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Old Feb 20th, 2012, 16:57 PM   1
kcarey77
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Severely blocked fellopian tubes and pregnancy


I had an HSG done last year that showed my tubes were open (dye came out ends) so I went on to a diagnostic laparoscopy with chrommotubation last week to check for endometriosis or any other disease preventing my husband and I from coneiving our first child after 3 years of desperately trying.
My doctor told me both tubes were blocked and he opened them slightly with a laser but they will not remain open. He said the only choices we had were abdominal surgery to "fillet" my tubes and open them up or IVF. Insurance will not cover either option. If we TTC while they are slightly open our chances of an eptopic preganncy is greater than 50%.
I desperately wanted to be the large percent of people that had a laparoscopy and got pregnant months after, but this is not my case. He said we will have a very difficult time achieving pregnancy. We are so upset at weighing our options, but was looking for similiar situations out there first.
Has anyone had both tubes blocked (distal end) and had a successful pregnancy? Whether with IVF or tubal surgery?



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Old Feb 23rd, 2012, 09:13 AM   2
Anne24
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I have heard hydrotubation is an option and a good option.There's a 68% chance of unblocking the tubes with this process. I too have been diagnosed with two blocked tubes-one proximal and the other showed no spillage. I am seeing a FS day after tomorrow to know about my chances of opening the tubes.Wonder if you can suggest hydrotubation to your doctor?



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Old Feb 23rd, 2012, 12:53 PM   3
kcarey77
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Thanks so much a reply! I know fimrioblasty is an option (I watched the procedure done on YouTube) and its pretty basic. My OBGYN said he could not do the surgery laparoscopically and I know it can be done. I am changing both my OBGYN and my RE in March. I really think he could have done more during my last surgery, perhaps he just wasn't qualified or experienced enough. I have heard good and bad with the hydrotubation. Surgery to open tubes in general can create scar tissue and lower chances. At my age, he said not to bother with surgery . I didn't want to hear that because I just turned 34 and I have friends in their late 30's having healthy babies!
How did you find out your tubes were blocked? And HSG or laparoscopy? An HSG is not very accurate (40% misdiagnosis for blocked tubes due to spasms). I would love to stay in contact through this emotional journey with you. I'm not finding many people with 2 blocked tubes and successful pregnancy after. I wish you well and baby dust to you!



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Old Feb 25th, 2012, 23:27 PM   4
Anne24
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Hey WE can always stay in touch with each other hun. You can always PM me here WE can at least share each other's problem. I had an HSG to show my blocked tubes I asked my FS about chances of the report being incorrect and he said that a proximal/cornual block can be incorrect due to tubes going in spasm but a fimbrial block is mostly correct since the dye showed no spillage in my right tube. The doc suggests lap but before that I need to go for two more tests, whose report, if good, then we proceed with lap. Since I have no history of previous miscarriage or abortion or any disease, so he wants to check if I have tuberculosis of the uterus(kind of an infection that can lead to blocked tubes). These two tests would come up with the results and if the results are not good, it would take another 6months time to cure the TB and then lap(may be) My FS blatantly told me that its gonna be a long battle,so dont expect any quick fix remedy



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Old Feb 26th, 2012, 00:27 AM   5
Lawyer chick
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Hi Hun. I have blocked tubes. I'm waiting on my lap. I haven't much about surgery in Ontario to unblock tubes partly cause our govt insurance pays some of I've costs for 3 cycles. I wish you good luck you find an option to make it work.



 
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Old Mar 2nd, 2012, 19:03 PM   6
LillyLove
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kcarey-

My tubes are blocked at the distal ends. I am 36 and I am having laparoscopic fimbrioplasty at the end of March. That video on youtube that you saw (dr. carlos rotman, chicago, il) I actually called their office and almost set up the appointment until at the last minute I found someone to do it here. I live in Minnesota. With my original obgyn (the one who did the hsg and discovered the tubes) she just wanted to make little slits at the end of the tubes (they would close right back up!) and I just knew that I needed to find a specialist. Good luck! I hope it works for us. We are giving ourselves 6 months before moving on to ivf.



 
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Old Mar 2nd, 2012, 19:06 PM   7
LillyLove
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PS: When I went to set up my FMLA medical leave through work for the surgery the operator on the phone actually had the proceedure done and has 3 children to show for it. What a coincidence, and proof that it can work.



 
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Old Mar 6th, 2012, 13:20 PM   8
kcarey77
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WOW! I'm feeling so much better now! I went back to my OBGYN and asked for a copy of the surgical report (photos and all) and I know he did what he could during my laparoscopy, but you're correct Lillylove, they will close back up! The question is, how soon? No one can answer that and it concerns me. My husband and I are trying for the first time since my lapro the next 2 weeks and are hopeful we get a BFP soon. I hate to think that I need Fimbrioplasty surgery. I cant afford it. Thankfully my tubes are not hydrosalpinx, so I can keep them for now. I've heard good and bad reports on tubal surgery. Once day I eliminate it completely from my plan and the next, Im ready to try it. Each situation is unique and with IVF being so easy, a lot of surgeons are not experienced enough to perform tubal surgery and they are SO delicate. If the ciliae in the tubes are disturbed, your chances of conception are very low. I need an expert.
I'm so HAPPY to have others to talk to about this and share hope and positive thoughts.

Lillylove- PLEASE keep me updated on the outcome of your laparoscopy, I will keep you in my thoughts. My OBGYN said in order for fimbrioplasty to be successful, he must cut into the abdomen and "fillet" the tubes properly so they stay open. The ends of my tubes look like wilted flowers (covered in blisters almost) and they need to be surgically tuned into a flower blossom again. I live in Florida and Infertility is weak here cause most insurance does not cover it so most RE's starve. I have an appointment with one of the best RE's in the Nation this month for 2nd opinion on what I should do next. Im hopeful she will help me.

Anne24- I would LOVE to keep in contact. It's a struggle knowing we have a huge obstacle to overcome, but it is possible. Definitely go for the laparoscopy! I know several people that had it and became pregnant after years of trying during the first 3 months! Im staying positive that we could be pregnant in the next 6 months. Because I was diagnosed with "Unexplained Infertility" for so many years, I feel like I wasted precious time by not really knowing what was wrong inside me (blocked tubes). I went based off an HSG that was very incorrect. Any adivse I could give to you is go straight to the lap, it will give you peace of mind in the end and hopefully result in a BFP

Lawyerchick- I wish you the best on your results and I hope you get your BFP soon!



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Old Mar 6th, 2012, 13:59 PM   9
kcarey77
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Lillylove, if you dont mind me asking, how much is the fimbrioplasty going to cost? Does your insurance cover it? That is the deciding factor for my plan B. Thanks!



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Old Mar 6th, 2012, 18:04 PM   10
LillyLove
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KC- Apparently the surgeon is billing it as a laparoscopic salpingostomy but will do fimbrioplasty once he is in there. The way he is billing it, it will be covered by insurance. I asked him if there were any indicators as to "who's tubes close up after the surgery, and who's don't" and he said he can make the generalization based on the amount of adhesions he sees once he is in there. I also asked him how long they stay open and he said most close in 3 months if they are going to close, but if the surgery is successful most of his patients get pregnant within 6 months. (Hence, why we are giving it 6 moths before going to ivf).

The thing is my our insurance does NOT cover IUI which is really expensive with all of the monitoring etc ($2,000 a cycle) which would really cut into our ivf budget. I am struggling whether we should just try natural or spend the money on iui.

Let's keep this thread alive, so if we do get our bfps we can give hope to others with the same tubal issues



 
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