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Old Jul 20th, 2013, 19:12 PM   1
Rozzer
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Anyone who had HELLP - TTC #2


Hi ladies,

DS came at 29 weeks due to HELLP syndrome and iugr.

We are TTC #2 and I have moments of big freak outs, that I can't conceive or carry.

We've only been trying for a month or two, but dh is freking a bit too.

Any experiences you can share would be fantastic xx



 
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Old Jul 24th, 2013, 04:21 AM   2
buttonnose82
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Hi Hun, I had my second at 32 weeks due to sever HELLP, I am now 37 weeks with my third and not had ANY issues at all I regards to pre e/ HELLP this pregnancy

I have been very closely monitored, weekly midwife appointments from 28 weeks, twice weekly from 30 weeks then seeing the consultant weekly since 35 weeks. I was started on aspirin at 12 weeks till 37 weeks, as they believe it is a connection between the placenta formed at approx 16 weeks that can cause the issue. They have done regular growth scans as well. It has been pretty intense and I won't lie, my most scary/stressful pregnancy so far but that is due to my own personal fear rather than anything medical

The chances of reoccurrence to the extreme it was last time is approx 25%, so a 1 in 4 chance, however, they will monitor you so closely this time it won't be allowed to get as bad, they also believe that in the case of reoccurrence it will be later than previously and also a lot less severe

Sending big hugs to you, I know first hand how scary it is



 

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Old Jul 28th, 2013, 07:18 AM   3
Dinah93
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Hi there, was it an essential hypertension issue that led to the pre-e and HELLP, or pregnancy induced? I had high bp before falling pg, developed pre-e 27+3 and HELLP at 27+6, delivered 28+0. Apparently the earlier you develop it, the faster it progresses, and most importantly if you had existing high bp are your risk factors. As I was pre 30 weeks, progressed within a week even on monitoring and had high bp prior to falling pg my chances of developing pre-e again are about 75%, and about 50-50 chance of pre 30 weeks. If you didn't have high bp before getting pregnant you'll be monitored a lot more closely next time, meaning if you starts to show signs they should be able to control things better. I don't know where you're based, but NICE guidelines in the UK have only very recently changed to take note of recent research so now you'll not only be prescribed aspirin but also vitamin D, as it's been shown that women with low vitamin D levels are at much higher risk of pre-e and HELLP. The NHS doesn't routinely test for vitamin D deficiency, but you can get reliable private tests online for about 25. The normal range is 50-150 and my level came back at 2.6! I'm hopeful that between vitamin d supplementation, loosing weight (gone from bmi of 24.5 to 19.5) and taking a multivitamin (studies show about a 45% reduction in pre-e risk in women who take a multivitamin prior to conception compared to those who don't). Also look up the Brewer Diet, it seems to have had very positive results, as does regular exercise both prior and during pregnancy, as it widens the blood vessels.

At the end of the day there are no guarantees, but doing everything you can to reduce risk will at least give you peace of mind and maybe it's that calming effect that will keep you pre-e rather than any dietary or lifestyle changes, but something, somehow helps.



 
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Old Jul 28th, 2013, 16:52 PM   4
Rozzer
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Thank you so much for reply.

I had atypical HELLP - while my bp was high for me (I normally have low bp), it was still within the normal range. My HELLP manifested as just the elevated liver and low platelets.

I'm in New Zealand - I have seen an obstetrician for a pre-conception appt, and she seemed to think I'd be fine in the community with an experienced midwife. I am a little gutted, as we moved to a different dhb since I was pregnant and I would have gone under the high risk team there.

I really appreciate the tips - I've just bought a really good looking pre-conception vitamin to try this month (comes in monthly batches) and health and well being is my focus this month. I've actually gained a bit of weight, which isn't ideal but through sensible diet and exercise hopefully it will go.



 
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Old Jul 31st, 2013, 22:21 PM   5
laila 44
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Quote:
Originally Posted by Rozzer View Post
Thank you so much for reply.

I had atypical HELLP - while my bp was high for me (I normally have low bp), it was still within the normal range. My HELLP manifested as just the elevated liver and low platelets.

I'm in New Zealand - I have seen an obstetrician for a pre-conception appt, and she seemed to think I'd be fine in the community with an experienced midwife. I am a little gutted, as we moved to a different dhb since I was pregnant and I would have gone under the high risk team there.

I really appreciate the tips - I've just bought a really good looking pre-conception vitamin to try this month (comes in monthly batches) and health and well being is my focus this month. I've actually gained a bit of weight, which isn't ideal but through sensible diet and exercise hopefully it will go.
Exactly my story to a tee. They called my case " silent pre e" ... I developed hellp 3 days post partum and ended up in icu with water in my lungs! Almost lost my life. Scariest time ever. From the start of my last pregnancy I started to swell like crazy, water retention non stop. I peed out 31 pounds of fluid in hospital after baby was born. This pregnancy, I'm now 33 weeks and so far so good ( touch wood). No swelling at all what so ever. You never know. Every pregnancy is different xx



 
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Old Oct 4th, 2013, 23:50 PM   6
Rozzer
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Yay, got the easy part done and we've conceived number two. Going for the first (of many) blood tests on Monday then a dating scan in 3 weeks.

Have started on aspirin, calcium and iodine and continuing my folic acid. Fingers crossed!!



 
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Old Oct 5th, 2013, 04:23 AM   7
Dinah93
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Congratulations on your new bump! Here's praying for an easy road this time.

Can I ask what the Iodine is for?



 
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Old Oct 5th, 2013, 04:40 AM   8
Rozzer
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It's currently recommended for all pregnant women in NZ.

This link should provide further info

http://www.health.govt.nz/our-work/p...trition/iodine



 
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