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Old Mar 31st, 2010, 14:28 PM   1
Round2
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Recent Miscarriage -Factor V Leiden Blood Clotting Dissorder


I recently suffered a miscarriage. I was 12 weeks along and found out at the u/s that the baby had died at 8 weeks. I have a healthy 3 yr old at home and had no complications with her. After her delivery I participated in a random study which resulted in me testing postive for the Factor V Leiden Blood Disorder. I'm only heterozygous and have no history of clots therefore I was not put on any blood thinners for my second pregnancy. I've been reading alot about studies that indicate a direct relation between this mutation and miscarriages. My question is, are there any other women out there who have this mutation and have experienced a loss? If so, did your doctor recommend doing anything differently for your next pregnancy? It seems my doctor won't do anything until I've had recurrent miscarriages. I just want to do everything I can to avoid going through this experience again.



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Old Apr 1st, 2010, 10:32 AM   2
Beanbabe
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I not sure about the disorder you are talking about but yesterday I was at hospital apt and the doc put me on low dose aspirin as soon as I get a bfp. this is only precautionery cos I've had two mc in a row. Got blood clotting tests done yesterday and he said if they showed anything that he would give me injections should I get pregnant again. Im not sure if this helps you but this is really all I know.



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Old Apr 1st, 2010, 14:05 PM   3
Vickieh1981
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I'm really unsure of this tbh. My dr told me that if I had this I would not have been able to carry any children to term - clearly he was wrong though as you have.

I am being tested for Hughes syndrome because I had an early miscarrige and then lost Isabella in the 2nd trimester. I think it's similar in the sense it's a blood clotting disorder. I have a prescription for 75 mg of aspirin next time I am pregnant and maybe clexane injections.

I am guessing it would possibly be similar treatment for this. Sorry i cant help more though.



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Old Apr 1st, 2010, 14:34 PM   4
Smiler13
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Hi ladies, sorry for your losses.

The various clotting issues are discussed in a good book on miscarriage by Prof Lesley Regan. I understand from other ladies on this site that the "standard" treatment is low-dose aspirin and heparin (Clexane).

It is not true that people with clotting issues cannot carry a baby to term.

As well as the "thrombophilia screen" blood tests for specific clotting problems, one NHS clinic here in the UK (St Mary's in London) does a special "thromboelastogram" test with the blood, which checks how it clots. The theory being that some clotting problems cannot yet be identified by tests, so they look instead at what the blood actually does.



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Old Apr 1st, 2010, 14:55 PM   5
BABY TALES
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My mother,aunt & cousin all have Leiden 5.My mum had a miscarriage but went on to have me & my brother.My aunt has two children as well,but one of her daughters had a healthy son,but has since had about 6 miscarriages-belived to be due to the factor 5.



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Old Apr 2nd, 2010, 06:36 AM   6
rachlouise25
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hi seen your post and thought i would reply

i have factor 5 leiden blood clotting dissorder ,,

i lost my first born son stillborn at 32 weeks i didnt know i had the blood clotting dissorder at the time but when he died the test was never carried out to see if i had a clotting dissorder

anyway i fell pregnant again and had alot of bleeding throughout resulting in a placenta abruption at 31 weeks luckily hes here and safe .....

anyway i got pregnant again and lost the baby very early in pregnancy

i found out 2 weeks after the misscarrige i was pregnant again the hospital decided to do the tests and came back i had factor 5 leiden i was asked to go in straight away i was given 40mg of daily injections 75mg of aspirin to take once a day and i have to wear stockings on my legs ,,,,,,

i think if you got the dissorder then they got to give you precautiions to protect a further pregnancy ive been on the injections tablets now for my entire pregnancy and im now 30 wks plus and ive had no problems at all so far

i hope its sorted out for you soon and hope i have been some help xxxxxxxxxxxxx



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Old Apr 6th, 2010, 07:27 AM   7
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Thanks for all the info ladies. This definately makes me question my OB - he basically just blew my condition off. I have an appointment with a hemotologist in a few weeks. Hopefully he'll take things more seriously and will be willing to give me a perscription for the next time I get pregnant.



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Old Sep 19th, 2012, 19:57 PM   8
factorvleiden
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i know this is an old thread, but i have just had my 6th miscarriage, and also have factor v leiden. i have had one successful pregnancy resulting in my nearly 4yo daughter, matilda.

i have found that doctors dont seem to take the condition very seriously.



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Old Sep 19th, 2012, 20:25 PM   9
amjon
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I've just been tested for it. The doctor said if it came back positive I would need to do aspirin and an injectable blood thinner. I lost my daughter at 27 weeks, then had a MMC, and a chemical. I think next week they should have the results. He said he was surprised they hadn't already tested for it as it's more common than some of what they DID test for.



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Old Sep 21st, 2012, 16:12 PM   10
amjon
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I just spoke to the nurse and SOMETHING they tested for came back positive, but they wouldn't tell me until I come in for an appointment. I have a feeling it may be this as most of the other tests were just repeats of what had already been done.



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