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Old Sep 10th, 2013, 15:25 PM   1
Lisalllll
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Cervical length issues and bicornuate/septate/arcuate uteruses


Hi

I've pretty much just lurked around here for a while so now I'm going to post! I need your help!

Long story short I'm 16 weeks pregnant following ivf. I had a mmc & natural passing of fetus at 8wks last October.

I have some sort of uterine malformation. A hsg and hysterascopy said it was bicornuate on further investigation by laproscopy diagnosed septate then my notes were lost and they were unable to tell me if it was partial or full. A few goes on clomid which failed I was sent to ivf clinic. They done an mri at a request my septate be removed but they said the mri revealed Arcuate uterus. I mis doubt this diagnosis as I feel they did not want to remove septate and I've read that on mri a septate uterus can appear arcuate and that laprascopy Is the best form of diagnosis as its the most accurate.

So since I have some form of malformation they are monitoring my cervical length (though not as much as I'd like!). So at my 11 week scan my CL was 4.2cm, today at 16 weeks it was 3.2cm. Because this is well within were the nhs like to see CL they are not seeing me again to 20 weeks. I'm concerned that since I've lost 1cm in 5 weeks, at a time were baby is not really heavy then I'm really concerned 20 weeks is too long to wait plus if its shortened much more its too late for a cerclage.

Can anyone shed any light or give me any info or accounts (negative and positive please) I really want to know what to expect if anything

Lisa xx



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Old Sep 10th, 2013, 19:35 PM   2
OurLilFlu
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No advice from me but I did see a thread with almost the exact same title in gestational complications, might want to ask there!



 
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Old Sep 10th, 2013, 20:04 PM   3
Srrme
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I know it's still in the normal range, but I would be pushing for bi-weekly cervical scans if possible, especially since it changed so much in a short time frame. I had bi-weekly cervical scans during my last pregnancy, and they began at 16 weeks and kept checking me until 28 weeks. Starting at 20 weeks seems a little late to me?



 
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Old Sep 10th, 2013, 22:23 PM   4
Mummabee
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First of all... I'm so sorry for your loss and the stress you must be feeling (I had a loss earlier this year so I can empathise with how you must be feeling) I have a bicornuate uterus and am seen every 3 weeks to check. But the only scan I've had to check cervical length came back at 4.8! Sooo I now am only seen once monthly as per normal Australian requirements. They did however have me on progesterone pesseries from week 17 to week 23. Being in the UK I guess it's different but are you able to go to a GP and ask them about the progesterone, my understanding is that it helps maintain the length and health of the cervix?? I can't really remember but I do remember my dr explain that it's only beneficial in women who's cervix length is shorter and can help with losses associated to that? Sorry it's such a vague response but my little man has taken all my brain capacity today !! I really hope everything is ok and you can get a resolution ASAP before something tragic were IF it were to happen but you still are within the normal range, you should for your own sanity seek out private help from an OB?? Big hugs and please keep us updated!!



 
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Old Sep 11th, 2013, 05:29 AM   5
Lisalllll
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Hi

Thanks all for your responses.

I pushed yesterday to no avail, because its in the normal range for nhs they will not see me any sooner but I've read so many stories that a cervix length of this at this early stage is short and the fact I did loose 1cm does not help matters

My GP is no use either he will not prescribe anything pregnancy related unless he gets the go ahead from my antenatal clinic!

So I've decided I'm going to go for a private scan at 18 weeks, its ridiculous when you pay your taxes that you have to do this and ridiculous that nhs protocol for being considered for a cerclage or any similar treatment is that you have to suffer two late losses at 18 weeks or later its just unbelievable!

I will keep yous posted

Lisa x



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Old Sep 11th, 2013, 06:01 AM   6
sharan
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I've not got any issues with my uterus but I am suspected of having an incompetent cervix. For this reason I am being scanned fortnightly to keep an on my cervix length. I had my first cervix scan yesterday when I was 13+5 weeks and cervix measured 3.82cm. I've got another scan when I'm 15+5 weeks. This will continue until I'm 22+5 weeks but I'm going to ask for another when I'm 24+5 weeks.

In addition to the scans I've also been prescribed progesterone pessaries which I'll be taking from 12+5 weeks until I'm 34 weeks. If your GP can't prescribe you the progesterone then I'd get in touch with the consultants and ask to be seen. I'm currently under the premature prevention clinic so I'm not sure if you have a similar department that you can contact. I've found that the consultants will bring forward scans etc to help with reassurance as they did initially suggest monthly scans for me.



 
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Old Sep 11th, 2013, 10:14 AM   7
Srrme
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Quote:
Originally Posted by Lisalllll View Post
Hi

Thanks all for your responses.

I pushed yesterday to no avail, because its in the normal range for nhs they will not see me any sooner but I've read so many stories that a cervix length of this at this early stage is short and the fact I did loose 1cm does not help matters

My GP is no use either he will not prescribe anything pregnancy related unless he gets the go ahead from my antenatal clinic!

So I've decided I'm going to go for a private scan at 18 weeks, its ridiculous when you pay your taxes that you have to do this and ridiculous that nhs protocol for being considered for a cerclage or any similar treatment is that you have to suffer two late losses at 18 weeks or later its just unbelievable!

I will keep yous posted

Lisa x
What a load of bull. Mine was in the normal range during my last pregnancy, but I was still offered bi weekly cervical scan due to my history (PTL).

I hope your cervix doesn't shorten any more and it looks good at your private scan. I'm sorry you're having such a hard time.



 
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Old Sep 11th, 2013, 12:54 PM   8
Lisalllll
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Hi

This is what actually happened. I went for my booking scan at 11 weeks I said to junior OB about possibility of IC due to my misshapen womb I asked about cerclage as a preventive he said "there's no evidence cerclage works and it can have more risks we don't actually do that unless you had 2 or more losses at 18 weeks or beyond". I said "well I don't want to have a loss at 18 weeks, I took 3 goes of ivf to get here, my partner is terminally ill if I lose this one there won't be a second loss cause there's no more money for ivf, and no guarantee it would work, I'm also 35". Did it phase him NO. He put his hand on my knee and in the most poor performance of sympathy goes "I know i know". So I asked to be monitored for cervical length "No". (Or some excuse with that no I'd given up then). Next the door opens and senior OB walked in I hadn't even the will to ask her what I'd asked junior and to my surprise SHE SAID TO ME with these womb shapes you can have IC so ill see you back here at 16 weeks (instead of the 20 weeks junior was putting me next in at). However the appointment never came and I ended up having to ring and explain to the desk at the antenatal clinic so I luckily got booked in at 16 weeks. Now the senior OB who saw me then and yesterday is the head of the premmie clinic so since she's adamant she won't see me again to 20 weeks there is nothing left for me to do but go private. One clinic quoted me 310!! And another 105

Honestly feel so annoyed by it all. I know nhs have there text book protocols but surely when they see individual circumstances like I'm 35 and 3 goes of ivf and my partner has CF surely they would treat people's cases as individual, it's just so frustrating

Hopefully my cervix won't go beyond the 3.2 but I can't not be watching it. Guess its in Gods hands really

Lisa x



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Old Sep 11th, 2013, 13:09 PM   9
Srrme
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I am so sorry you're having such a rough time with it.

Which way have they measured your cervix?



 
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Old Sep 11th, 2013, 13:14 PM   10
Lisalllll
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Hi

They measured it internally. The two print out I have in my maternity record one says 3.54 and the other 3.2cm so I'm thinking its maybe a bit difficult to measure properly?

Plus they don't even know for sure which womb I have, 3 different tests had 3 different results so I'm hoping if its only arcuate IC may not be an issue

Thanks for your responses

Lisa x



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