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| Eve Mum (Mom) BnB Addict Join Date: Oct 2008 Location: Canada! Posts: 8,310 | Add/adhd/odd help me!!!!
My son Jacob who is now 7 has been diagnosed with ADD/ADHD/ODD and I am so frustrated and exhausted! I knew something was different at an early age but had people keep telling me it was my fault. I wasn't disciplining enough, I wasn't consistent enough etc... I understand in a way as I was a young mother, got pregnant at 17 and had him at 18 but that was not the case. When Jake did something unacceptable he was placed in a time out. As he got older the discipline changed to time outs or him loosing certain things etc... and nothing seemed to help. The doctors wouldn't help until he was in school and it was too late by then, because of how long it takes to get into the specialists around here... so he was kicked out of Kindergarten his first year before Christmas! He had to repeat Kindergarten and thankfully made it through, and now is in Gr. 1 and I am finally getting some things going on. He is very violent, aggressive, mean, hurtful... he will curse at me and say very hurtful things to me. It saddens me and I am so scared as I have a baby coming in December and I am hoping to try and get some kind of control and order into this house before then |
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| carrieanne Other Chat Happy BnB Member Join Date: Jan 2009 Posts: 1,059 |
hi sweetie my son has adhd ocd tourettes and severe anxiety issues i know how you feel first of all you need to get as much support as you can from school family and your dr you have a hard job in front of you my son is 12 now and its getting harder he literally takes over the house on a bad day which is most days! but like i said support is the key but you have to fight for it so start shouting now and please pm me if you want ok
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| | #3 |
| Eve Mum (Mom) BnB Addict Join Date: Oct 2008 Location: Canada! Posts: 8,310 |
Thank you! That is how it feels here... No matter what we do he is angry and aggressive. It is almost his bed time and as soon as I mention it to him I know it will be hell for at least an hour |
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| superp123 Pregnant (Expecting) Chat Happy BnB Member Join Date: Mar 2008 Location: Wisconsin, USA Posts: 1,789 |
Just read your reply to my post and wanted to let you know that you're not alone and to share my story with you. I just hope that it helps. We adopted Chris and his bros in Oct. 2007. At that time he had just turned 4years old. The boys situation prior to coming to us was one of neglect and abuse, so right away we knew that they would probably need help. But Chris was constantly in trouble at school and at home he would abuse his bros, our pets and us. At end of the year his teacher told me he needed special ed. I refused. Despite his behavior/emotional issues I had a bright boy who tested high. The last thing I needed was to put him in a situation where he could pick up more behavioral tactics. (no offense intended. those with ADHD child know and understand the tactics) The whole first year with him I floundered trying different discipline techniques, diet changes, schedule adjustments. We were in to see a counselor twice a week. A lot of which were helpful but didn't really even skim the surface. We were having melt downs not tantrums, he would go into a rage and that would be that. The longest of which, lasted two days. During that first summer I worked very hard with him and things seemed to calm. Until Kindergarten started. He was constantly getting into trouble, writing on the bathroom walls, having meltdowns in the middle of class, refusing to participate in art, gym and music. It wasn't until then his counselor suggested the doing a NICHQ assessment for him. After his results came in his regular doc prescribed Adderall. I had hope but not for long. Them meds seemed to make him like a weird zombie. He actually sat down and colored after school for four hours straight. I couldn't pull him away from it, and when I tried he'd totally freak. He was intently focused on coloring. He was on that drug for 12hrs. We quit it and then moved on to Vyvanse a week later. This drug was the worst. He was an angel for 3days then all the sudden he crashed and crashed hard. He came home from school and had a meltdown that went into a rage. I actually had to remove everything from his room that he could possibly hurt himself or others with. He tried to throw his television at me, and threatened to kill himself... it was horrible to see him like that. So we quit and quit trying drugs. I thought no way was I going to continue putting him through all of this. I'd rather deal with an out of control kid then one who was soooo utterly depressed and angry. The school year went on until late winter when I got a call from school. He had snuck in and assaulted a little girl in the bathroom. He beat her up and pinned her. I kept talking to his counselor and set up an IEP for school to see about putting him in special ed. I couldn't bear seeing him struggle so much, and I just thought maybe someone else will be more equipped to help him. If someone could help him learn how to cope maybe he'd have a chance. Over the next few weeks the school proved to be very unhelpful. Like you they assumed that it was a problem at home, or a discipline issue. When I explained all of the things I was doing with Chris already, it felt like we weren't getting any closer to helping him. Ultimately, because he had no diagnosis at the time, they were unable to help. I was back at square one. Out of control kid, unhappy kid. Then he assaulted his brother in the closet one day while they were playing. Almost exactly like the girl in the bathroom. I talked to counselor she offered a few suggestions but nothing that would have alleviated our situation at home. Chris was just off the charts at this point and a week later he tried to attack me first with a scissor then with a knife. It was a horrific time for us to say the least. I was terrified for him and for us. FINALLY, his counselor said we need to get him in an inpatient program. A week later I drove Chris to the hospital where he was admitted. He was very open with the nurse there about wanting to die, not caring about anything, and admitted that he wanted to kill me and his brother. When I left him there I was in tears, he simply said, "Bye." and shrugged. Our 5yr old was just a shell of a boy at this point he couldn't care less that we were leaving. He spent 6wks in a hospital were we found out that he has ADHD, ODD, and a sensory disorder. There he was constantly working with therapist and doctors. They got his meds sorted, and found out that he has a bad reaction to the stimulants. They actually cause a depressive reaction in some kids due to hormone levels. Spent another 2wks in half days between school and hospital. Terrified and anxious, we brought home a changed kid April of this year. We were now signed up for 1year in home therapy and had a brand new physiatrist for Chris. We had support from so many people at that hospital and I cannot tell you how good it felt walking out of there with a happy kid. In the summer we discovered that Chris may have bipolar disorder too, so we started taking the Abilify to help stabilize his moods. Bipolar, like ADD/ADHD is one of those things they cannot formally diagnose until a certain age. So for now we do what we can to help him and now we're doing okay. We're having our first good school year and have only had one phone call from school. Chris didn't need special ed after all. But the thing that has touched me the most is that I feel like I'm finally getting to know my little boy. Having him on meds especially Abilify has, for him, been an awakening. He's got friends now, interacts with other children, can play nicely too, he can focus at school w/o having a meltdown, he shows affection (completely new for him). Basically, it's nice to see him being a normal 6yr old boy for a change. I guess the point was not to hijack your post but to say that you are your sons advocate. Keep at it. Start at step one, and follow it through, move on to step two. Insurance and the bureaucracy will make this very difficult and sometimes even impossible. But you know him better than anyone follow your gut. Understand that it is a long road and not an easy fix, but there is hope and you will eventually get there. Just like we did. If you ever need to chat/rant PM me, I totally understand and I'll be there for you if I can. Big P A few books that I have found very helpful: Title: Survival strategies for parenting your ADD child: dealing with obsessions, compulsions, depression, explosive behavior, and rage Author: George T. Lynn ** this one is sooo helpful with everything, school bureaucracy, discipline, expectations, and even techniques for parents to feel better. Awesome read! Tittle: 1-2-3 Magic: Effective Discipline for Children 2-12 Author: Thomas W. Phelan ** Simple, and effective plan. Tittle: Positive Parenting with a Plan Author: Dr. Mathew A. Johnson ** Christian based plan, involves the whole family. Very comprehensive and easy to follow and do. |
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| | #5 |
| Eve Mum (Mom) BnB Addict Join Date: Oct 2008 Location: Canada! Posts: 8,310 |
Thanks superp123! I am so glad even though after everything you have been through that your son is now doing much better |
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| | #6 |
| superp123 Pregnant (Expecting) Chat Happy BnB Member Join Date: Mar 2008 Location: Wisconsin, USA Posts: 1,789 |
baby maybe- Glad to hear that the apt. with the new doc went well. Or to say you've got some answers. I don't have any experience with risperidone. We got lucky with the drug Chris is on currently for bipolar... the first one seemed to do the trick for us. A lot of those meds say 2wks, but I noticed a change in Chris within days of going on Abilify. We did have to adjust dosage early on because of drooling(LOL) and tiredness. So call the doc right away if you notice he's just off, even though the pill says 3wks. But by the end of week one on it, he was like a whole new kid. Hoping that you and your son will get some relief very soon too. FX It's very hard to see them struggling all the time. Good luck with the new med and let us know how it's going. P |
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| traceyeg Mum (Mom) New BnB member Join Date: Nov 2009 Posts: 1 |
Baybe-maybe, Hi there. I notice you are in Fredericton NB. I too am from the area. I have a 14 year old daughter that has been causing me stress and upset from the time she was 18 months old. I have been through a lot with her in terms of resources and I am still searching the resources for help. We have been to child psycologists, mental health, early intervention, a psyciatrist, and waiting on a few other options. She was diagnosed with ADHD, ODD, a bit of OCD at a very early age. She was just diagnosed with Aspergers in June and began taking Respiradone. So far the medication did make some improvement but we are still experimenting on dosage and other meds. My daughter is not physically abusive but verbally is another story. I was googling today in search of any help maybe from other parents to get another perspective or share stories. I know that I have felt so helpless at times and feel like a failure or bad parent due to the behaviour. I hope this helps and hope to hear from you. |
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| bexoth2011 Waiting To Try (WTT) Active BnB Member Join Date: Oct 2009 Location: USA Posts: 312 |
Hunny I understand. Just continue to relate to him and let him know he's loved! I have a best friend who has OCD, ADD(I think?), and ODD as well as possible schizophrenia. He's the nicest kid ever! He just has problems accepting authority, which isn't that big of a problem where we go to school. It's pretty well ok because it's a loose school setting where kids and teachers are friends. Anyways, my friend's father related to him on a level that he saw fit. And now he's a compassionate and sweet 18 year old and has a full time job! However, my friend realized early on that he had to work for everything he got, so that got him into shape. A little tough love never hurt nobody! anyways, He's kind, and a total romantic towards women! He dated one of my friends sisters and went head over heels for her. He's basically one of my best friends. SO don't worry hun, your son will turn out fine. and ITS NOT YOUR FAULT. Like I said, my friend realized early on that he had to do things for himself. So just help your child realize that. Have you considered medication? I know it sounds bad, but I took it since the age of 12. and I would be dead right now without it. However, try to find a psychiatrist that understands your family's situation as a whole, and see what's right and act on it from there. BY NO MEANS is medication the across-the-board answer. It's NOT RIGHT for EVERYONE. Just play it by ear hun. you'll do great, and SO WILL YOUR SON ! xx Sorry if this was long, I just wanted to help. Anyways.x |
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