Hypoplastic heart syndrome

tinks80 · Jan 9th, 2012, 02:00 AM

My daughter has been diagnose with unilateral ventricle with single flow output, meaning the heart only has one output to function the blood and oxygen to the body and lungs instead of two, as a result the blood and oxygen are getting mixed up in her heart.

I've been told this sounds like hypoplastic heart syndrome I am wondering if there are any mums out ther whose baby has had this and what the outcOme was?

Any info or input would be appreciated thanks heaps

going_crazy · Jan 9th, 2012, 05:46 AM

Hi hun..... will pm you in a min xx

mommyof5 · Jan 9th, 2012, 18:30 PM

I had a baby with vsd and asd. Later they found out it was much more complicated than a vsd. Through that I have met other moms with HPLHS, your baby will need surgery and or a new heart.

Lottie86 · Jan 9th, 2012, 20:33 PM

One of my partners friends has a son with HPLHS and he had to have surgery as a baby and will need another op or two in the future but he is a perfectly healthy and active toddler.

I hope everything turns out as well as possible for you

twinmomma · Feb 24th, 2012, 10:14 AM

Hello Tinks. I'm 31 weeks pregnant with twins, one boy one girl. My baby boy has HPLHS. It was a huge blow finding this out and making our decsions. I found out the same day I learned I needed a cerclage because my cervix was short and week! Talk about a bad day heh. Anyway, we've decided if he is otherwise healthy and strong when he is born that we are going to go ahead and do the 3 surgeries. It is such a stressful diagnosis! We live in a state where the surgeries are not availiable so to add to the stress my baby will be 12 hours away from home. I'm not sure if I'll be able to take my little girl with me because she most likely will be in the NICU for depending on when they are born.

Have you decided what you will do? We were given the choice of comfort care which we thought we'd do at first but decided not to if he is otherwise in fair health. Have you found any good support websites for HPLHS? Hope you are well.

Jan 9th, 2012, 02:00 AM	#1
tinks80 Pregnant (Expecting) Active BnB Member Join Date: Jul 2011 Posts: 788	Hypoplastic heart syndrome My daughter has been diagnose with unilateral ventricle with single flow output, meaning the heart only has one output to function the blood and oxygen to the body and lungs instead of two, as a result the blood and oxygen are getting mixed up in her heart. I've been told this sounds like hypoplastic heart syndrome I am wondering if there are any mums out ther whose baby has had this and what the outcOme was? Any info or input would be appreciated thanks heaps

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Jan 9th, 2012, 05:46 AM	#2
going_crazy Mum (Mom) BnB Addict Join Date: Jan 2010 Posts: 2,865	Hi hun..... will pm you in a min xx

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Jan 9th, 2012, 18:30 PM	#3
mommyof5 Pregnant (Expecting) Chat Happy BnB Member Join Date: Oct 2011 Posts: 1,404	I had a baby with vsd and asd. Later they found out it was much more complicated than a vsd. Through that I have met other moms with HPLHS, your baby will need surgery and or a new heart.

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Jan 9th, 2012, 20:33 PM	#4
Lottie86 Pregnant (Expecting) BnB Addict Join Date: Jan 2009 Location: Aberdeenshire (originally from South of England) Posts: 2,730	One of my partners friends has a son with HPLHS and he had to have surgery as a baby and will need another op or two in the future but he is a perfectly healthy and active toddler. I hope everything turns out as well as possible for you

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Feb 24th, 2012, 10:14 AM	#5
twinmomma Pregnant (Expecting) Active BnB Member Join Date: Nov 2011 Location: Idaho Posts: 23	Hello Tinks. I'm 31 weeks pregnant with twins, one boy one girl. My baby boy has HPLHS. It was a huge blow finding this out and making our decsions. I found out the same day I learned I needed a cerclage because my cervix was short and week! Talk about a bad day heh. Anyway, we've decided if he is otherwise healthy and strong when he is born that we are going to go ahead and do the 3 surgeries. It is such a stressful diagnosis! We live in a state where the surgeries are not availiable so to add to the stress my baby will be 12 hours away from home. I'm not sure if I'll be able to take my little girl with me because she most likely will be in the NICU for depending on when they are born. Have you decided what you will do? We were given the choice of comfort care which we thought we'd do at first but decided not to if he is otherwise in fair health. Have you found any good support websites for HPLHS? Hope you are well.

Status: Offline

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