Anyone here on prednisone and progesterone and are you tapering?

Calcifer · Apr 11th, 2017, 13:05 PM

Hi i'm looking for anyone who may be on low dose steroids and progesterone to support pregnancy? I'm tapering the prednisone from today, from 5mg to 2.5mg to then 0. I'm finding it so hard, psychologically, in case it's in fact sustaining the pregnancy. My OB says as such a low dose, it's not... anyone?

Leilani · Apr 11th, 2017, 21:46 PM

That is a very low dose! I'm on 25mg, which is still considered relatively low, by OB said over 40mg is starting to get up there, but plenty of women take a higher dose for a number of reasons throughout their pregnancies. I will be on prednisone for as long as I'm pregnant.

The progesterone could possibly sustain a non-viable pregnancy, but not the prednisone. I understand your trepidation.

Calcifer · Apr 12th, 2017, 12:19 PM

Quote:

Originally Posted by Leilani

That is a very low dose! I'm on 25mg, which is still considered relatively low, by OB said over 40mg is starting to get up there, but plenty of women take a higher dose for a number of reasons throughout their pregnancies. I will be on prednisone for as long as I'm pregnant.

The progesterone could possibly sustain a non-viable pregnancy, but not the prednisone. I understand your trepidation.

It's lovely to hear from someone else taking this medication!! Yes, I know it's low... it's supposed to be a kind of a preventative dose to dampen my antibodies for auto-immunity but there's no real evidence it really works for my exact disease. I think it was psychological to be honest. Still it's never easy to stop something that is part of the mix, especially as we have a heartbeat as of Friday...

DanielleTTC · Apr 12th, 2017, 12:35 PM

I'm on prednisone 40mg , I'll be on these for the rest of pregnancy and I'm also ustrogest perssaries three time a day. I have to inject clexane everyday too....

With the prednisone I've felt really hurry the first two weeks, it's not the first time I've been on these so far that the only thing I've noticed..

Lana Farrell · Apr 17th, 2017, 13:11 PM

Hi I understand your worry. I've felt the same too. I've been taking 20mg prednisone daily, two cyclogest daily, and clexane. I'm meant to stop all of these at 12 weeks (I'm 7 now)
I don't get how can just suddenly stop these? I'm a little scared because I have lots of autoimmune issues and worrying without the steroids I'll have bad flare ups. I know once you're past 12weeks the placenta would have taken over so don't worry about stopping the progesterone. With steroids I think it depends on what you're actually taking them for as some conditions left untreated can be a threat to a fetus if our bodies/immune systems attack them instead of protecting. This is what I'm praying doesn't happen to me.

DanielleTTC · Apr 17th, 2017, 15:13 PM

Quote:

Originally Posted by Lana Farrell

Hi I understand your worry. I've felt the same too. I've been taking 20mg prednisone daily, two cyclogest daily, and clexane. I'm meant to stop all of these at 12 weeks (I'm 7 now)
I don't get how can just suddenly stop these? I'm a little scared because I have lots of autoimmune issues and worrying without the steroids I'll have bad flare ups. I know once you're past 12weeks the placenta would have taken over so don't worry about stopping the progesterone. With steroids I think it depends on what you're actually taking them for as some conditions left untreated can be a threat to a fetus if our bodies/immune systems attack them instead of protecting. This is what I'm praying doesn't happen to me.

Hey, so we have been told to slowly cut the prednisone down so for three days take 5 mg less then the next three decrease by 5 mg and slowly ween off them .. how are you feeling taking the 20mg?

Lana Farrell · Apr 21st, 2017, 08:09 AM

Hi Danielle, I felt great the first few weeks (apart from ohss) but for the last two weeks I've been really sick with flare ups of arthritis and tightening in my ribs that wakes me 2am every morning. I hate to imagine if I wasn't on any steroids at all! My clinic just said stop taking them at 12 weeks. I wonder why they haven't suggested the weaning

DanielleTTC · Apr 21st, 2017, 13:29 PM

It's really bad just to stop it can cause more problems than needed.

ttc126 · Apr 21st, 2017, 14:01 PM

I'm tapering my progesterone after being told to quit cold turkey. It's very hard psychologically for me too!

About your steroids...From doing a lot of research, immune issues are normally resolved by the end of first tri. I have a friend with a very dangerous blood antibody that can cause fetal hydrops. She gets IVIG first 10 weeks only because after that your immune system doesn't cause issues in the same way. She has to take steps later because her antibody can cross the placenta but that's a different issue. I think you'll be ok especially as you are on a low dose and it sounds prophylactic and not like it's pinpointed to a specific immune disorder.

Lana Farrell · Apr 22nd, 2017, 12:16 PM

Thanks ladies. I've read about that too, the immune issues calming down after first trimester. I think what is read is about 75% of ladies. I'm under investigation at the moment with suspected AS/lupus, but already have rheumatoid factor. Really hoping it's neither really! I may cut down to 15mg a day for a few days at 11 weeks pregnant and taper them out. Thanks for the recommendation.

Apr 11th, 2017, 13:05 PM	1
Calcifer Pregnant (Expecting) Active BnB Member Join Date: Nov 2014 Location: Dublin Posts: 300	Anyone here on prednisone and progesterone and are you tapering? Hi i'm looking for anyone who may be on low dose steroids and progesterone to support pregnancy? I'm tapering the prednisone from today, from 5mg to 2.5mg to then 0. I'm finding it so hard, psychologically, in case it's in fact sustaining the pregnancy. My OB says as such a low dose, it's not... anyone?

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Apr 11th, 2017, 21:46 PM	2
Leilani Other BnB Addict Join Date: Nov 2009 Location: New Zealand Posts: 3,598	That is a very low dose! I'm on 25mg, which is still considered relatively low, by OB said over 40mg is starting to get up there, but plenty of women take a higher dose for a number of reasons throughout their pregnancies. I will be on prednisone for as long as I'm pregnant. The progesterone could possibly sustain a non-viable pregnancy, but not the prednisone. I understand your trepidation.

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Apr 12th, 2017, 12:35 PM	4
DanielleTTC Pregnant (Expecting) Active BnB Member Join Date: Sep 2010 Location: England Posts: 387	I'm on prednisone 40mg , I'll be on these for the rest of pregnancy and I'm also ustrogest perssaries three time a day. I have to inject clexane everyday too.... With the prednisone I've felt really hurry the first two weeks, it's not the first time I've been on these so far that the only thing I've noticed..

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Apr 17th, 2017, 13:11 PM	5
Lana Farrell Pregnant (Expecting) Active BnB Member Join Date: Mar 2015 Location: London Posts: 376	Hi I understand your worry. I've felt the same too. I've been taking 20mg prednisone daily, two cyclogest daily, and clexane. I'm meant to stop all of these at 12 weeks (I'm 7 now) I don't get how can just suddenly stop these? I'm a little scared because I have lots of autoimmune issues and worrying without the steroids I'll have bad flare ups. I know once you're past 12weeks the placenta would have taken over so don't worry about stopping the progesterone. With steroids I think it depends on what you're actually taking them for as some conditions left untreated can be a threat to a fetus if our bodies/immune systems attack them instead of protecting. This is what I'm praying doesn't happen to me.

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Apr 21st, 2017, 08:09 AM	7
Lana Farrell Pregnant (Expecting) Active BnB Member Join Date: Mar 2015 Location: London Posts: 376	Hi Danielle, I felt great the first few weeks (apart from ohss) but for the last two weeks I've been really sick with flare ups of arthritis and tightening in my ribs that wakes me 2am every morning. I hate to imagine if I wasn't on any steroids at all! My clinic just said stop taking them at 12 weeks. I wonder why they haven't suggested the weaning

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Apr 21st, 2017, 13:29 PM	8
DanielleTTC Pregnant (Expecting) Active BnB Member Join Date: Sep 2010 Location: England Posts: 387	It's really bad just to stop it can cause more problems than needed.

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Apr 21st, 2017, 14:01 PM	9
ttc126 On a break (TTC) BnB Addict Join Date: Oct 2012 Posts: 4,209	I'm tapering my progesterone after being told to quit cold turkey. It's very hard psychologically for me too! About your steroids...From doing a lot of research, immune issues are normally resolved by the end of first tri. I have a friend with a very dangerous blood antibody that can cause fetal hydrops. She gets IVIG first 10 weeks only because after that your immune system doesn't cause issues in the same way. She has to take steps later because her antibody can cross the placenta but that's a different issue. I think you'll be ok especially as you are on a low dose and it sounds prophylactic and not like it's pinpointed to a specific immune disorder.

Status: Offline

Apr 22nd, 2017, 12:16 PM	10
Lana Farrell Pregnant (Expecting) Active BnB Member Join Date: Mar 2015 Location: London Posts: 376	Thanks ladies. I've read about that too, the immune issues calming down after first trimester. I think what is read is about 75% of ladies. I'm under investigation at the moment with suspected AS/lupus, but already have rheumatoid factor. Really hoping it's neither really! I may cut down to 15mg a day for a few days at 11 weeks pregnant and taper them out. Thanks for the recommendation.

Status: Offline

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