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Old Apr 13th, 2010, 06:17 AM   1
Khloeee
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Scan at 13 weeks - hole in heart


Hi everyone,

I'm 13 weeks and 1 day so this is my first post in the 2nd trimester section!

I had my first scan yesterday. Was lovely to see the baby wriggling around and to hear the heartbeat. I was surprised at the amount of time I was being scanned for, I thought it would be maybe 15 minutes - I was in there for 50 mins and had the external ultrasound and then an internal scan.

They said everything was fine apart from a small hole in the heart. Apparently this is something that could repair itself before the baby is born but we will have to wait and see how things have progressed at the 20 week scan. I asked the doctor about what risks this could pose to the baby if it doesn't repair itself, however he just kept on about the possibility of Down's syndrome. I tried to tell him that I wasn't concerned about Down's syndrome risks, but that I just wanted to know how my child's quality of life could be affected by a hole in the heart. I think maybe I wasn't explaining myself too well or maybe he just didn't know the answer as it's not his area, so I didn't get any response on that other than him repeating the stuff about Down's Syndrome. (Slightly separate note but I can't believe how much DS is emphasised, as if it's the only thing that could possibly be a health concern in pregnancy - I've had so many people going on about it and the tests, from my GP to people at the hospital).

Anyway, trying not to worry myself too much, I did a bit of googling and it seems VSDs are the most common condition in unborn babies and the holes can close up of their own accord, and even if they don't, a lot of babies and children live perfectly normal lives with a VSD. I'm hoping this will be the case, and will wait for the next scan for further news.

Has anyone else had a similar experience?



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Old Apr 13th, 2010, 06:21 AM   2
flobo1971
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My friends sister was born with a hole in her heart, she is 31 now and has had no problems, apart from a small procedure shortly after birth. Her QoL is completely unaffected. Best of luck. X



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Old Apr 13th, 2010, 06:23 AM   3
midori1999
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I suspect the doctor kept talking about the risk of Downs as a heart defect coul bea strong indicator for Downs and 50% of children born with Downs also have a congenital heart condition

My son (he has Downs) was born with an ASD and a VSD, neither were picked up on ultrasounds during pregnancy (the Downs wasn't picked up either). At first they thought he didn't need surgery, but then at 6 months they decided rather quickly that he did. So, he had open heart surgery to close the holes a few days later. He sailed through the op and it really wasn't that much of an ordeal for either my son, or us. He was home in under a week post surgery and is monitored, but absolutely fine now.

Most often a hole will cause a murmur, but won't affect daily life that much, if it does, they will operate. The op really is routine these days.



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Old Apr 13th, 2010, 06:23 AM   4
xprincessx
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My best friend was born with a hole in her heart and she had to have an operation and she made it through. She is perfectly healthy now and hasn't had any problems since the op when she was a baby. I hope it repairs itself because i know it can be a very distressing time for families to see this happen to their child but just in case it doesn't i'm sure it will be fine and doctors nowadays have alot of knowledge and technology to fix any problems.



 
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Old Apr 13th, 2010, 06:49 AM   5
Khloeee
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Thanks for the replies so far, I think it is definitely a case of wait and see but good to know that it doesn't always mean a serious condition.

Midori, yes I think you are right. The doctor kept stressing the link between heart defects and Down's Syndrome, but he didn't seem to get that I wanted to know about any possible effects aside from Downs, which was frustrating, especially after I've stated countless times that I'm not interested in the tests for Down's Syndrome and don't want to discuss further tests etc. My partner's brother has Downs (and a congenital heart defect) and we want this baby whatever happens, but it seems like we still get lectured about it and have to keep repeating ourselves and what we have requested regarding knowing the outcome of the DS tests.



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Old Apr 13th, 2010, 07:28 AM   6
carrieanne
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they can pick up so many things on these early scans that correct them selves they thought my baby had a exomphalos which is when the intestines are outside the body and is a great marker for edwards syndrome which is fatal we were so scared but low and behold 3 weeks later it had gone and we are on our way to having a healthy little boy my mum is a midwife and doesnt think the early scans do cause extra worry in her day you couldnt see much lol as alot of the times it turns out these babies are perfect healthy i know othey can detect abnormalitys early and desicions can be made sooner rather than later but also does cause alot of worry just by experience, be positive im sure everything will be fine good luck sweetie keep us posted xxxx



 
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Old Apr 13th, 2010, 07:38 AM   7
tinadecember
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sorry to hear that, firstly i hope everything is okay in the end for you.

secondly, my cousin had a baby boy 6 months ago with a hole in his heart amongst other complications with his health and he had to undergo surgery but is now all fine and well! x



 
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Old Apr 13th, 2010, 07:47 AM   8
LittleAurora
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My eldest son who is now 7 was born with a VSD. He still has it and it doesn't affect him at all. WE just have yearly reviews at the hospital. If you put your hand on his chest you can feel his heart beats differently!

With my 2nd child I had to go for a special scan, between 18-23 weeks pregnant to check for heart defects. Lucky nothing was found. And now I am waiting on my appointment for the same thing for this baby.

Its seems that holes are so common its a routine op to put it right, if he needs an opp at all!

Hope all turns out well and baby is fine!! keep us updated.



 
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Old Apr 13th, 2010, 08:12 AM   9
rainbows_x
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My OH's grandfather was born with a hole in his heart, they didn't pick up on it until he was in his 70's. He was in the army etc and they didn't even pick up on it, he lived well into his late 80's I believe.

I hope your LO will be okay x



 
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Old Apr 13th, 2010, 08:13 AM   10
lizzieboo88
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hello i was born with a hole in my heart , this does not affect me in any way at all i am now 21 never had an issue with it , i never had to have anything done to it wen i was born , also my little brother was born with the same thing never had a broblem he is a very healthy 6 yr old so dnt wrry to mch xxx



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