(((hugs))) so sorry to hear of the loss of Maeve. I can answer in some part some of your questions, the following maybe upsetting but if I tell you my story it may help. My waters went without warning at 20.6 weeks - I was hospitalised and told I would go into labour within 24 - 72 hours and for the first time of many offered a TFMR. I remember talking to the pedeatrician (sorry cant spell it) when I got to 23 week... we felt we were on borrowed time having got this far - (this is the bit that may be upsetting) he told me that they if babies are born under 24 weeks the midwife assesses them - if she think they look older than expected i.e by dates they think baby is 22 weeks but it is born looking more like 24 weks they call the pedeatricians and try and resuss the baby. The same if true on the opposite side. He said the reason they don't resuss babies under 24 weeks if because they can't - the breathing tubes are as small as they can possibly been but still too big for babies under 24 weeks. He also said alot about intensive intervention the hurt it can cause the baby and the long term prognosis of a 23 weeker if they could revive/keep them alive (he himself had been a doctor to one 23 weeker who survived). It was a VERY hard and a conversation that cause me specifically so much pain, hearing these harsh words - but the pedeatrician was lovely, but what he said was his opinon as the head guy. He agreed that if he was called to our baby before 24 weeks he would come and personally asses the baby but he could not gurantee his collegues were. So often they do nothing cause they can't - I can not even imagine how hard that was to go through and my heart went out to you reading Maeves birth story.
Our son William (Billy) was born at 27.1 weeks (the magic date I was trying to get to was 27 weeks) but for our son it was no avail, his lungs weren't developed enough, he did not cry, I heard him gasp but he did not cry, and he lived 4 hours after birth.
PPROM is absolutely devestating and the devestation for me was made worse due to the lack of information on the condition and the lack of understanding of it - Kym marsh lost her baby arcie to it as well. I have done so much reserach into PPROM and think I have read everything there is out there about it as I said not much out there - I had none of the warning signs. The one thing I was lucky with was that the hospital was very helpful (I was in there 6 1/2 weeks) which did make things easier. I can't think of anything else they said at the moment that might be of any use. I know that they told me that me having pprom was just 'one of those things' in someways it helps in someways it doesn't.
I hope this reply is o.k as I don't want to cause you more pain but thought it may help to know what i was told.
So sorry that you have suffered PPROM too, it did help. Painful reading, Its horrible knowing others have suffered this too.
It answered my questions about why they did nothing.
I know what caused my PPROM, I believe it was bleeding caused by a clotting disorder.
I am waiting for a formal confirmation of this, but I have Lupus and suffered with some terrible bleeds, almost hemmorages from early on. Every time I begged them to tell my Lupus consultant and do some coag tests, every time they ignored me, untill clots and blood popped my waters at 18 weeks, far to early for her little lungs to develop.
I am so sorry for your loss and thank you
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