born with Cadual Regression Syndrome with over lapping V.A.C.T.R.E.L. factors syndrome. He was born early (30 weeks) and passed away 2 hours after birth. She looks much better on the outside than my son did (lower extremities) and my son had all 6 of the V.A.C.T.R.E.L. factors syndrome and almost the most severe of each. I am so happy to hear she is alive and doing good. My heart goes out to you for having to be without her but she sounds like she is doing good. Thank you for posting, I look for any thing that is similar to my son and to know others can survive this disorder is a hope I hold on to.
Oh my gosh she is so beautiful! Congratulations! They thought my son had VACTERL too but it turned out to be something called Fanconi Anemia. Its time for you to relax and enjoy your daughter because finding all these problems is a stressful time! But it looks like she is doing well and she is perfect.
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