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Old Jun 21st, 2016, 11:27 AM   1
jules87
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Endometriosis Support Buddies


Hi there! I'm Julia, an endometriosis sufferer and chocolate addict from Nebraska, U.S.. I'm 28, married almost 8 years, no kiddos.

I'm just looking for buddies that are going through similar troubles as me, mainly on the endometriosis front. It can be such a pain, literally; and at times I feel like it might actually drive me crazy.

Please, join me! Swap horror stories, whine, laugh, and whine some more.

As a teen my periods were heavy, lasted 7 days, and my cycles ran 21 days. Now days, my periods are very heavy & painful, last 7-10 days, with a 28 day cycle. Basically I've always been regular but far from normal.

I had a laparoscopy done in March of 2015; the doctor found 3 separate areas of endo, two on one ovary and one on the other. The laparascopy helped a little bit with the pain. Before the laparascopy the pain during my period would start (intensely) in my low back, encompass both hips, and I also had pain on my inner thighs... of course on top of cramps.

Now the pain is mostly in my low back and cramps, though this past cycle it was in my right hip as well. Heaviness has gotten worse over time. This last period, I had 3 separate OMG moments where I thought I'd leak through everything. I'm getting to the point of wanting to take a sick day once a month just to avoid the possibility of that happening.

Your turn!



 
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Old Jun 23rd, 2016, 16:50 PM   2
jules87
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Has anyone treated their endometriosis with Progesterone cream? I've been researching this a lot and want to give it a go.



 
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Old Jun 25th, 2016, 07:22 AM   3
Unlucky41
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Oh Jules you poor thing. What stage endometriosis do you have? I was diagnosed 3 years ago after our RE wanted to find out why my egg quality was so bad. They found stage three endometriosis my answer for 6 years of grief.

My periods are also so heavy from when I was a child always so scare of leaking and embarrassment. My mum always told me it was normal but it wasn't. I would had to go to the toilet every hour day 2 or it would leak everywhere. Friends thought I was weird! Yes the cramping is so bad I usually just curl up and try to sleep.

I have recently seen a nathropath and taking vitex and nac for endometriosis. Google nac it seems to be very positive for endometriosis.

What is your current plan? Still using clomid or just trying with no medication. If you are interested in my full story please visit my journal.



 
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Old Jun 27th, 2016, 15:06 PM   4
jules87
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I wasn't told what stage of endo I'm at. My doctor likes to play things down as much as possible. I get why he thinks that is helpful, but it's irritating at the same time. I will definitely look into the NAC.

At the moment we aren't trying, because I'm doing Botox treatments for migraines. I plan to do that for about a year. If my migraines are significantly better we hope to start TTC again. Our next step is Clomid with artificial insemination.

Thank you for the post and the tips!



 
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Old Jun 28th, 2016, 01:01 AM   5
Unlucky41
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Oh when did the migraines start. Did the doctor tell you why you have it so bad? Botox a common treatment?

This period my pain level was manageable and my period wasn't as heavy. Not sure what it is related to as I am having so much supplements but suspect NAC could be helping. Do check it out!



 
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Old Jun 30th, 2016, 15:31 PM   6
jules87
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I've deal with migraines since I was a kid. But, the chronic migraines started about 5 years ago. It took forever to find a good doctor.

Botox is fairly common for treatment, but you have to go through all the other options first. (Pills, therapy, testing, etc.) We actually haven't found a specific reason other than my Trapezius and neck muscles are almost always tights which then causes headaches for me.

Yay for a slightly easier to deal with period!



 
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Old Jul 2nd, 2016, 16:34 PM   7
mama.mouse
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Hi Jules! I'm Gina and I live a long way from you in South Africa. I am 27 and was also diagnosed with endo in 2014 although I suspect I have had it since I was about 16. Growing up I had godawful periods. On more than one occasion I leaked through onto my school dress and the pain was excruciating. My legs went lame, I often passed out, had to be sent home from school and on one occasion I was even hospitalised but everyone kept saying it was normal. I knew it wasn't though.

I saw 4 different docs before my gem of a gynae picked it up. Gynae says it was about stage 2-3. By the time I went to see him I had a sizeable cyst on my left ovary and a complex (2 in 1) cyst on my right that was almost 10cm. He says "How have you been walking around like this!" Had a laparascope in Dec 2014 and he said everything looked good and not to worry but a month later a new cyst had already developed. He put me on treatment for a month to shrink it and suggested we started TTC while my ovaries were in good shape. My mom had a hysterectomy at 29 due to severe endo so he didn't have to tell me twice! And here we are!

Endometriosis really is a terrible disease and we are just expected to be silent sufferers. So nice to have ladies to talk to.



 
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Old Jul 3rd, 2016, 17:33 PM   8
Unlucky41
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Mama congrats on conceiving naturally with endo. Did you take any supplements etc?
Are you trying for number two or too early?



 
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Old Jul 4th, 2016, 16:51 PM   9
mama.mouse
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Quote:
Originally Posted by Unlucky41 View Post
Mama congrats on conceiving naturally with endo. Did you take any supplements etc?
Are you trying for number two or too early?
Hi hun, we haven't gotten it right yet! Going on 15 months trying now. I have already tried Clomid, Femara, Ovitrelle shots etc but no luck. I went to see an RE and he put me on DHEA, Vitamin D3 and metformin. I also take natural supplements for stress because I suffer from chronic fatigue because I work in medicine. As if the universe was not cruel enough, we don't have the strongest swimmers on our team.

Jules you mentioned progesterone cream! As a result of endo my oestrogen and progesterone are imbalanced so my RE put me on natural progesterone cream but it gave me TERRIBLE depression and anxiety! Apparently it has that effect on 3% of women.



 
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Old Jul 5th, 2016, 00:22 AM   10
Unlucky41
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Mama sound like you are in good hands though. How are your cycles like? Is your AF still heavy and painful?

This is our 2nd cycle trying naturally but before that was trying ivf with no success. We are going backwards but trying to keep the faith. Just need one good egg.

Is your husband taking any supplements?



 
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