Endo Advice please

floofymad · Oct 4th, 2010, 15:14 PM

Hi,

Was hoping someone could offer me some advice on what I should do.

Had a lap in July to remove my endo (stage 3) think it was cauterised off and the gyno said he got what he could see.
Downside is I'm no better since. AF is actually more painful. 11months ttc and nothing. Went back to see my gyno who said either take painkillers and keep trying or go on hormone injections.
Obviously just want to conceive, so not sure what to do now.
Is there anything that can help us ttc? Am taking the usual prenatals and have tried supplements and now on maca.
The pain is sometimes really bad, but if I knew we could conceive I'd try my best to put up with it.

Booked a docs appt for next week for some advice too, but hopefully you girls can offer some advice first and then I can go pre-armed!

Thanks x x

looknomore · Oct 4th, 2010, 23:45 PM

Hey floofymad- I also had my Lap in July and was diagnosed with Stage 4. A lot of the endo was removed but my doc said that its not always possible to remove 100%. Even if microscopic endo is left it can cause problems in TTC. She has advised me to go on Lupride shots for 3 months which kills endo 100% and relieves painful symptoms. Unfortunately this treatment comes with a lot of side effects. I am currently trying an IVF and if it doesnt work I will go on to the shots. The thing is that Endo does reduce fertility in women and the best chances of conception r within 1st year of lap, so moving on to fertility treatments makes sense.

fifi-folle · Oct 5th, 2010, 06:43 AM

Hi floofy
I'm in the same position as you, except I've not had a lap since june 09, did zoladex jan - june 09. Zoladex is supposed to help you conceive, but 6 months is a long time when you want a baby. There are alternative therapies and approaches, such as the endo diet or acupuncture and chinese medicine (the latter two helped us conceive but not stay pregnant).
I'd be interested to hear what is suggested to you!

floofymad · Oct 5th, 2010, 11:50 AM

Thanks guys.
I want to conceive as soon as possible to get control of this endo and the longer it takes, the worse it'll be. But every time I ask a doctor or my gyno, they just play it down and say I've got to wait like everyone else and just keep trying. I'm currently trying the endo diet (sort of) well am trying to eat better and reduce wheat. I've had 2 reikis and the woman who does them says it'll be helping. Also considering acupuncture or reflexology.
Did you find acupuncture good fifi?x

daisii · Oct 5th, 2010, 12:39 PM

clomid worked for me following lap, you could ask for that!? I was put on it as told my best chance of conceiving would be the 6-12 months following lap.

Good luck.

dreamofabean · Oct 5th, 2010, 12:50 PM

Hey floofy,
i dont have any advice but can only say only go on the hormone treatment as a last option! I was on prostap for 3 months after my lap and now im clomid as my ovaries havent wanted to work since!! I wish id known the side effects as i wouldnt have taken it xxx

floofymad · Oct 5th, 2010, 13:31 PM

Quote:

Originally Posted by daisii

clomid worked for me following lap, you could ask for that!? I was put on it as told my best chance of conceiving would be the 6-12 months following lap.

Good luck.

Thank you.
Did they have a specific reason for giving you it? i.e. were you ovulating or not? or did they just want to give you a boost?
Congratulation; hope everything's going well

daisii · Oct 5th, 2010, 14:36 PM

it was just to give me a boost. I got positive ov tests before, but the fertility woman thought that as the 6 months after the lap are the best for fertility, then a boost was a good idea. I was given 3 months worth of 100mg a day to take days 2-6.

Hope this helps.

good luck

fifi-folle · Oct 5th, 2010, 15:53 PM

Acupuncture was helpful, conceived three times whilst going for it, it relaxed me and I think it helped my endo, wish I had been able to afford to carry on to say for certain, but the Chinese have been using it for centuries so it must have some use!!!

floofymad · Oct 12th, 2010, 13:45 PM

Off to the doctors tomorrow to ask for some help and advice.
Had ten days with barely any pain, which I put down to the dandelion root I'd started taking and the exclusion of wheat. However came back Sun night and has been really bad today.

Really hope the doc is understanding and doesn't fob me off.

Oct 4th, 2010, 15:14 PM	#1
floofymad Trying to conceive (TTC) BnB Addict Join Date: May 2010 Location: Teesside UK Posts: 3,352	Endo Advice please Hi, Was hoping someone could offer me some advice on what I should do. Had a lap in July to remove my endo (stage 3) think it was cauterised off and the gyno said he got what he could see. Downside is I'm no better since. AF is actually more painful. 11months ttc and nothing. Went back to see my gyno who said either take painkillers and keep trying or go on hormone injections. Obviously just want to conceive, so not sure what to do now. Is there anything that can help us ttc? Am taking the usual prenatals and have tried supplements and now on maca. The pain is sometimes really bad, but if I knew we could conceive I'd try my best to put up with it. Booked a docs appt for next week for some advice too, but hopefully you girls can offer some advice first and then I can go pre-armed! Thanks x x

Status: Offline

Oct 4th, 2010, 23:45 PM	#2
looknomore Mum (Mom) Active BnB Member Join Date: Feb 2010 Posts: 259	Hey floofymad- I also had my Lap in July and was diagnosed with Stage 4. A lot of the endo was removed but my doc said that its not always possible to remove 100%. Even if microscopic endo is left it can cause problems in TTC. She has advised me to go on Lupride shots for 3 months which kills endo 100% and relieves painful symptoms. Unfortunately this treatment comes with a lot of side effects. I am currently trying an IVF and if it doesnt work I will go on to the shots. The thing is that Endo does reduce fertility in women and the best chances of conception r within 1st year of lap, so moving on to fertility treatments makes sense.

Status: Offline

Oct 5th, 2010, 06:43 AM	#3
fifi-folle Mum (Mom) BnB Addict Join Date: Oct 2009 Location: Fife, Scotland Posts: 2,973	Hi floofy I'm in the same position as you, except I've not had a lap since june 09, did zoladex jan - june 09. Zoladex is supposed to help you conceive, but 6 months is a long time when you want a baby. There are alternative therapies and approaches, such as the endo diet or acupuncture and chinese medicine (the latter two helped us conceive but not stay pregnant). I'd be interested to hear what is suggested to you!

Status: Offline

Oct 5th, 2010, 11:50 AM	#4
floofymad Trying to conceive (TTC) BnB Addict Join Date: May 2010 Location: Teesside UK Posts: 3,352	Thanks guys. I want to conceive as soon as possible to get control of this endo and the longer it takes, the worse it'll be. But every time I ask a doctor or my gyno, they just play it down and say I've got to wait like everyone else and just keep trying. I'm currently trying the endo diet (sort of) well am trying to eat better and reduce wheat. I've had 2 reikis and the woman who does them says it'll be helping. Also considering acupuncture or reflexology. Did you find acupuncture good fifi?x

Status: Offline

Oct 5th, 2010, 12:39 PM	#5
daisii Mum (Mom) Active BnB Member Join Date: Aug 2009 Location: Midlands UK Posts: 746	clomid worked for me following lap, you could ask for that!? I was put on it as told my best chance of conceiving would be the 6-12 months following lap. Good luck.

Status: Offline

Oct 5th, 2010, 12:50 PM	#6
dreamofabean Trying to conceive (TTC) BnB Elite Join Date: Feb 2010 Location: UK Posts: 12,846	Hey floofy, i dont have any advice but can only say only go on the hormone treatment as a last option! I was on prostap for 3 months after my lap and now im clomid as my ovaries havent wanted to work since!! I wish id known the side effects as i wouldnt have taken it xxx

Status: Online

Oct 5th, 2010, 14:36 PM	#8
daisii Mum (Mom) Active BnB Member Join Date: Aug 2009 Location: Midlands UK Posts: 746	it was just to give me a boost. I got positive ov tests before, but the fertility woman thought that as the 6 months after the lap are the best for fertility, then a boost was a good idea. I was given 3 months worth of 100mg a day to take days 2-6. Hope this helps. good luck

Status: Offline

Oct 5th, 2010, 15:53 PM	#9
fifi-folle Mum (Mom) BnB Addict Join Date: Oct 2009 Location: Fife, Scotland Posts: 2,973	Acupuncture was helpful, conceived three times whilst going for it, it relaxed me and I think it helped my endo, wish I had been able to afford to carry on to say for certain, but the Chinese have been using it for centuries so it must have some use!!!

Status: Offline

Oct 12th, 2010, 13:45 PM	#10
floofymad Trying to conceive (TTC) BnB Addict Join Date: May 2010 Location: Teesside UK Posts: 3,352	Off to the doctors tomorrow to ask for some help and advice. Had ten days with barely any pain, which I put down to the dandelion root I'd started taking and the exclusion of wheat. However came back Sun night and has been really bad today. Really hope the doc is understanding and doesn't fob me off.

Status: Offline

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