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Old Dec 23rd, 2016, 06:56 AM   1891
Eve
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Old Oct 23rd, 2017, 09:23 AM   1892
sequeena
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Oh wow it's nearly been a year. Is anyone still around? How are you all?



 
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Old Oct 29th, 2017, 06:31 AM   1893
Peanut78
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I'm here!



 
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Old Oct 29th, 2017, 07:59 AM   1894
sequeena
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Hi peanut I'd love to start using this group again.



 
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Old Nov 4th, 2017, 21:29 PM   1895
Phantom
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I'm not sure if I've ever posted here. But my son was diagnosed with high functioning asd this August. I just got a call from his school on Friday about meeting with them to set up some special help for him. I cried when they told me. They said he is very bright so he doesn't need any academic assistance. He just keeps to himself at recess, doesn't have conversations with the other kids or participate in groups.



 
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Old Nov 5th, 2017, 04:47 AM   1896
sequeena
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Hi phantom how are you feeling? Was the diagnosis a shock? It's great that school are going to help. That's half the battle I think. Thomas is very sociable but doesn't often play with other children on break because (in his own words) he likes to play his motorbike game.



 
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Old Nov 6th, 2017, 10:07 AM   1897
Damita
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I'm here �� lilith has been diagnosed with adhd and high functioning autism.

Charlie well he's a long old list hypotonia asd SPD non verbal non eating GDD mentally 12 months old - he's 3 and half now starts school next year ahhhh



 
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Old Nov 7th, 2017, 03:25 AM   1898
Peanut78
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Hi everyone, big hugs Phantom - it's tough to hear.

Damita

I'll post an update from our side in the coming days (major work deadline till Thursday ).

Just wanted to say - I would also love to be able to use this group more again



 
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Old Nov 7th, 2017, 06:43 AM   1899
sequeena
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Quote:
Originally Posted by Damita View Post
I'm here �� lilith has been diagnosed with adhd and high functioning autism.

Charlie well he's a long old list hypotonia asd SPD non verbal non eating GDD mentally 12 months old - he's 3 and half now starts school next year ahhhh
have you started the statement process? I was scared for Thomas to start school and refused to send him until he had one in place.

Good luck for you work deadline peanut



 
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Old Nov 7th, 2017, 06:58 AM   1900
sequeena
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So a brief run down of what's going on with Thomas.

After almost 5 years of recurring ear infections Thomas finally has hearing aids and grommet surgery on November 15th. I'm dreading it. He's not had surgery since he was 2 and it was a really traumatic experience.

We still have no full diagnosis for him but we have been on a study for the last year so hopefully there will be an answer soon. The study has been doing exome sequencing on all 3 of us so they should (fingers crossed) find something.

He still doesn't sleep well so I'm doing sleep clinic again as it's the only way to possibly get melatonin. He's calling me a liar though as the last 2 nights he's slept well

He has a speech disorder now rather than a speech delay and has been receiving speech therapy in school for the past 2 years. He's come on so much. When he first started school he couldn't say his name. His speech is vastly different to other 6 year olds. I'd say he is still speaking at a 3 year old level.

The good news is he's doing well in school. He's not in any mainstream classes (he's in a unit attached to mainstream) but he's progressing at his own pace. He's even started to read. I'm so proud of him. He can ride a 3 wheeled scooter and a bike with stabilisers. He's doing so much more than we thought he would.

The hardest part is watching him interact with other children. The majority ignore him or tell him to go away. Some have even hit him (I go into apeshit mode at that point). It's because he speaks differently and can't play like other children. It breaks my heart and I'm starting to really dislike other children as awful as that sounds. Thomas is not violent he doesn't push or shout. He just gets too close and doesn't understand social situations. He's so sweet I hate seeing him rejected. I don't want him to grow up being the outcast, being bullied because he's different thankfully at school that doesn't happen.

He's grown up so much and is super tall.




 
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