My friend found out she was pregnant at the same time they told her she has a tumor on her pituitary gland. It's been causing her to lactate even a year after she weaned her daughter.

She's looking for a different ob since her office hasn't been supportive. They keep pressuring her to end it! I've researched it and what I've been able to find says that it's a manageable condition during pregnancy...so I'm not sure why they're acting this way...except that the clinic she goes to has very bad reviews.

Has anyone heard of this or dealt with it personally? Any advice I can share with her would be greatly appreciated.

Omg! I've got exactly the same condition (macro-prolactinoma, which is a prolactin secreting pituitary tumour of over 10mm in diameter) and am now 34 weeks pregnant and have had no problems at all.

They warned me I may have increased headaches, but I haven't found that to be the case for me. I'm supposed to have a visual fields test once every trimester but haven't, because we moved house half way through my pregnancy and I wasn't referred to my new consultant in time to have one 2nd trimester.

I was always told it's a very manageable condition during pregnancy (actually falling pregnant whilst on the medication was the tough part for me), and while I've been monitored and will continue to be monitored while I breast-feed I've certainly had no advice to say I should end the pregnancy. Very occasionally a prolactinoma can grow more quickly than normal during pregnancy, but it's something they look out for during and after baby is born (hence the visual fields tests) and post-birth I guess they'll manage it with the same medication you're on pre-pregnancy. I'd suggest your friend goes to a different doctor! Feel free to IM me if you or your friend have any specific questions xx

Thank you so much for your reply! That'll make her feel a lot better. Do you happen to know of any informative websites on it?

It's sad...in the United States when you're on Medicaid (government healthcare for low-income)...you often get stuck going to clinics with very poor quality doctors. Not all the clinics that accept Medicaid are like this...but it's hard to find a good one. I've referred her to my midwife clinic...they are very good. And I found 2 endocrinology clinics that take Medicaid...so I think once she gets set up things will be going well for her.

Just thought I'd say my mother in law fell pregnant with my now husband while she had a pituitary tumor, both of them were completely healthy and fine and 20 years later mil says she is still lactating.

That's so reassuring! Thank you for your response. I can't wait to tell her such good news.