Endo Advice please - Page 2

daisii · Oct 12th, 2010, 13:53 PM

don't let them fob you off! I was fobbed off by 2 Dr's when I saw the Dr who sent me for Lap I burst into tears that I was finally believed! Be persistant and if one Dr fob's you off go to a different one! I was lucky there are so many Drs at the same practice!

floofymad · Oct 12th, 2010, 14:04 PM

Thanks Daisii
I've already been to about 6 different ones about my endo! They were all a$$ !%£*& and noone would refer me. One hadn't even heard of endo! F x this one knows!

PR&TR13 · Oct 12th, 2010, 14:12 PM

Floofymad - if a doc has never heard of endo you just pick up your stuff and leave!!!!

That's crazy!!!! But I agree with everyone else you need to keep on going and not give up. There is a solution for everything you just have to find a doc who's will to try and work with you on the different solutions!!!

I thank God for my FS he's wonderful!!!! He keeps reassuring me that it will workout and not to worry that he will do everything in his hands to give me a baby! Seriously he says it to the point where I complelty believe him and put it in his hands. At first I was a little hesitant b/c I wanted him to just draw the plan and let my OB do the plan but he said nope I'm going to see you and I'm going to go all the way through and after you are prg then I'll send you back to your OB. I'm glad he did!!!

Best of luck hope whatever you decide will give you that BFP!!!

floofymad · Oct 12th, 2010, 14:20 PM

Thanks PR&TR13! Am really hoping she's going to refer me on so someone can give me some help. My previous docs and gyno said that there's none on my ovaries so therefore we'll have no probs conceiving but they don't have any explanation for the pain I'm always in and can't offer a solution. They also won't acknowledge that endo can cause fertility problems if it's not on your ovaries, but I've read so many sites and books that give loads of reasons why it can affect it.
Thanks for everyone's advice x x

floofymad · Oct 13th, 2010, 11:39 AM

So it went well and I'm so relieved! she was lovely and really understanding. At first she said maybe my gyno was right that I should go on hormone injections, but asked me to decide what was more important to me: getting pregnant or controlling the pain. I said the first one, so to cut a long story short, she's referring us on, and said we're nearly at the 12 month mark anyway. Having 21 day bloods done Monday evening and then got appt 2 weeks from then to be referred.
She said the NHS fertility have to see us within 18 weeks of the referral!!! Think we may decide to go private; that's a long time to wait! We both agreed that if I could get pregnant that it would help with the endo anyway.

So pleased that I feel like I've got somewhere.
Thanks to everyone for their help x x

daisii · Oct 13th, 2010, 13:01 PM

so pleased you are on the road to getting it sorted. Good Luck

Bebecake · Oct 14th, 2010, 19:38 PM

I have stage 2 endo. I had two laps, one hysteroscopy and 2 dyes. I always felt pain after my laps... Fortunately, stage 1-4... you CAN get pregnant. I had endo all through my stomach cavity including the ovaries. I had several cysts removed too... I did have to resort to IVF, but it eventually worked.

I have stuck to non dairy foods and protein shakes to help with the endo. I fo think the change in diet helped

Endo definitely can be a factor in infertility. Your body secretes toxins into your body that trick you into early m/c. That is why IVF works so well wirh endo patients.

Good luck!! Everyone is different, so you could easily be one that gets preggo on your first round of clomid

looknomore · Oct 14th, 2010, 22:30 PM

Hey bebecake- Congrats of ur BFP. Just wanted to clarify- do u have stage 2 endo currently as in after the Lap or was it stage 2 before the Lap. I ask this cos I had stage 4 endo diagnosed which was reduced to stage 2 during Lap. Doc cud not remove the endo on intestines and bowel as thats a specialized surgery. I decided to go on with an IVF without the hormone treatment and hoping this IVF works otherwise i will have to be on hormone treatment.

floofymad · Oct 15th, 2010, 11:39 AM

Quote:

Originally Posted by Bebecake

I have stage 2 endo. I had two laps, one hysteroscopy and 2 dyes. I always felt pain after my laps... Fortunately, stage 1-4... you CAN get pregnant. I had endo all through my stomach cavity including the ovaries. I had several cysts removed too... I did have to resort to IVF, but it eventually worked.

I have stuck to non dairy foods and protein shakes to help with the endo. I fo think the change in diet helped

Endo definitely can be a factor in infertility. Your body secretes toxins into your body that trick you into early m/c. That is why IVF works so well wirh endo patients.

Good luck!! Everyone is different, so you could easily be one that gets preggo on your first round of clomid

Thanks Bebecake. I cut out wheat for about 10 days and only had 1 day of pain, which was a massive improvement, however the last 5 days it's come back and quite painful. Changed to goat's cheese and goat's milk, but think I'm still eating some dairy here and there x What kind of protein shakes are you having?... x

Oct 12th, 2010, 13:53 PM	#11
daisii Mum (Mom) Active BnB Member Join Date: Aug 2009 Location: Midlands UK Posts: 746	don't let them fob you off! I was fobbed off by 2 Dr's when I saw the Dr who sent me for Lap I burst into tears that I was finally believed! Be persistant and if one Dr fob's you off go to a different one! I was lucky there are so many Drs at the same practice!

Status: Offline

Oct 12th, 2010, 14:04 PM	#12
floofymad Trying to conceive (TTC) BnB Addict Join Date: May 2010 Location: Teesside UK Posts: 3,347	Thanks Daisii I've already been to about 6 different ones about my endo! They were all a$$ !%£*& and noone would refer me. One hadn't even heard of endo! F x this one knows!

Status: Offline

Oct 12th, 2010, 14:12 PM	#13
PR&TR13 Trying to conceive (TTC) Active BnB Member Join Date: Aug 2010 Posts: 321	Floofymad - if a doc has never heard of endo you just pick up your stuff and leave!!!! That's crazy!!!! But I agree with everyone else you need to keep on going and not give up. There is a solution for everything you just have to find a doc who's will to try and work with you on the different solutions!!! I thank God for my FS he's wonderful!!!! He keeps reassuring me that it will workout and not to worry that he will do everything in his hands to give me a baby! Seriously he says it to the point where I complelty believe him and put it in his hands. At first I was a little hesitant b/c I wanted him to just draw the plan and let my OB do the plan but he said nope I'm going to see you and I'm going to go all the way through and after you are prg then I'll send you back to your OB. I'm glad he did!!! Best of luck hope whatever you decide will give you that BFP!!!

Status: Offline

Oct 12th, 2010, 14:20 PM	#14
floofymad Trying to conceive (TTC) BnB Addict Join Date: May 2010 Location: Teesside UK Posts: 3,347	Thanks PR&TR13! Am really hoping she's going to refer me on so someone can give me some help. My previous docs and gyno said that there's none on my ovaries so therefore we'll have no probs conceiving but they don't have any explanation for the pain I'm always in and can't offer a solution. They also won't acknowledge that endo can cause fertility problems if it's not on your ovaries, but I've read so many sites and books that give loads of reasons why it can affect it. Thanks for everyone's advice x x

Status: Offline

Oct 13th, 2010, 11:39 AM	#15
floofymad Trying to conceive (TTC) BnB Addict Join Date: May 2010 Location: Teesside UK Posts: 3,347	So it went well and I'm so relieved! she was lovely and really understanding. At first she said maybe my gyno was right that I should go on hormone injections, but asked me to decide what was more important to me: getting pregnant or controlling the pain. I said the first one, so to cut a long story short, she's referring us on, and said we're nearly at the 12 month mark anyway. Having 21 day bloods done Monday evening and then got appt 2 weeks from then to be referred. She said the NHS fertility have to see us within 18 weeks of the referral!!! Think we may decide to go private; that's a long time to wait! We both agreed that if I could get pregnant that it would help with the endo anyway. So pleased that I feel like I've got somewhere. Thanks to everyone for their help x x

Status: Offline

Oct 13th, 2010, 13:01 PM	#16
daisii Mum (Mom) Active BnB Member Join Date: Aug 2009 Location: Midlands UK Posts: 746	so pleased you are on the road to getting it sorted. Good Luck

Status: Offline

Oct 14th, 2010, 19:38 PM	#17
Bebecake Mum (Mom) Active BnB Member Join Date: Jan 2009 Location: Texas Posts: 708	I have stage 2 endo. I had two laps, one hysteroscopy and 2 dyes. I always felt pain after my laps... Fortunately, stage 1-4... you CAN get pregnant. I had endo all through my stomach cavity including the ovaries. I had several cysts removed too... I did have to resort to IVF, but it eventually worked. I have stuck to non dairy foods and protein shakes to help with the endo. I fo think the change in diet helped Endo definitely can be a factor in infertility. Your body secretes toxins into your body that trick you into early m/c. That is why IVF works so well wirh endo patients. Good luck!! Everyone is different, so you could easily be one that gets preggo on your first round of clomid

Status: Offline

Oct 14th, 2010, 22:30 PM	#18
looknomore Mum (Mom) Active BnB Member Join Date: Feb 2010 Posts: 259	Hey bebecake- Congrats of ur BFP. Just wanted to clarify- do u have stage 2 endo currently as in after the Lap or was it stage 2 before the Lap. I ask this cos I had stage 4 endo diagnosed which was reduced to stage 2 during Lap. Doc cud not remove the endo on intestines and bowel as thats a specialized surgery. I decided to go on with an IVF without the hormone treatment and hoping this IVF works otherwise i will have to be on hormone treatment.

Status: Offline

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