I wasn't sure where to post this. I posted it in group and discussion but got no replys so thought I would try here.
I am just wondering if anyone else knows that they are carrying a bubba who has health problems and how you are all dealing with this.
My bubba has an atresia (blockage) of the intestine and also it looks like one of her eyes will not function as the doctors can't see a lens or optical nerve. We have had loads of tests done but nobody seems to know why my baby has these problems. We are having scans every 2 weeks to monitor the growth and for the last few weeks we have had good news- no further complications. I am 30 weeks along so we have a long 10 weeks left, hoping for good news all the way. As they don't know what caused the 2 problems the doctors can't say if more issues will arise of if this is it which makes it very hard to relax.
Our baby will need to have surgery the day after she is born to fix the intestine problem but it looks like nothing will be able to be done about the eye. We have had great support from the hospital and my private gynecologist. We meet with the pediatric surgeon and team from the children's hospital on 10 th April so I guess we will find out more of what happens after she arrives then.
We are coping quite well but it is hard knowing my poor bubba will have a rough start. I haven't seen any other threads like this so I thiught I would see if anyone else is in a similar boat.
I'm not in this situation but wanted to wish you and your family all the very best with your little girl sending prayer and positivity your way! your princess will draw her strength from your unconditional love x
There is a gestation complication section on the forum so you might get more support there xxx
My son was born with issues with his penis and scrotum. It wasn't discovered until after birth, though, and he had surgeries at 14mos, 20mos & 22mos. He also had an unrelated umbilical hernia surgery at 3mos.
As I didn't know of his issues beforehand and they were not an immediate threat to him I cannot really relate. But babies are born with "imperfections" all the time and doctors are getting really good at sorting it all out.
My son's best friend was born with only one hand. They didn't find out until he was born. The other hand is just a partial palm with a partial thumb and a nubbin' of a forefinger.
And our best friends are 35wks pregnant right now. They've had several tests and were told their baby has a 1 in 25 chance of having Downs Syndrome.
I'm glad that it was discovered ahead of time for you and all the plans are laid out to get your daughter all sorted out. Good luck!
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