Kayla is here, born with vacterl syndrome - Page 2

andella95 · Apr 13th, 2011, 20:50 PM

She really is beautiful!

fluffyblue · Apr 14th, 2011, 01:56 AM

She is beautiful hunni, well done hope she continues to be a little fighter xxx

beatrix · Apr 14th, 2011, 11:15 AM

She's beautiful!

doddy0402 · Apr 14th, 2011, 11:26 AM

she is lovely!!x

Styling · Apr 14th, 2011, 21:07 PM

Quote:

Originally Posted by evasmum

Congratulations, Kayla is beautiful and perfect, I hope she is home with you soon.

Do you know that there is a special needs support board on this forum, I am sure there are lots of women on there whose children spent time in NICU.

I did not know that, I have not seen it but I will fo find it now..

Kayla is doing good, she will ahve heart surgery Tuesday, because the aorta is to small/narrowed. With all that is going on, I would say she is doing great and really amazed with her

Raggydoll · Apr 15th, 2011, 05:48 AM

Congratulations, Kayla is beautiful. I hope her surgery goes well Tuesday.

nadinek · Apr 16th, 2011, 03:43 AM

congrats, she is so beautiful and perfect. hope everything goes well. xxx

Styling · Apr 17th, 2011, 20:06 PM

Thank everyone

srm0421 · Apr 20th, 2011, 18:58 PM

She is so beautiful. My son was born with Cadual Regression Syndrome with over lapping V.A.C.T.R.E.L. factors syndrome. He was born early (30 weeks) and passed away 2 hours after birth. She looks much better on the outside than my son did (lower extremities) and my son had all 6 of the V.A.C.T.R.E.L. factors syndrome and almost the most severe of each. I am so happy to hear she is alive and doing good. My heart goes out to you for having to be without her but she sounds like she is doing good. Thank you for posting, I look for any thing that is similar to my son and to know others can survive this disorder is a hope I hold on to.

tassiemum · Apr 24th, 2011, 16:39 PM

Oh my gosh she is so beautiful! Congratulations! They thought my son had VACTERL too but it turned out to be something called Fanconi Anemia. Its time for you to relax and enjoy your daughter because finding all these problems is a stressful time! But it looks like she is doing well and she is perfect.

Apr 13th, 2011, 20:50 PM	#11
andella95 Mum (Mom) Chat Happy BnB Member Join Date: Dec 2009 Posts: 2,023	She really is beautiful!

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Apr 14th, 2011, 01:56 AM	#12
fluffyblue On a break (TTC) BnB Addict Join Date: May 2009 Location: Birmingham UK Posts: 2,726	She is beautiful hunni, well done hope she continues to be a little fighter xxx

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Apr 14th, 2011, 11:15 AM	#13
beatrix Pregnant (Expecting) Active BnB Member Join Date: Feb 2011 Posts: 78	She's beautiful!

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Apr 14th, 2011, 11:26 AM	#14
doddy0402 Other Chat Happy BnB Member Join Date: Jul 2009 Location: north west Posts: 1,186	she is lovely!!x

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Apr 15th, 2011, 05:48 AM	#16
Raggydoll Mum (Mom) BnB Addict Join Date: Mar 2009 Location: Somewhere only I know Posts: 2,656	Congratulations, Kayla is beautiful. I hope her surgery goes well Tuesday.

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Apr 16th, 2011, 03:43 AM	#17
nadinek Mum (Mom) Active BnB Member Join Date: May 2010 Posts: 374	congrats, she is so beautiful and perfect. hope everything goes well. xxx

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Apr 17th, 2011, 20:06 PM	#18
Styling Pregnant (Expecting) Active BnB Member Join Date: Feb 2011 Posts: 92	Thank everyone

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Apr 20th, 2011, 18:58 PM	#19
srm0421 Pregnant (Expecting) BnB Addict Join Date: Sep 2008 Location: Ontario,CA Posts: 4,715	She is so beautiful. My son was born with Cadual Regression Syndrome with over lapping V.A.C.T.R.E.L. factors syndrome. He was born early (30 weeks) and passed away 2 hours after birth. She looks much better on the outside than my son did (lower extremities) and my son had all 6 of the V.A.C.T.R.E.L. factors syndrome and almost the most severe of each. I am so happy to hear she is alive and doing good. My heart goes out to you for having to be without her but she sounds like she is doing good. Thank you for posting, I look for any thing that is similar to my son and to know others can survive this disorder is a hope I hold on to.

Status: Offline

Apr 24th, 2011, 16:39 PM	#20
tassiemum Pregnant (Expecting) Active BnB Member Join Date: Apr 2011 Posts: 33	Oh my gosh she is so beautiful! Congratulations! They thought my son had VACTERL too but it turned out to be something called Fanconi Anemia. Its time for you to relax and enjoy your daughter because finding all these problems is a stressful time! But it looks like she is doing well and she is perfect.

Status: Offline

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