I can so sympathise with the cramping. For months I used to have a constant dull ache a few days after ovulation until my period followed by heavy bleeding and clots. Now the cramping can occur at any time and to be honest I don't know if it is the adenomyosis or endo. And when the cramping comes on it takes ages to go, if at all until my next period. It is such a deblitating disease for us to deal with. That is why I am so careful with what I eat as for me it does help. I feel positive this week as I enjoy this bit of the trying as there is hope of getting pregnant.
I have never had a problem getting pregnant. I have had 5 children and have always concieved within 3-4 weeks of trying. Since having Endo issues, my right ovary out and adenomysosis recently suspected... I can not get pregnant even though they have me tracking my ovualtion and all seems well. This is our last chance for another before I have a Hysterectomy... If I can get pregnant. Then doctor doesn't want me to wait long, but said if I do get pregnant the chances of the condition getting worse while are slim to none, but would need to be addressed right after if I can have another. She gave me about 6 months or less of trying .. Less if I start to get any worse. Soooo We will see what happens.. I am praying hard that all will work out.
Hi ladies, thought I'd join. I've been feeling very alone with this adenomyosis diagnosis. I'm 36 and have had 3 miscarriages. I don't have any children. I was diagnosed with adenomyosis by an MRI after my last miscarriage. I've been told by 3 specialists that it is located at the top of my uterus and is pushing down on it, causing an abnormal shape. All 3 specialists have said that embryos tend to implant in the exact spot that I have the adeno, and it is most likely causing my mcs. Because of it, I'm not a candidate for IVF. On top of it all, I ovulate late. So, I've been taking Femara to help me ovulate. I've taken it for 3 cycles with no luck. I was told that in my case, I need to keep trying and hope that one sticks in the right place. But I was told it is going to be a numbers game and that I face more miscarriages.
I found a specialist recently who has told me I'm a candidate for surgery. It would be endoscopic surgery to remove the tissue. I'm really scared now. I want to have a baby so badly and am scared to have surgery on my uterus. But the other option is facing more miscarriages.
Anyway, I just wanted to say hello to some fellow women with the same diagnosis. We are a small group. I'm encouraged that some of you have children and are pregnant again.
Hey heart tree - so sorry you hear you have had such a rough time trying to get a sticky bean. I have been told that an embryo can implant anywhere - so hopefully it is just a matter of time before you get that sticky bean. I really hope so. As you say, IVF is of no help if you have significant adenomyosis, but people do get pregnant with it, so please keep the faith
Thanks Mushy, I appreciate it. I know they can implant anywhere, but I've been told that where mine is located is the preferred place where they like to implant. Who knew there was a preferred place! LOL!
I'm moving forward with surgery I think. If nothing else, I would like to have less painful periods. Last cycle I had to take Vicodin for the pain. It felt as painful as a miscarriage.
I'm really excited to see that you are 15 weeks along. It really gives me hope.
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