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Old Jan 23rd, 2017, 18:02 PM   1
Braven05
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Anyone have any experience with Tourette's?


I've had a strong feeling for the past year or so that my daughter, who turned 5 in August, may have Tourette's Syndrome. It was a lot more worrisome and scary for me when I first came to realization. Now, I know it's not the end of the world and we can work through it, but I also want to have some support.

I mentioned the tics that she has when they first appeared last winter and the ped pretty much brushed me off. I've mentioned them again, at least twice, still being told that tics are normal for children of this age.

She's been cycling through different tics since last January. Now she has one that is affecting her in school. It's a very loud cough and I'm fairly certain it's not due to allergies or cold, because she crosses her arms over her chest and does the cough repeatedly.

She's also on allergy meds every night and I tried giving her mucinex to see if that would clear up what she said she was feeling "stuck" in her chest.

Today she told me that at school her teacher made her move off of the rug with the rest of the kids and go sit in a chair towards the back of the classroom because of her coughing. I'm not upset with the teacher because I know that the coughing is disruptive. I'm just upset because she told me some other kids laughed at her and it made her feel bad.

She also has had increasingly awful behavior at home and I don't know if this is a part of that. She doesn't listen well, she does things she's not supposed to, she throws big temper tantrums when she doesn't get her way. All stuff I thought would start to improve once she matured some. It's gotten worse. She tells me she can't control herself. But she's great in school, no complaints from her teacher at all.

I'm just frustrated that the ped isn't taking me seriously and I don't know what we do to potentially get her diagnosed and what the treatment might be.

Anyone have any experience with this?



 
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Old Jan 23rd, 2017, 21:47 PM   2
SarahBear
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How direct have you been with the pediatrician? Have you tried asking for an assessment? I would just state that you'd like an assessment and they'll ask you questions, but should be able to tell you how and where to get an assessment. If they try to brush you off, just be a broken record "I want an assessment. How and where do I get her assessed?"



 
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Old Jan 23rd, 2017, 21:54 PM   3
Parkep
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Im sorry I dont have experience with it. But I do know that at that age my girls went thru a lot of difficulty with listening, temper tantrums etc. It tends to calm down, we stuck with our rules and time outs. It took a bit but they finally realized it wasnt going to work. I think they start to mimic other kids behaviour and see what they can get away with.

As far as your ped the PP is right and if that doesnt work. I would get a second opinion. Put your foot down, its disrupting her school and effecting her.
Also I would speak with her teacher, let her know what you think is going on. She may have some insight as well, and maybe where you can get some help.



 
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Old Jan 24th, 2017, 01:29 AM   4
pinkstarbinks
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Agree with other posters, speaking to the school. Our middle one has tics too, it's been over 12 months and is both vocal and physical so I feel your concern



 
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Old Jan 24th, 2017, 05:48 AM   5
sabby52
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My son has tics, they seem to change over time, he has a vocal tic which did really annoy one of his teachers, she was honest with me about it being annoying and I totally agreed with her but we both understood he couldnt help it so he never got punished for it, if it got bad they had a little signal and when she used the signal Dec knew he was doing it and would stop, kids with tics arent aware they are doing them so being punished for them is unacceptable. My son also has physical tics. We are on the waiting list for ADHD and Autism, if you feel she need an assessment then you really need to push it, we first noticed my sons quirks and behaviour when he was 18 months old, he was assessed at a behavioural clinic but nothing became of it, now at 9 years old we are on the long road of assessments I would definitely look into it sooner rather than later.



 
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Old Jan 24th, 2017, 06:53 AM   6
Braven05
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Thanks for your thoughts and encouragement ladies. I'm going to make an appointment soon and will push to have an assessmen/see a neurologist. I feel strongly it's at least a tic disorder. It's been more vocal tics than physical ones but there have been physical ones. I've been keeping good notes each time one occurs.

As for her teacher, I did mention the tics when school started but maybe we need to talk further about it and make a plan. I don't think her teacher was punishing her necessarily but she was isolating her because it was distracting to the other kids, which I get. I just don't want her to feel bad.

The behavior is just, sometimes I feel so upset about it. We are consistent with rules/consequences. I've tried incentives, punishments, nothing helps. She is so smart and loving and funny but lately she's just temper tantrum after temper tantrum and pushing buttons constantly. It's so frustrating.



 
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Old Jan 24th, 2017, 09:53 AM   7
Parkep
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I think that's a great plan

As far as behaviour have you sat down and asked her if something is bothering her? Tell her how her behaviour has changed so much etc and you are wondering if anything is bothering her at home or at school? Sometimes they have things going on that they dont talk about, bully, etc.



 
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Old Jan 24th, 2017, 11:45 AM   8
Braven05
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I have...she either just tells me "I don't know" or tells me that she wants to be good but doesn't know how. She behaves just fine in school so I'm at a loss with her sometimes. She's very emotional and doesn't like to be told no.



 
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