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Old Sep 18th, 2017, 09:10 AM   1
nordicpixie83
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Any autoimmune / chronic fatigue mamas?


Hey ladies ,

I have fibromyalgia with lupus tendencies was diagnosed about three years ago now . It's definitely making me " feel " this pregnancy compared to the others . I'm so exhausted , breathless , very achey joints & muscles. The migraines are particularly brutal too!! Would love to hear from other mum's in the same situation



 
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Old Sep 18th, 2017, 13:15 PM   2
mummy3
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Me!

I have Isaacs syndrome/morvans and a connective tissue disorder. Have to do plasmapheresis every week to remove the antibodies from my plasma. It def makes it harder



 
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Old Sep 18th, 2017, 16:51 PM   3
nordicpixie83
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Quote:
Originally Posted by mummy3 View Post
Me!

I have Isaacs syndrome/morvans and a connective tissue disorder. Have to do plasmapheresis every week to remove the antibodies from my plasma. It def makes it harder
Oh my gosh that sounds really Awful to deal with ? You must be exhausted



 
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Old Sep 18th, 2017, 20:15 PM   4
mummy3
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Quote:
Originally Posted by nordicpixie83 View Post
Quote:
Originally Posted by mummy3 View Post
Me!

I have Isaacs syndrome/morvans and a connective tissue disorder. Have to do plasmapheresis every week to remove the antibodies from my plasma. It def makes it harder
Oh my gosh that sounds really Awful to deal with ? You must be exhausted
Plasma has seriously made a massive difference in my mobility etc. It's also a break, sit, watch tv and snacks, child free for a bit

Exhausted for sure though.

What's involved in Lupus?

I have the joint issues too, have you heard of Ehlers Danlos? I have type 1. Type 3 is often misdiagnosed as fibromyalgia so I feel you

What are your docs doing to accommodate your illness?



 
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Old Sep 19th, 2017, 10:15 AM   5
Teasangelmom
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I have fibromyalgia and Whalers Samoa which seem to be much worse this pregnancy. My hips hurt constantly and I'm dislocating a lot more too. If I do more than take care of my 2 year old daughter my fibrosis flares up, hands burn and turn bright red. It really does suck. I know it will be worth it once my second daughter is here but Im only 23 weeks and it feels like I still have such a long way to go. If anyone wants to talk Im here!



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Old Sep 22nd, 2017, 06:36 AM   6
nordicpixie83
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Hey ladies I'm just out of a rather unexpected 48 hr stay on maternity suite . I have been feeling breathless with a chest pain and migraine. So a routine midwife check seen me sent off to MAU and then kept in for a few days . I've had ECGS , chest x rays , leg scans , ct scans , endless blood testing . All to be left feeling confused by the lack of answers . So I'm putting it down to a flare as I'm completely wiped out and have that "hit by a bus" feeling



 
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Old Sep 26th, 2017, 08:49 AM   7
nduati
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I have Ankylosing spondylitis and Ulcerative Colitus. I get Immunosuppressant Medication infustions every month. I have severe pain and am due to finish up at work at around 30 weeks.



 
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Old Sep 26th, 2017, 15:46 PM   8
nordicpixie83
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Originally Posted by nduati View Post
I have Ankylosing spondylitis and Ulcerative Colitus. I get Immunosuppressant Medication infustions every month. I have severe pain and am due to finish up at work at around 30 weeks.
Oh my gosh thst is a lot to deal with !

I'm seeing the high risk obstetrician next Monday to put my care plan in place. I'm definitely feeling in a bit of a flare just now



 
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Old Sep 26th, 2017, 16:04 PM   9
Sarahcake
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I have Henoch-Schonlein Purpura which is a rare form of vasculitis and is treated on the same pathway as lupus. I also have ulcerative colitis and I work full time in a trauma orthopedic ward. To say I'm knackered is a complete understatement. I hope you ladies are all doing ok xx



 
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