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| Dragonfly Mum (Mom) BnB Elite Join Date: Aug 2008 Location: N.Ireland Posts: 17,526 |
she has all them poeple, i am beginnig to think my parents are saying its not a prob to them since nothing is happening. she is fine in care and in school just not at home. She is like a tornado, i can even hear her going mental when i am on the phone to dad bossing orders and bashing things. She is capable of good bahavior but only for certain poeple and thats everyone except parents. There isnt anything i can do i realise that now. I am not even going to bring it up again as it starts a row and i get told where to go. I tried several times over the years to help and its come to this. and they are paying for it all now, it will just get worse only they cant see they can make it easier all round they just let it go on like that. I really do appreciate your help, its helped me get it out of me as i am so angry at them right now. I have been for years just for dismissing everything and ignoring it all. I live in that house we all used to live in as i took over the rent and its wreaked. I have wholes in the fireplace i have to repair which will cost a fortune and holes in the wall which we had to fill in. We had to decrate most the house we could afford as it was covered in food, she throws her dinner at walls and anything she has. Was really minging her room. We had to lift carpet and do the walls again. She has had two floors down in parents house and their house is 3 years old. Wooden ones! she was moved to another room as she had to much mess and now she is just pissing in the middle of the floor. I dont get why she is pissing when the bathroom is a few feet from her bedroom? |
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| | #12 |
| lozzy21 Mum (Mom) BnB Spammer Elite Join Date: Jan 2009 Location: Teesside, Posts: 23,757 |
Because by the sounds of it shes not being told that its not acceptable to pee on the floor and shes not being told off when she dose do it.
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| | #13 |
| Dragonfly Mum (Mom) BnB Elite Join Date: Aug 2008 Location: N.Ireland Posts: 17,526 |
my brother didnt let her get away with it thats for sure. She was in tears when he started on her and apoligised but my parents said nothing to her. Thats when they mentioned care homes.
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| | #14 |
| oldermummy Pregnant (Expecting) Active BnB Member Join Date: Jul 2009 Posts: 69 |
Hi Dragonfly, what an awful situation some of which I can relate to. Can I first ask if she has a definate Aspergers diagnosis? It is just that you say her speech isn't very good and one of the main criteria for a diagnosis of Aspergers is very advanced speech from a young age. My step son has aspergers and we had lots of problems with violence from him which resulted in him being taken into care too maintain the safety of myself and my 2 kids. I am not having a go at social workers but they have NO place in giving advice on how to handle a child with complex special needs. Your sister should be seeing an educational psycologist, speech therapist a child psycologist and maybe even an occupational therapist, this is what in general a child with autism would have as a multi-agency team to help the child, the parents and also the school. It does sound like your parents have bought into her behaviour being unavoidable, but that is not the case, the vast majority of what you have said with regard to her behaviour could have been nipped in the bud by your parents had they been given the correct help from early on. Have you thought about going and seeing her gp yourself, they obviously won't divulge any info about her to you but I suspect that your parents haven't told the gp about all of the problems they are having with your sister. At the end of the day, your parents are the victims of domestic violence, this may seem like a strange thing for me to say but it was what I was told by the police when we had problems with my step son. As you say, your parents need help and soon. I can understand how frustrated you must be with them letting this get to this stage, have they thought about who will look after your sister when they aren't around anymore... I really hope that you manage to sort something out to help, your sister can't really be happy with her situation either. This is a link to a forum I am on (my 2 yr old is being assessed for autism) I have found it really very helpful and supportive. http://www.asd-forum.org.uk Good luck |
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| | #15 |
| Dragonfly Mum (Mom) BnB Elite Join Date: Aug 2008 Location: N.Ireland Posts: 17,526 |
Thanks oldmummy. They have told me to keep my nose out of it and are currantly not speaking to me. Not speaking to me as I can hardly get a word out of my dad on the phone anymore and things have went pear shaped. I think its either whats going on down there or they dont like me. They seem to have no time for me or my son at all and will sat that to me. Sis has them run off their feet. She has a speech therpist but no child psychologist, this is what I have been telling my parenst to get for years but it hasnt been done yet. You cant say a bad word about my sister near my mum or she would eat you alive. Anyone can say what they like about me she would join in but not my sister. Not even I am allowed to say she is badly behaved, I am accused of picking on her autism if I say she isnt an angel! Maybe my mum likes being slapped by her as i am shocked she takes it, if I had of done that i would have been flattened by her! my mum even slapped the shite out of me when I was a teen for being rude to her once. Now she just lets my sis slap her and does nothing. When asking why dosnt she tell her off I got the answer " what good would that do its her autism". So they think there is no point on disaplin , she is allowed to be this way. its sad as I have no say. And I will be left witrh her and my lay about dole brother to who at 31 cant feed himself or pay for anything. He dosnt get hassel either for doing notihng but giving my mum abuse. Perhaps pushing me out of the house at 17 was good for me as I didnt get anything them two get down there now. I just get told no one has any time for me and treated like I always want stuff when I dont all I wanted was for them to look at their grandchilds pics I pay for them. oh well. |
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| | #16 |
| Cocobelle Pregnant (Expecting) Chat Happy BnB Member Join Date: Jul 2009 Location: Cambridgeshire, UK Posts: 1,120 |
Hi, I am sorry I am so late to this post but I have only just seen it and just had to reply to try and offer some help as I went through this (and worse) with my son two years ago so I know exactly what your parents are going through. It was the worse time of my life and I just could not understand how my sweet natured little lad could turn into this unhappy, angry and violent teenager and once the school decided they could no longer cope, it got a whole lot worse as we could not find anyone who could cope with him and he was at home, smashing everything (even our light bulbs) if he could not get his own way. Our son was not over spoilt, we tried very hard to set boundaries but it made no difference. Once he was at home all day he was obviously bored silly but he seemed to hate going out and in the car if he sat in the back seat he would pull my hair, yank on my car seat or punch the windows, if he was in the front seat he would pull at my gear stick or hand break. He was never violent to us on purpose but sometimes when he was in a rage he would throw big heavy things or do stuff that could have caused serious harm if you were in the way. Luckily he never self harmed either. I love my son so much and it was obvious that something was making him this unhappy for his behaviour to be this way (my son is totally non verbal) and as his mum, it was my job to find out what and to sort it even if it meant doing something that was against every thing I had ever wanted and for us, it was finding a school that could bring out the best in our son as love alone was obviously not enough any more. What Lozzy says is so true, as a parent there is only so much you can do before you are worn down and too tired to keep it up, plus you have other things that need your attention such as work, household chores and just life in general. A dedicated school or college over comes that by having people on hand who's sole purpose is to care, educated and provide much needed structure and boundaries to the child/young person with Autism. Making the decision to send our son away to school was the single most difficult thing I have ever had to do in my life, it almost broke me and even now two years on, I am sitting here crying thinking of that time but I can honestly say it was the best thing we ever did. My son has come on in leaps and bounds, he is now 19 and living in a house with 6 other youngsters of similar disabilities. He loves it, the staff are brilliant and the house is lovely. In fact I have to hurry this along as I am off to spend the day there with him doing a bit of baking, maybe go for a long walk in the countryside around the house. I know why your parents are hiding their heads in the sand. I know you as a sibling care and worry but it is not the same as the way a parent does (you would be the same). My mum and my sister were there for me and I know the whole situation upset them, but at the end of the day, only I knew what it was like to be my sons mum. I would seriously think about writing your parents a letter. Take your time and write in everything you have ever wanted to tell them, They can';t tell you to shut up if you are not there! For me, as my son is an only child, I was always worried about the time when we would no longer be there to look after him and I would never expect a family member to be sole carer (although if we had another child I would like to think they would manage his affairs, fight to make sure his level of care is still high and of course visit him and have a relationship with him) but ultimately I need to lie on my deathbed knowing my son is happy, loved and safe somewhere he is happy and I know he would be none of those things if all of a sudden he was thrust into the care system suddenly without me to make sure he was in the best place. Your parents really do need to consider the future. Even if they start small like respite care will give them a much needed break and also start to encourage a bit of Independence away from the home. Sometimes we have to do things that are for the child's best interests rather than our own, and helping a young person to grow and develop a life away from the family home is one of those times. Sorry to have waffled on, but I hate to think a family is going through what we did as there is nothing more heartbreaking in the world than realising you are not the best option for caring for your child. If your mum ever wants to speak/email someone who totally understands, one mum to another who has been there, just let me know. Must dash, I have a handsome young man to visit! |
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| | #17 |
| Dragonfly Mum (Mom) BnB Elite Join Date: Aug 2008 Location: N.Ireland Posts: 17,526 |
Well I had a row the other day with my mum again about it. My brother came out covered in marks, she lashed out at him passing becasue she didnt get the right colour of nintendo ds. God know what she got a ds for she just gets stuff handed to her so she dosnt last outr but if its the wrong colour god love everyone. My mum got battered and so did my brother. I seen the marks on him and he got off lightly apparently. So my mum tries to tell me not to let william rule the roost because he is playing in a cupboard, the only one he is allowed in. And I crack,. how dare she when she lets my sis rule everything they do! so I said it again is she getting her help and i got the same answers as usual, !"its her condition and the way she is" and I got told i was inculting her special needs by mentioning anything about her. I cant say a word against her without being insulting about her apparently. She was never disaplined, they ignored this and where told to ignore it and now its gone to the point where she is abusive and still gets away with it,. waiting for her to put her next window through and get away with it becasue of her "condition" . she dosnt do this anywhere else! dosnt do it to me, certainly not in my hosue. She is quiet here, stands at the door waiting to go and even when i tell her to sit down as no one else will she dosnt better me like she does my mum. If i had of laid a finger on my mum when i was young i would have got it back and in so much trouble! if i had of cursed at her she went ballistic! she dosnt anymore. Even i tested it by being cheekly to her and she takes it. She is a pushover now. I worry about both of my parents as dad has high bp and on meds and my sis has his him around her finger. she would get dressed and shout at my dad "move move move" out to the car and down town to buy her swweets and if he dosnt another battering matcch, slammng doors and cursing. I can hear her should F*ck off in the back ground just because my mum is talking to me and if my mum dosnt listen she is in the kitchen smashing it up in a rage! its way overboard. You can hear her shouting at herself in her room, its like she has remembered something and then argues in her head about it. The walls are covred in food and my parents are out a fortune on decorating. She badly damaged a new wooden floor in their new house and it was down a year. And the house is 2 years old and the fllor has bene replaced 3 times in her room, and they are out looking for new carpet for the stairs yesterday. She spits to randomly anywhere, so there is spit marks. i live in the house my parents used to so it cost me a lot of money to do it up from the mess she mad, her room which is williams play room now had to get a new floor and paint. Shcoked she hasnt punched doors in yet. She punches herself in the head continuiosuly which makes me worry she will hit herself to hard, you cant take that many blows to the head and be ok, She dosnt know her own strentgth and my brother said she is so string and i well believe it having recieved a punch ion the mouth a few years ago, to whiuch my mother hugged her and toild me to go away (am i shocked she is worse after that, no). she has always been mums pet and always will be, dare anyone say a bad word about her or say she needs help. For they will be insulting her condition. There is nothing i can do, i sent my mum a text that she needs to get her help or i would seek help except i dont know what to do as i am not the parents and they wont listen to me as my mum is telling them it isnt that bad she just lashes out nicely or something. I can see my dad having a heart attack or something over this or even my mum as she has to much weight on her to breath right. They say she isnt ruling the house. She is if she dosnt like what she is cooked she actually throws it in the bin and takes a tantrum till she gets what she wants. William dosnt even know who my mum and dad are he has seen them only for a few mins at a time every fortnight maybe and most the times my dad comes in leaves someting and my mum dosnt get outof the car as my sister is there. from now i have said since there is nothing i can do but argue with them and i am fed up with that, they have no say in what happens with william. |
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| | #18 |
| louii Pregnant (Expecting) Active BnB Member Join Date: Nov 2009 Location: Scotland Posts: 12 |
I am really sorry for your troubles. You have done everything you can do, you have given your parents suggestions on what to do and how to improve their situation. They are obviously saying there are no issues to social workers etc when asked. Is there a community Learning disability team involved, or a psychology team, not just social workers who sound incompetant frankly. I have had a similar situation with my in-laws, they bury there heads and put up with violence etc, lie about what is really going on instead of getting the help and support they need. You have to step back now and accept that you have done what you can, preserve your own family life and protect your son from it, sorry if i sound harsh but they have made their bed. We do not discuss issues now with in-laws, have told them unless they do something about it we don't want to hear anything, we have gave them contact numbers, step by step instructions on what to do but to no avail. Sometimes there is just nothing more you can do. |
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| | #19 |
| Dragonfly Mum (Mom) BnB Elite Join Date: Aug 2008 Location: N.Ireland Posts: 17,526 |
Dosnt matter now they arnt speaking to me or had contact since the last row and it was about me not christening my son. They dont ask about my son or care, I have send them emails of pics of william and all I get is a thanks, one of the email called me insulting towards their religion. None my family speak to me now over this. I have actually had less stress now because there is no more constant rowing. I know this is different frmo any other row as they usually call up a day or two later and forget about it, this is weeks now. Not a call or anything. Shame William wont know who they are as they called little as it was anyway and they live 2 mile from me where as Darrens relations live further and do come here. My aunt was here though, dont think she knows about the row but I said i hadnt heard from them and she automatically blamed me for not just taking mums advice. Everythnog is always blamed on me and i am sick of being at fault all the time. Then she got into a row with whyt am i not Rationing my son chocolate and junk food. So I am sick of people arguiing with me in my family with what I do, I try to do best for my son, raise him healthy and religion free till he chooses but its not good enough. I am doing wrong according to them. No none of them want to know me. good bloody riddens. Pack of nut cases,. I dread xmas now, I am being challanged why i am not visiting far off relatives when I have loads coiming here and no car and they have a car and live in the same time. Again its all my fault and my invite was ignored., how pathetic this all is and it isnt even about my sister anymore. |
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