Just thought I'd start a thread, as we will come across some problems that the more able bodied / minded ladys won't!
Also It may be usefull to make friend with people with similar conditions and see how they are doing things.
also (again) Any mamas who have been there done that with a disability would be lovly to hear your tips and tricks and stuff!
How are you preparing for your baby? I've desided to use a sling so that eliminates the buggie/wheel chair sutuation. And DP might weld some sort of baby seet (like a trolly seat im asuming?) on to the front of my wheel chair (that can me uncliped and moved to either wheel chair. (he likes doing things like that, I currently have a solar pannel on my electric wheel chair......)
Is your baby already affecting you?
What about DP/DH? If he has a disability what special things will he make use of to make life easyer?
I have M.e, Use a wheel chair some of the time but a stick most of the time esspeshally when out. Had it for about 12 years now,
And Bipolar, Type 2 (think thats the right one where you get few manias / hypo manias but lots of deppression) I ultra paripid cycle. manias/ hypomanias lasting hours to a week and a bit. Was longer when I was younger.
Is any one worried about their child inheriting their disabilitys?
I am very worried my child will have bipolar, or worse just extream deppression. But I hope as I controle mine well I would spot the signs?
Hey Axe! Welcome to B&B. I am not disabled, but I do have a few conditions that I worry about. I have asthma which is controlled with a preventative inhaler. I have also been diagnosed bipolar, but have remained symptom free for several years on no medication which leads me to think that the diagnosis was an error. Even so, I have major depressive episodes time to time. I also have benign positional vertigo which has cropped up this year.
My depression is the one I worry about the most with my baby. But I figure we'll cross that bridge when we get to it.
I don't mean to belittle your condition at all. I was just hoping to let you know we all have things that we're especially worried about how they are going to effect our little beanies. It's overwhelming!
Hi Axe, Im disabled, I have Reflex Sympathetic Dystrophy (RSD) in my left knee which has now spread down to my ankle. Due to this condition my leg has got to the point where it can not bend at all and is hyper extended, causing more pain, I use crutches most of the time but do have to use a wheelchair or my scooter on long days out. I am waiting at the moment to have my leg removed but have an appointment next Monday to discuss delaying it for a while, till the baby is about a year old. I am dreading how Im going to cope but have overcome so much just to be able to TTC. I know my DH will help me so much and I will adapt and find ways of doing things. Im already having problems with pain due to my bump growing and know I will have to rely on my wheelchair more later on. It is hard but Im here if you want to talk just PM me, it is hard but we can do it, It must be hard worrying if your baby is going to inherit your problems and I hope for you this isn't the case. Take care XX
I have EDS (Ehlers-Danlos Syndrome) It is a connective tissue disorder that causes all my joints to be unstable and dislocate fairly spontaneously and causes fatigue and other things. I use crutches sometimes or wheelchair to get around outdoors. I have a 50% chance of passing it on to LO, but we were eager to go ahead and have kids anyway as I have learned so much about my condition and am sure I can help my child much better than I was ever helped before my diagnosis, as I will know what to watch out for and how to cope etc. I also have several other tasty little extras that I may pass on, most have 50% chance again, such as heart problems (not major though) and oligodontia, a condition which means i have very few teeth and need lots of dental implants etc. I'm not going to stress too much about passing things on, we will just deal with things if anf when we have to, and everything is much more controllable these days anyway.
It'd be great to hear from any other disabled mums-to be, and share ideas/worries/stories. We are thinking about the whole buggy/wheelchair thing too, and have recently decided that we will probably last as long as possible with slings and backpacks to avoid the buggy/wheelchair problems! I love the idea of a sling on my front as I'm in the wheelchair, and as my partner is my full time carer I will never be without him to help/push us both in the wheelchair, which is very reassuring
Good to meet you other disabled mums, good luck with everything! let's keep this thread going with any thoughts or whatever, yea?
Well there go my ideas of not having a buggy; we bought the Mothercare Urban Detour 3 wheeler travel system today, and I'm so glad we did: It is a pram, carry cot, car seat and toddler stroller all in one, with loads of cool extras. It was 2nd hand so a very decent price, we couldnt resist
We still plan to use slings / packpacks for days when we have the wheelchair, but the pushchair will be great when I feel up to walking for a bit, or when we get electric buggy for me at the zoo or anywhere like that as OH can push the pram then
How are we all doing? Anyone else bought anything yet??
How are you today? hope all is well. We have already brought our pushchair, carrycot, car seat and nursery furniture set. If we are going out somewhere long then I will use my electirc scooter, as I never go out without DH he will be pushing the baby anyway, I will feel Im missing out though . It is exciting to go out and buy these things, take care XX
Me and my OH both have M.E and I suffer from Borderline personality disorder, anxiety and depression.
Is everyone here aware of the disabled parents network? They're great, they have a forum and a helpline, and the guy off the helpline sent me lots of info when I first got pregnant about my rights as a disabled parent e.t.c.
I've been looking at equipment that will make things easier, me and my OH are both going to need to use slings to hold the baby, and I've found a really good looking baby bath with built in support to stop the baby slipping about
I've also been told that remap are able to make a pushchair type thing to go on the front of a wheelchair but I've not looked into it yet.
Wishing you all happy and healthy pregnancies, and feel free to msg me if anyone would like to chat
Any opinions, advice, statements or other information expressed or made available on BabyandBump.Momtastic.com by users or third parties, including but not limited to bloggers, are solely those of the respective user or other third party. They do not reflect the opinions of BabyandBump.Momtastic.com and they have not been reviewed by a physician, psychologist or parenting expert or any member of the BabyandBump.Momtastic.com staff for accuracy, balance or objectivity. Content and other information presented on BabyandBump.Momtastic.com are not a substitute for professional medical or mental health advice, counseling, diagnosis, or treatment. Never delay or disregard seeking professional medical or mental health advice from your physician or other qualified health provider because of something you have read on BabyandBump.Momtastic.com. BabyandBump.Momtastic.com does not endorse any opinion, advice, statement, product, service or treatment made available on the website. If you think you have a medical emergency, call your doctor or emergency services immediately.