One thing after another

Miss Mitch · Feb 27th, 2012, 04:57 AM

As some of you may know, I delivered Olivia on 18th Jan at 21 weeks, unfortunately our angel was stillborn.... Now, I had blood tests before my d+c on the 15th Jan and the results have just come back (I haven't had Olivia's post portem results yet). It came back positive for antibodies, and they 'think' I may have something called crest syndrome. I know nothing else, and i'm waitinf for an app. I have so many questions and worries...will I ever have another baby? Will my antibodies attack every pregnancy? Can they do anything to prevent this?

Why is everything so difficult for us, why can't I just be 'normal' and not have something that could potentially attack my child? Does anyone know anything about this?

Thank you xx

dancareoi · Feb 27th, 2012, 05:22 AM

Quote:

Originally Posted by Miss Mitch

As some of you may know, I delivered Olivia on 18th Jan at 21 weeks, unfortunately our angel was stillborn.... Now, I had blood tests before my d+c on the 15th Jan and the results have just come back (I haven't had Olivia's post portem results yet). It came back positive for antibodies, and they 'think' I may have something called crest syndrome. I know nothing else, and i'm waitinf for an app. I have so many questions and worries...will I ever have another baby? Will my antibodies attack every pregnancy? Can they do anything to prevent this?

Why is everything so difficult for us, why can't I just be 'normal' and not have something that could potentially attack my child? Does anyone know anything about this?

Thank you xx

I am really sorry for your loss. Sorry, but I know nothing of this problem, but i am sure the doctors will be able to advise you further and advise a course of action.
My sister had two MMc in her first two pregnancies, it wasn`t crest syndrome, hers was due to her Rhesus negative blood, an anti-d injection was given and she then had two little girls. It could be something as simple as that.

Miss Mitch · Feb 27th, 2012, 05:43 AM

Quote:

Originally Posted by dancareoi

Quote:

Originally Posted by Miss Mitch

As some of you may know, I delivered Olivia on 18th Jan at 21 weeks, unfortunately our angel was stillborn.... Now, I had blood tests before my d+c on the 15th Jan and the results have just come back (I haven't had Olivia's post portem results yet). It came back positive for antibodies, and they 'think' I may have something called crest syndrome. I know nothing else, and i'm waitinf for an app. I have so many questions and worries...will I ever have another baby? Will my antibodies attack every pregnancy? Can they do anything to prevent this?

Why is everything so difficult for us, why can't I just be 'normal' and not have something that could potentially attack my child? Does anyone know anything about this?

Thank you xx

I am really sorry for your loss. Sorry, but I know nothing of this problem, but i am sure the doctors will be able to advise you further and advise a course of action.
My sister had two MMc in her first two pregnancies, it wasn`t crest syndrome, hers was due to her Rhesus negative blood, an anti-d injection was given and she then had two little girls. It could be something as simple as that.

I am rhesus negative, but when I asked whether this could cause stillbirth they said no?

I had the anti-d after olivia for it. Why can't I get a straight answer, I just want answers xx

Andypanda6570 · Feb 27th, 2012, 06:22 AM

I am so sorry and I agree we never get a break, it is always one thing after the other

I know nothing of this problem either, sorry. I just hope you get some straight answers already so you can move on from that and know what is happening with your body .
I am here if you ever need a friend..

Miss Mitch · Feb 27th, 2012, 06:27 AM

Quote:

Originally Posted by Andypanda6570

I am so sorry and I agree we never get a break, it is always one thing after the other

I know nothing of this problem either, sorry. I just hope you get some straight answers already so you can move on from that and know what is happening with your body .
I am here if you ever need a friend..

Thanks andy, dr google doesn't help either, why do i do it to myself! I want to call someone to find out when Olivia's results will be ready but I dion't know who! xx

Krippy · Feb 27th, 2012, 09:06 AM

Sorry to hear Mrs. Mitch. I do not know about your syndrome but after my pregnancy with RJ my thyroid levels were everywhere and now I have been diagnosed with Hashimoto's disease, an auto-immune disease that causes antibodies to attack my thyroid. Different disease than yours but the same result. We have not been able to TTC since RJ and even had a loss because of it. Now I am on meds for the rest of my life and my Dr. reassures me that I will be able to conceive again but it is so heartbreaking that this all had to happen....to us...When will the bad news stop...I absolutely understand what you are going through. Not only one horrible thing as happened to you but they keep on coming....If you ever need to PM for some support...I am here for you!

Miss Mitch · Feb 27th, 2012, 09:46 AM

Quote:

Originally Posted by Krippy

Sorry to hear Mrs. Mitch. I do not know about your syndrome but after my pregnancy with RJ my thyroid levels were everywhere and now I have been diagnosed with Hashimoto's disease, an auto-immune disease that causes antibodies to attack my thyroid. Different disease than yours but the same result. We have not been able to TTC since RJ and even had a loss because of it. Now I am on meds for the rest of my life and my Dr. reassures me that I will be able to conceive again but it is so heartbreaking that this all had to happen....to us...When will the bad news stop...I absolutely understand what you are going through. Not only one horrible thing as happened to you but they keep on coming....If you ever need to PM for some support...I am here for you!

Thanks Krippy

I haven't been officially diagnosed yet but the doctor seems to think this could be it

When antibodies attacc the baby, is there any 'magic injection' that stops it? That puts like, 'good antibodies' in you? Sorry to sound childish but I don't know how else to word it xx

Krippy · Feb 27th, 2012, 10:30 AM

I think if they find out why the antibodies are attacking you and what they are attacking they can regulate your body to support your pregnancy but it depends on what kind of auto-immune disorder you have. I have 2 auto-immune disorders, celiac and hashimoto's, and they are regulated with diet and meds. There have been many success stories with my disorders but I am not sure about yours...I actually haven't heard of it before. I hope you get some news soon even if it is just a plan of action. The sooner you know the sooner you can keep moving forward! Thinking of you!

Miss Mitch · Feb 27th, 2012, 10:46 AM

Quote:

Originally Posted by Krippy

I think if they find out why the antibodies are attacking you and what they are attacking they can regulate your body to support your pregnancy but it depends on what kind of auto-immune disorder you have. I have 2 auto-immune disorders, celiac and hashimoto's, and they are regulated with diet and meds. There have been many success stories with my disorders but I am not sure about yours...I actually haven't heard of it before. I hope you get some news soon even if it is just a plan of action. The sooner you know the sooner you can keep moving forward! Thinking of you!

Thanks Krippy, I hope so too. If you can across any do let me know, I can't find anything good on it xxx

jojo23 · Feb 27th, 2012, 12:08 PM

hi hun dont know anything bout this syndrome but just wanted to send some hugs your way! im sure the doctor will give you loads of info and hopefully send you in the right direction xxxxxx

Feb 27th, 2012, 04:57 AM	#1
Miss Mitch Waiting To Try (WTT) Active BnB Member Join Date: Sep 2011 Location: Kent, England Posts: 539	One thing after another As some of you may know, I delivered Olivia on 18th Jan at 21 weeks, unfortunately our angel was stillborn.... Now, I had blood tests before my d+c on the 15th Jan and the results have just come back (I haven't had Olivia's post portem results yet). It came back positive for antibodies, and they 'think' I may have something called crest syndrome. I know nothing else, and i'm waitinf for an app. I have so many questions and worries...will I ever have another baby? Will my antibodies attack every pregnancy? Can they do anything to prevent this? Why is everything so difficult for us, why can't I just be 'normal' and not have something that could potentially attack my child? Does anyone know anything about this? Thank you xx

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Feb 27th, 2012, 06:22 AM	#4
Andypanda6570 Mum (Mom) BnB Addict Join Date: Nov 2009 Location: NEW YORK Posts: 5,240	I am so sorry and I agree we never get a break, it is always one thing after the other I know nothing of this problem either, sorry. I just hope you get some straight answers already so you can move on from that and know what is happening with your body . I am here if you ever need a friend..

Status: Offline

Feb 27th, 2012, 09:06 AM	#6
Krippy Waiting To Try (WTT) BnB Addict Join Date: Oct 2011 Location: Canada Posts: 2,738	Sorry to hear Mrs. Mitch. I do not know about your syndrome but after my pregnancy with RJ my thyroid levels were everywhere and now I have been diagnosed with Hashimoto's disease, an auto-immune disease that causes antibodies to attack my thyroid. Different disease than yours but the same result. We have not been able to TTC since RJ and even had a loss because of it. Now I am on meds for the rest of my life and my Dr. reassures me that I will be able to conceive again but it is so heartbreaking that this all had to happen....to us...When will the bad news stop...I absolutely understand what you are going through. Not only one horrible thing as happened to you but they keep on coming....If you ever need to PM for some support...I am here for you!

Status: Offline

Feb 27th, 2012, 10:30 AM	#8
Krippy Waiting To Try (WTT) BnB Addict Join Date: Oct 2011 Location: Canada Posts: 2,738	I think if they find out why the antibodies are attacking you and what they are attacking they can regulate your body to support your pregnancy but it depends on what kind of auto-immune disorder you have. I have 2 auto-immune disorders, celiac and hashimoto's, and they are regulated with diet and meds. There have been many success stories with my disorders but I am not sure about yours...I actually haven't heard of it before. I hope you get some news soon even if it is just a plan of action. The sooner you know the sooner you can keep moving forward! Thinking of you!

Status: Offline

Feb 27th, 2012, 12:08 PM	#10
jojo23 Pregnant (Expecting) Chat Happy BnB Member Join Date: Jan 2011 Location: ireland Posts: 1,627	hi hun dont know anything bout this syndrome but just wanted to send some hugs your way! im sure the doctor will give you loads of info and hopefully send you in the right direction xxxxxx

Status: Offline

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