Will you get your LO tested?

ahcigar1 · Apr 2nd, 2012, 10:24 AM

Found this article quite interesting. If the disease is so deadly if not caught early and treated then why is it not something that so many states don't test for. It's called SCID and if not discovered then won't live to see second birthday. Ones who aren't tested are ultimately determined to have died from nemonia (sp?) or meningitis.

http://www.foxnews.com/health/2012/0...ntcmp=features

See if your state does the testing or not. If not please request.
http://genes-r-us.uthscsa.edu/nbsdisorders.pdf

themaybaby · Apr 2nd, 2012, 10:30 AM

Sad story

It seems like this testing would be mandatory before your child leaves the hospital, though. Only 6 dollars could've prevented this, I def be testing my daughter.

ahcigar1 · Apr 2nd, 2012, 11:23 AM

Quote:

Originally Posted by themaybaby

Sad story

It seems like this testing would be mandatory before your child leaves the hospital, though. Only 6 dollars could've prevented this, I def be testing my daughter.

It is very sad. You would think they would test for it regularly, and many parents don't even know about this disease. I had no idea about it till read this aretical. very scary.

ahcigar1 · Apr 2nd, 2012, 15:31 PM

Bump so others can see.

mom and ttc · Apr 2nd, 2012, 15:33 PM

i wont get my son tested unless the doc does it anyway. would just worry myself over everything

justplainTIFF · Apr 2nd, 2012, 16:24 PM

Looks like the state I live in requires it. One less test for me to remember to request.

megangrohl · Apr 2nd, 2012, 17:16 PM

What about Canada? Do they do this testing?

mrsbailey8 · Apr 2nd, 2012, 17:20 PM

It says Florida doesn't even offer it? So I guess I can't even request it?

jenmcn1 · Apr 2nd, 2012, 17:45 PM

I'm from Canada and I do know that they test the babies within 48 hours for a whole list of things. I'm not going to worry about requesting a test for this specific thing. It is very informative, but quite honestly...there are SOOOO many diseases out there that newborns can be prone to. And they can also be prone to viruses like RSV etc. which is high risk if a newborn develops it. But the chances are so small...I think one of the BIG things I have learned as a mom so far is that you just do what you feel is best for your baby...and you do what you can to protect them. There are THOUSANDS of diseases and viruses out there...

letia659 · Apr 2nd, 2012, 21:25 PM

My state doesn't test for it and I doubt I'll have the testing done.

Apr 2nd, 2012, 10:24 AM	#1
ahcigar1 Mum (Mom) BnB Addict Join Date: Jan 2011 Location: California Posts: 5,680	Will you get your LO tested? Found this article quite interesting. If the disease is so deadly if not caught early and treated then why is it not something that so many states don't test for. It's called SCID and if not discovered then won't live to see second birthday. Ones who aren't tested are ultimately determined to have died from nemonia (sp?) or meningitis. http://www.foxnews.com/health/2012/0...ntcmp=features See if your state does the testing or not. If not please request. http://genes-r-us.uthscsa.edu/nbsdisorders.pdf

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Apr 2nd, 2012, 10:30 AM	#2
themaybaby Mum (Mom) Active BnB Member Join Date: Sep 2011 Location: Texas Posts: 495	Sad story It seems like this testing would be mandatory before your child leaves the hospital, though. Only 6 dollars could've prevented this, I def be testing my daughter.

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Apr 2nd, 2012, 15:31 PM	#4
ahcigar1 Mum (Mom) BnB Addict Join Date: Jan 2011 Location: California Posts: 5,680	Bump so others can see.

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Apr 2nd, 2012, 15:33 PM	#5
mom and ttc Mum (Mom) BnB Addict Join Date: May 2011 Location: florida Posts: 2,709	i wont get my son tested unless the doc does it anyway. would just worry myself over everything

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Apr 2nd, 2012, 16:24 PM	#6
justplainTIFF Pregnant (Expecting) Chat Happy BnB Member Join Date: Aug 2011 Posts: 1,194	Looks like the state I live in requires it. One less test for me to remember to request.

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Apr 2nd, 2012, 17:16 PM	#7
megangrohl Mum (Mom) BnB Addict Join Date: Aug 2011 Location: Ontario, Canada Posts: 6,314	What about Canada? Do they do this testing?

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Apr 2nd, 2012, 17:20 PM	#8
mrsbailey8 Mum (Mom) Active BnB Member Join Date: Feb 2012 Location: US Posts: 578	It says Florida doesn't even offer it? So I guess I can't even request it?

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Apr 2nd, 2012, 17:45 PM	#9
jenmcn1 Mum (Mom) BnB Addict Join Date: Sep 2011 Location: Canada Posts: 3,045	I'm from Canada and I do know that they test the babies within 48 hours for a whole list of things. I'm not going to worry about requesting a test for this specific thing. It is very informative, but quite honestly...there are SOOOO many diseases out there that newborns can be prone to. And they can also be prone to viruses like RSV etc. which is high risk if a newborn develops it. But the chances are so small...I think one of the BIG things I have learned as a mom so far is that you just do what you feel is best for your baby...and you do what you can to protect them. There are THOUSANDS of diseases and viruses out there...

Status: Offline

Apr 2nd, 2012, 21:25 PM	#10
letia659 Mum (Mom) BnB Addict Join Date: Dec 2008 Location: Tennessee Posts: 2,988	My state doesn't test for it and I doubt I'll have the testing done.

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