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Old Dec 22nd, 2017, 10:30 AM   11
SunnyBe
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I completely get feeling depressed month after month! We tried to conceive naturally for a year and after that jumped straight to IVF (cycle number 13).

No, insurance doesn't cover it and it's sooo expensive to do it over here in the US, so we went abroad for treatment last month. IVF comes with its own sets of (psychological) challenges though, as your chance to conceive suddenly goes from 5% to almost 50%. It's hard to keep expectations low when you have a 10-fold increase in the chance of it working.

For me, it helps to plan ahead or trying something different. So with trying naturally, we added different vitamins in the mix, tried Preseed... things like that.



 
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Old Jan 22nd, 2018, 14:14 PM   12
kjs1
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Thank you guys so much for these thoughtful replies and sharing your stories with me!! I'm sorry I haven't responded earlier! I set the 'subscribe to thread" but never got email alerts. I don't know why. I even checked my spam folder....

Anyway, it is very encouraging to read your stories and hear your perspectives on how to keep going. All of you are so strong and it is very inspiring to me. We are doing our 3rd IUI any day now and I am not feeling hopeful. I want to, but just can't today.

2have4kids, I am very intrigued by your immunology testing. I have an autoimmune disease (in remission) so I have always wondered if it contributes to our lack of a bfp. I've asked both my GI and RE and they say no women with my level of ulcerative colitis conceive at the same rates as women without. However, I am still curious about immunological testing and asked my RE but she said there is a lack of scientific evidence based research for it. So nothing to test me for in the US. But i feel like that is BS!! In other countries they are testing for NK cells, etc. I can't afford to take off work and go do this in other countries though. So, not sure how to proceed with this really.



 
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Old Jan 24th, 2018, 09:47 AM   13
2have4kids
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Quote:
Originally Posted by kjs1 View Post
Thank you guys so much for these thoughtful replies and sharing your stories with me!! I'm sorry I haven't responded earlier! I set the 'subscribe to thread" but never got email alerts. I don't know why. I even checked my spam folder....

Anyway, it is very encouraging to read your stories and hear your perspectives on how to keep going. All of you are so strong and it is very inspiring to me. We are doing our 3rd IUI any day now and I am not feeling hopeful. I want to, but just can't today.

2have4kids, I am very intrigued by your immunology testing. I have an autoimmune disease (in remission) so I have always wondered if it contributes to our lack of a bfp. I've asked both my GI and RE and they say no women with my level of ulcerative colitis conceive at the same rates as women without. However, I am still curious about immunological testing and asked my RE but she said there is a lack of scientific evidence based research for it. So nothing to test me for in the US. But i feel like that is BS!! In other countries they are testing for NK cells, etc. I can't afford to take off work and go do this in other countries though. So, not sure how to proceed with this really.
I was in the same boat in Canada, they simply don’t believe that autoimmune problems can effect fertility. It’s ridiculous. Have a thorough read over of the Dr Beers website in California. All we did was submit our forms, pay the fees, get the bloods done by a local lab and gave then the requisition forms from the Dr Beers clinic. The bloods were sent over night ($40) abd in about 3 weeks we had a written report and diagnosis of 3 major concerns. We did white blood cell treatment twice and I can give you the details if you ever need that if somehow your immune system is found to be rejecting everything (I can’t remember the proper name if it but basically I have an overactive immune system and what they do is very much like lessening severe allergy reactions by exposure). And the two clotting issues. Once I had dealt with those we concieved naturally and I had no more m/c’s. You do need to read alot on the studies, if a doctor is telling you immunes have nothing to do with it I’d look at Britains system. They are a public system and if they treat for something there’s very likely something backing it. Here’s a website full of NHS funded studies and the doc Beers site. Don’t be put off that the studies in the second link are all around miscarriage. It talks about fertility, loss, failure to implant, the gammut. It’s important to read as much as you can about fertility, and how you’re effecting your fertility through lifestyle (inflammation is the big problem for those of us with immune issues).

http://www.repro-med.net

https://sites.google.com/site/miscar...nd-miscarriage



 
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Old Jan 24th, 2018, 12:19 PM   14
kjs1
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Thank you a million times over for this useful information and the links!! I really appreciate it. We just did our 3rd IUI this morning and everything went perfectly. My husband's count was way higher this time at 64 million when the two times before it was 22 mil and 7 mil. So this is encouraging. In the meantime I am going to start reading through some of the suggested readings. I live in Los Angeles and did not know Dr. Beers clinic is in California. I am definitely going to look into immunological issues if this IUI doesn't work. I've also begun researching acupuncture for inflammation and may take a break from RE to try that. Or use it in conjunction with treatment.

Again, thank you very much for the helpful information!!!



 
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Old Jan 25th, 2018, 23:51 PM   15
2have4kids
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Wishing you a whole lot of baby dust!
Just remember as well, if you can’t afford treatments in the States, they’ve practically invented ivf in the Czech republic 20 years ago. Reprofit has super high rates of success and very low prices and Zlin has a gorgeous facility with accommodations & spa attached to the clinic. There are always different options. But first figure out what’s going on. You will succeed!



 
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Old Jan 29th, 2018, 08:50 AM   16
SunnyBe
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@2have4kids Yup, that's exactly what we did (albeit a different clinic in the Czech Republic). We spent less on the whole treatment, including meds and travel than we would have paid for just the meds in the US.



 
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Old Jan 29th, 2018, 09:38 AM   17
red_head
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Hope you don’t mind me weighing in - I’ve been ttc for 4 years, currently 9 weeks with my fourth pregnancy, but this will be our first child (hopefully) as the others left before 7 weeks each time. I’ve also been under investigation for crohns/ulcerated colitis recently too, and I have pcos (although this is in remission for the last year and a half), so we’re in a similar situation.
I found I have been so depressed with this whole process, really struggling at times. I was a pcos addict which I think was really unhelpful, so if you can try and avoid that habit! I found knowing a plan was really helpful, a few months in advance each time, and then a broader idea of what would happen at the end of that, so at least it felt things were moving in the right direction. I also quit social media completely (probably why I’m on here so much!) as it was too hard seeing all the babies and announcements! Even so, we had given up and decided to take a year break as I had had too much and couldn’t take anymore and the first month after deciding that we got our bfp!
On a different note, have you tried going gluten free? I know it sounds ridiculous but a couple months before I got pregnant with this one I stopped eating it because of the colitis at the recommendation of my doctor - after I fell pregnant my fertility doctor mentioned that may have contributed as it causes inflammation in the body which your immune system fights (I think that’s what he said), especially Wilburn you have gastro issues anyway, which can make it hard to get or stay pregnant. Even if this pregnancy isn’t successful it’s the longest lasting one and my lab results have all come back better by a large margin so I do think it may have helped. Id have tried it years ago if I’d have known!
Good luck with your iui



 
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Old Jan 29th, 2018, 20:15 PM   18
kjs1
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I’m so glad you weighed in! Thank you for the encouragement and suggestions! I agree with you about social media. I actually just deleted my Facebook app earlier this week. It has helped so far. I’ve had a gluten tolerance test before and it was negative. However I agree with you that gluten and sugar cause inflammation and that is not good for us with inflammation conditions. I’ve cut out a lot of gluten and sugar but not all actually. Im on the lowest remission maintenance for my UC and it’s safe to take in pregnancy. So I’m feeling healthy. But could use to lose about seven to ten pounds probably. I really hope this pregnancy sticks for you. I went over and read some of your journal and you are very very strong. I’m very inspired by your tenacity and will be checking in to see how you are doing. Hoping this is the dream for you!



 
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Old Jan 30th, 2018, 07:00 AM   19
red_head
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My tolerance was fine too! Just one of those weird things! I’m going to try cutting out sugar too as I didn’t realise that could help my stomach I don’t eat a lot of it but anything is worth trying.
Thank you for your lovely thoughts - hope you get your BFP soon too x



 
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Old Jan 30th, 2018, 12:11 PM   20
2have4kids
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I spent 4 years with a perfect diet, lost 60+ pounds when my nurse bff told me I might not respond to ivf drugs and might be struggling to have hormones work with extra fat on me (was a bmi of 30) and experimenting with all sorts of supplements. While it’s very much worth getting to a normal bmi and reducing inflammation by eating well, if you still can’t concieve you really should be tested for immune problems. Get to the root of the problem & don’t waste time. We have a small window to do all these things (I mean it took me a whole year to lose that weight and then at least I started getting bfp’s now and then but they always ended in chemicals or mc (3 in total). Don’t get bogged down in smaller things when it may be something bigger you need to tackle!



 
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