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Old Apr 13th, 2011, 20:50 PM   #11
andella95
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She really is beautiful!


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Old Apr 14th, 2011, 01:56 AM   #12
fluffyblue
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She is beautiful hunni, well done hope she continues to be a little fighter xxx


 
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Old Apr 14th, 2011, 11:15 AM   #13
beatrix
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She's beautiful!


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Old Apr 14th, 2011, 11:26 AM   #14
doddy0402
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she is lovely!!x


 
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Old Apr 14th, 2011, 21:07 PM   #15
Styling
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Quote:
Originally Posted by evasmum View Post
Congratulations, Kayla is beautiful and perfect, I hope she is home with you soon.

Do you know that there is a special needs support board on this forum, I am sure there are lots of women on there whose children spent time in NICU.

I did not know that, I have not seen it but I will fo find it now..

Kayla is doing good, she will ahve heart surgery Tuesday, because the aorta is to small/narrowed. With all that is going on, I would say she is doing great and really amazed with her


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Old Apr 15th, 2011, 05:48 AM   #16
Raggydoll
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Congratulations, Kayla is beautiful. I hope her surgery goes well Tuesday.


 
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Old Apr 16th, 2011, 03:43 AM   #17
nadinek
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congrats, she is so beautiful and perfect. hope everything goes well. xxx


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Old Apr 17th, 2011, 20:06 PM   #18
Styling
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Thank everyone


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Old Apr 20th, 2011, 18:58 PM   #19
srm0421
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She is so beautiful. My son was born with Cadual Regression Syndrome with over lapping V.A.C.T.R.E.L. factors syndrome. He was born early (30 weeks) and passed away 2 hours after birth. She looks much better on the outside than my son did (lower extremities) and my son had all 6 of the V.A.C.T.R.E.L. factors syndrome and almost the most severe of each. I am so happy to hear she is alive and doing good. My heart goes out to you for having to be without her but she sounds like she is doing good. Thank you for posting, I look for any thing that is similar to my son and to know others can survive this disorder is a hope I hold on to.


 
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Old Apr 24th, 2011, 16:39 PM   #20
tassiemum
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Oh my gosh she is so beautiful! Congratulations! They thought my son had VACTERL too but it turned out to be something called Fanconi Anemia. Its time for you to relax and enjoy your daughter because finding all these problems is a stressful time! But it looks like she is doing well and she is perfect.


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