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Old Apr 11th, 2017, 13:05 PM   1
Calcifer
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Anyone here on prednisone and progesterone and are you tapering?


Hi i'm looking for anyone who may be on low dose steroids and progesterone to support pregnancy? I'm tapering the prednisone from today, from 5mg to 2.5mg to then 0. I'm finding it so hard, psychologically, in case it's in fact sustaining the pregnancy. My OB says as such a low dose, it's not... anyone?



 
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Old Apr 11th, 2017, 21:46 PM   2
Leilani
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That is a very low dose! I'm on 25mg, which is still considered relatively low, by OB said over 40mg is starting to get up there, but plenty of women take a higher dose for a number of reasons throughout their pregnancies. I will be on prednisone for as long as I'm pregnant.

The progesterone could possibly sustain a non-viable pregnancy, but not the prednisone. I understand your trepidation.



 
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Old Apr 12th, 2017, 12:19 PM   3
Calcifer
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Quote:
Originally Posted by Leilani View Post
That is a very low dose! I'm on 25mg, which is still considered relatively low, by OB said over 40mg is starting to get up there, but plenty of women take a higher dose for a number of reasons throughout their pregnancies. I will be on prednisone for as long as I'm pregnant.

The progesterone could possibly sustain a non-viable pregnancy, but not the prednisone. I understand your trepidation.
It's lovely to hear from someone else taking this medication!! Yes, I know it's low... it's supposed to be a kind of a preventative dose to dampen my antibodies for auto-immunity but there's no real evidence it really works for my exact disease. I think it was psychological to be honest. Still it's never easy to stop something that is part of the mix, especially as we have a heartbeat as of Friday...



 
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Old Apr 12th, 2017, 12:35 PM   4
DanielleTTC
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I'm on prednisone 40mg , I'll be on these for the rest of pregnancy and I'm also ustrogest perssaries three time a day. I have to inject clexane everyday too....

With the prednisone I've felt really hurry the first two weeks, it's not the first time I've been on these so far that the only thing I've noticed..



 
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Old Apr 17th, 2017, 13:11 PM   5
Lana Farrell
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Hi I understand your worry. I've felt the same too. I've been taking 20mg prednisone daily, two cyclogest daily, and clexane. I'm meant to stop all of these at 12 weeks (I'm 7 now)
I don't get how can just suddenly stop these? I'm a little scared because I have lots of autoimmune issues and worrying without the steroids I'll have bad flare ups. I know once you're past 12weeks the placenta would have taken over so don't worry about stopping the progesterone. With steroids I think it depends on what you're actually taking them for as some conditions left untreated can be a threat to a fetus if our bodies/immune systems attack them instead of protecting. This is what I'm praying doesn't happen to me.



 
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Old Apr 17th, 2017, 15:13 PM   6
DanielleTTC
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Quote:
Originally Posted by Lana Farrell View Post
Hi I understand your worry. I've felt the same too. I've been taking 20mg prednisone daily, two cyclogest daily, and clexane. I'm meant to stop all of these at 12 weeks (I'm 7 now)
I don't get how can just suddenly stop these? I'm a little scared because I have lots of autoimmune issues and worrying without the steroids I'll have bad flare ups. I know once you're past 12weeks the placenta would have taken over so don't worry about stopping the progesterone. With steroids I think it depends on what you're actually taking them for as some conditions left untreated can be a threat to a fetus if our bodies/immune systems attack them instead of protecting. This is what I'm praying doesn't happen to me.
Hey, so we have been told to slowly cut the prednisone down so for three days take 5 mg less then the next three decrease by 5 mg and slowly ween off them .. how are you feeling taking the 20mg?



 
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Old Apr 21st, 2017, 08:09 AM   7
Lana Farrell
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Hi Danielle, I felt great the first few weeks (apart from ohss) but for the last two weeks I've been really sick with flare ups of arthritis and tightening in my ribs that wakes me 2am every morning. I hate to imagine if I wasn't on any steroids at all! My clinic just said stop taking them at 12 weeks. I wonder why they haven't suggested the weaning



 
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Old Apr 21st, 2017, 13:29 PM   8
DanielleTTC
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It's really bad just to stop it can cause more problems than needed.



 
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Old Apr 21st, 2017, 14:01 PM   9
ttc126
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I'm tapering my progesterone after being told to quit cold turkey. It's very hard psychologically for me too!

About your steroids...From doing a lot of research, immune issues are normally resolved by the end of first tri. I have a friend with a very dangerous blood antibody that can cause fetal hydrops. She gets IVIG first 10 weeks only because after that your immune system doesn't cause issues in the same way. She has to take steps later because her antibody can cross the placenta but that's a different issue. I think you'll be ok especially as you are on a low dose and it sounds prophylactic and not like it's pinpointed to a specific immune disorder.



 
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Old Apr 22nd, 2017, 12:16 PM   10
Lana Farrell
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Thanks ladies. I've read about that too, the immune issues calming down after first trimester. I think what is read is about 75% of ladies. I'm under investigation at the moment with suspected AS/lupus, but already have rheumatoid factor. Really hoping it's neither really! I may cut down to 15mg a day for a few days at 11 weeks pregnant and taper them out. Thanks for the recommendation.



 
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