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Old Feb 28th, 2016, 17:35 PM   1151
Cornfieldland
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Daisy mine were 8.3 about 5 weeks ago. Now they are 7.7. I have tired to lower my fat intake so maybe that has helped. I get a bit itchy if I eat meat and junk food, but mostly it's the pain. I got tested because of the pain and had a ultrasound as well. It's really bothering me, mostly in the afternoon and if I sit in the car to much or bend to much. My Dr hasn't had anyone with the pain, just the itching, and since my levels are not to high and my ultrasound was clear she doesn't know what to do. No mention of seeing high risk of fetal medicine. Maybe I'll push for it next appt cause it's not normal to be hurting every day. I'm a bit itchy here and there now that I've been eating more meat and sugar the last couple days. Oh, and I have to pay 40$ every time I have that bile acid test cause it's not covered! Boo!



 
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Old Feb 29th, 2016, 10:05 AM   1152
DaisyAnne
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Originally Posted by Cornfieldland View Post
Daisy mine were 8.3 about 5 weeks ago. Now they are 7.7. I have tired to lower my fat intake so maybe that has helped. I get a bit itchy if I eat meat and junk food, but mostly it's the pain. I got tested because of the pain and had a ultrasound as well. It's really bothering me, mostly in the afternoon and if I sit in the car to much or bend to much. My Dr hasn't had anyone with the pain, just the itching, and since my levels are not to high and my ultrasound was clear she doesn't know what to do. No mention of seeing high risk of fetal medicine. Maybe I'll push for it next appt cause it's not normal to be hurting every day. I'm a bit itchy here and there now that I've been eating more meat and sugar the last couple days. Oh, and I have to pay 40$ every time I have that bile acid test cause it's not covered! Boo!
Did they put you on urso or anything? That can lower your bile acids, too. Yeah, I've been trying to cut out fatty and greasy, sugary foods and caffeine to try to help. Haven't really seen much of a difference as this weekend was just miserable!
Also, I did a whole lot of reading about OC/ICP recently, and I did come across some info that some women start with the pain before the itching, really. It's so uncommon anyways, and then it usually presents as itching first that your doctor probably hasn't seen it personally, but it does happen apparently- just not as often. I hope your itching doesn't kick up much! What is their plan for you for delivery?



 
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Old Feb 29th, 2016, 12:59 PM   1153
Cornfieldland
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I know it's hard to stick to the diet, I still eat sugar but I'm eating better than I was. Weekends are hard. No medication, I think unless my numbers are higher they don't seem to think it's serious. I've only seen my OB three times for like 5mins, and now she's on vacation and I'll be seeing someone else until I'm 36wks! My Plan is to ask for clotting time and bile acids blood work around 35wks and see what my results are. Then I'm going to ask to be induced between 37-38wks. That's my plan I've had two induced deliveries before, one at 39, one at 37weeks and they went smoothly so hoping for the same.

Are your numbers back?



 
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Old Feb 29th, 2016, 15:06 PM   1154
DaisyAnne
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Still waiting on my next numbers, but I had my specialist appointment today. They really think I'm in the gray area whether I have it or not, so they're not quite sure what they'll do yet. They explained that basically the higher the bile acid number, the more likely it is you have it... but there's no "number" that they can definitively say you have it or not. So, they say my 8.9 with symptoms is iffy one way or the other? I dunno, I just think I have it! So they're treating me currently as though I have it. Put me on urso, if it helps the itching, then it's more definitive that I have it. If my next numbers come back higher, then it's more definitive- and with either one they'll induce sometime soon... but that's super confusing as well! So it was just all really unclear still!



 
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Old Mar 5th, 2016, 12:16 PM   1155
DaisyAnne
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Well, I'm going to be induced at or by 38 weeks. Just have to wait for my OB to schedule it! The urso has helped my itching, so they're treating me as cholestasis. My mfa doctor isn't sure whether I actually have it, but I think I do have it. They want to treat me for it anyway, bc they don't have enough time to get more tests and a definitive answer. Glad they're being safe! And I'm so glad the itching has improved as it makes the waiting to meet baby more bearable!!
Hope your spots with the substitute doctor to well and they can get you delivered when you want!!



 
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Old Sep 17th, 2017, 21:16 PM   1156
glovities
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I see its been a while since anyone has posted in this thread but i am currently suffering with terrible itching and have been for more than a month. Its to the point where i can barely wear clothes, in fact there are certain fabrics i cant wear at all. I had bloodwork at about 28 weeks to test my liver functions and they came back normal. I have been itching since then. It started with my hands and feet but now it is my entire body even my face. What do you think I should do?



 
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Old Sep 17th, 2017, 22:01 PM   1157
DebbieF
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I see its been a while since anyone has posted in this thread but i am currently suffering with terrible itching and have been for more than a month. Its to the point where i can barely wear clothes, in fact there are certain fabrics i cant wear at all. I had bloodwork at about 28 weeks to test my liver functions and they came back normal. I have been itching since then. It started with my hands and feet but now it is my entire body even my face. What do you think I should do?

I would request more blood work as soon as possible.



 
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Old Sep 22nd, 2017, 23:18 PM   1158
purelygemini
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Omg yay this thread is active again! I've been dealing with this for the past couple weeks and haven't had anyone else to talk to that's also been going through it. I'm currently going through my third round of testing to fully determine whether I really do or do not have cholestasis or am just going crazy lol!

Glovities~let me know if you want to chat more and compare symptoms, I'll also tell you about all the different testings I'm going through too if you want to know!



 
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Old Oct 4th, 2017, 20:07 PM   1159
EBAUERHAUS
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Hi all! I never thought to come here after being diagnosed.
I'm currently a week and a couple of days away from my induction date (puts me at 36 + 6 days).
My bile acid numbers were in the severe range, 67.9. I'm taking 250mg Urso, three times daily since I was 29 weeks, which was when I was diagnosed.
My itching has almost entirely subsided and my liver and bile acid numbers have returned to normal range which I think makes me one of the lucky ones, as the meds don't always necessarily help the itchies.

I am only on every few days and once baby is here, perhaps less often, but feel free to message if you'd like.



 
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Old Oct 6th, 2017, 07:02 AM   1160
ttc126
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I never thought to post here either! Was diagnosed last week at 33+6. C section is scheduled for 36+0.
The med seems to have started to help me too after being on it for 11 days. I had lost my appetite completely and stopped gaining weight altogether in addition to the itching and that’s gotten a bit better too.
I am surprised they’ll do a 36 week c section for it but I do appreciate them keeping baby safe.



 
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