Reply
 
LinkBack Thread Tools Search this Thread
Old May 18th, 2012, 11:10 AM   11
Inoue
Mum (Mom)
BnB Addict
 
 
Join Date: Dec 2010
Location: Lincolnshire, UK
Posts: 2,536
I had mine done on Monday (NT was 1.2mm) ~ the midwife said the Hospital would ring "within the week" if i was high risk from blood result combined, if not then i would recieve a letter by post in 2 weeks. x

Alwayspraying - sorry for your loss hun, hope others read your post for awareness x



 
Status: Offline
 
Old May 18th, 2012, 11:45 AM   12
calista20
Pregnant (Expecting)
Active BnB Member
 
 
Join Date: Oct 2011
Location: MB, Canada
Posts: 169
It's not an issue of not wanting to worry and I honestly think since you've been through it you of all people shouldn't be judging someone's motivation.

The record of false positives is so high that they are considering taking it out of mandatory testing and some countries already have.

It's a little insensitive for you of all people to tell me that all the worrying and sleepless nights and spending the last months of my pregnancy worrying and praying about my baby were worth it.

I'm sorry for your loss and the problems that arose but your reply admonishing those that "trivialize" the test isn't any better.



 
Status: Offline
 
Old May 18th, 2012, 12:13 PM   13
MrsWaddlesan
Pregnant (Expecting)
Active BnB Member
 
Join Date: May 2012
Posts: 60
Quote:
Originally Posted by calista20 View Post
It's not an issue of not wanting to worry and I honestly think since you've been through it you of all people shouldn't be judging someone's motivation.

The record of false positives is so high that they are considering taking it out of mandatory testing and some countries already have.

It's a little insensitive for you of all people to tell me that all the worrying and sleepless nights and spending the last months of my pregnancy worrying and praying about my baby were worth it.

I'm sorry for your loss and the problems that arose but your reply admonishing those that "trivialize" the test isn't any better.
I agree. The DR i had with my last pregnancy advised me not to do the test actually. He said that he didnt agree with the test, and that 9/10 if there truly is a problem it will be noticed on the 20week U/S



 
Status: Offline
 
Old May 18th, 2012, 12:56 PM   14
ms sunshine
Mum (Mom)
Chat Happy BnB Member
 
 
Join Date: Oct 2011
Location: manchester, uk
Posts: 1,988
my friend had the blood screening and got a call the next day to say she had high risk of Downs. she had a healthy boy who didn't have Downs and was so worried about her baby for the next few months. I am choosing not to have the test. even if my baby had something wrong with it I would still want my baby so there is no point having a test that could scare me for months. my opinion anyway gl x



Status: Offline
 
Old May 18th, 2012, 15:19 PM   15
AlwaysPraying
Mum (Mom)
BnB Addict
 
 
Join Date: May 2009
Location: Canada
Posts: 4,148
My motivation was to show people the seriousness and the consequences of the test. It makes me sad and frustrated when people choose not to do this test only based in fear. Yes I get not choosing to do it for various reasons but based on fear to me is selfish. Scared or not doing the test won't change the results. For me it saved my life and gave me power and control over a situation that would have been so much worse off if I had not known.

I respect anyone who doesn't want to do this test but please understand that it can be crucial and critical for those that it does fully affect. Youve got to admit that I wished I had the ability to worry for the following four months and give birth to a healthy shabby rather than go through what I went through.

What is upsetting is when people scoff the test or say that it's unimportant or - usually always wrong - its a test and take it or not but please don't say it only causes unnecissary worry. Also here it isn't mandatory in fact we have to qualify for it. Maybe that's where I have a different opinion. I qualified because they saw something on a previous scan that worried them and the nt scan was to a give better look at what it could be. I'm not sure it should be done on everyone and I think there should be a different screening process. Something based on age or other risk factors.

And a false positive isn't the proper term. It's a screen to see the risk. The risk can go from one in a million to one in two and everywhere In between. If its a one in two first and you have a healthy baby that doesn't mean it was a false positive it means that your baby presented with issues that half of affected kids and half of unaffected kids present with. And half of those will be healthy. That does not mean it was a false positive.

I didn't mean to offend I just am frustrated by people thinking that this test is more hassle than its worth and that's my bottom line. And to each their own.



 
Status: Offline
 
Old May 18th, 2012, 18:18 PM   16
lottie77
Mum (Mom)
Active BnB Member
 
 
Join Date: May 2010
Location: Paisley, Scotland
Posts: 397
Hi Alwayspraying I totaly get what you are saying, these false positive posts also frustrate me as they are not fasle positives, these tests are for screening not for 100% answers so should be regarded as such.

If you are given a 1 in 28 chance of having a baby with Down Syndrome for example (as I was) and your baby does not have Down then you are 1 of the 27 who will not have a DS baby and if like me your baby does have Down Syndrome then you are the 1 !!! simple as that where is the false positive ??? its a percentage of chance , even when ladies are given a 1 in6000 chance there still has to be that 1 who has and 5999 who dont .

the only way of being 100 percent sure in through invasive testing , now if you got that done and it said yes but it turned out it was really a no then that would be a false positive !!

Its all personal opinion at the end of the day, some people might have more experience and everyone is allowed their say about their feelings , their experiences etc without being told " you should know better" is this not the point of the forum? Its about discussion, should never be personal



 
Status: Offline
 
Old May 18th, 2012, 18:49 PM   17
linzay55
Mum (Mom)
Active BnB Member
 
Join Date: Sep 2011
Posts: 304
I'm not getting the test this time around because my insurance doesn't cover it and it does give a higher false positive for higher risk. My son came back with a higher risk of down syndrome, he didn't have it. If I'm not going to have a abortion no matter what the test result I don't see why you would have it. Whatever happens happens.



 
Status: Offline
 
Old May 18th, 2012, 18:59 PM   18
Viperbunny
Pregnant (Expecting)
Active BnB Member
 
Join Date: Aug 2011
Posts: 871
I had an AFP, it was normal...my baby was born with Tisomy 18 and lived 6 days. You never know. I know a lot of people say that it is not worth knowing or risking a healthy pregnancy. I understand this point of view, it's why I didn't have an anmio. At 25 years old, I wasn't at risk. I had no risk factors and we didn't know anything was wrong for a while. At 20 weeks, she was small, but they said she was fine. At the 26 week level two scan she was a few weeks behind on growth. They didn't say there was anything else wrong. I had her at 29 weeks 1 day by emergency c section. She had birth defects on her hands, her feet, and her heart.

I say this not to judge or to scare, just to offer a different perspective. I am pregnant again (8 months after the loss of my daughter I am 9 weeks 1 day pregnant). This time, knowing I am at risk, I am more likely to test. So far things look good, the baby measure right for gestational age. Last time I told the doctor they had to be off on their dating. I have an NT scan and blood work scheduled for 13 weeks. My hubby and I have to decide if we want an anmio or CVS. Part of me says no, but after such a devastating loss, knowing what it's like to leave the hospital without a baby, makes me think testing is worth it. It won't change things, I would have the baby, but I would know. Losing a healthy baby would kill me, but not knowing is very hard too.

A friend who lost a baby a month after me, knew from five months pregnant that the baby had a major heart defect and would only live a few days at most. She lived 2.5 days. My friend is also pregnant again and has chosen not to test because for her, knowing was hell.

Again, I don't want to scare or tell anyone what to do, I just want to offer a perspective. If you need to know, then you should test. If you don't want to know, if you plan to have the baby and it would be too difficult, then don't find out. In then end each person has to decide what is right for herself.



 
Status: Offline
 

SEO by vBSEO