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Old Aug 19th, 2015, 10:22 AM   21
2lovelyboys
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Don't worry about using the hearing aids they are easy, i don't take them out but if they fall out when breastfeeding or sleeping and I can't just pop it back in I wait and pop it on after, it will become normal.

There might not be a waiting list at all but the assessment takes a long time we haven't had much luck with apts, yours seems to be quicker so you may choose to wait and see how you get on with the hearing aids.



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Old Aug 19th, 2015, 21:54 PM   22
SoBlessedMama
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It really does become second nature so quickly --try not to worry too much at first. It took me a good five minutes to put the baby's aids in when we first got them, and now it takes ten seconds, and that's as I'm chasing him because he's crawling away lol.

As far as nap time, etc, it definitely creates a feedback issue. If he's napping where we can see him, I just pop the batteries, but don't actually remove the aid. (I wouldn't do this when he was out of sight, due to the choking hazard.)

But it really does become an easy, almost thoughtless task very quickly. Something that helped us, especially at first, was using Otoferm creme. It kind of lubricates the mould, which makes it easier to put in, and it also creates a seal to cut out feedback.

I really wish I could just offer up loads of hugs--it seems so intimidating and daunting at first, but it really isn't. (And our little guy is severe to profound, and tests out normal with the hearing aids. I hope your experiences are just as great!!!)

The YouTube videos are phenomenal, and made me feel SO much better before we went in. And then my baby almost cried when he got his. But you could tell that it was kind of a whimper of, "WHAT is happening?" and within the hour he was laughing and cooing right back at us. So if your first time doesn't look like a YouTube video, don't worry, ours didn't either. : )



 
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Old Aug 20th, 2015, 10:18 AM   23
mummyruston
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SoBlessedMama thanks for sharing your experience and your 'first time' with us. I'm choosing not to film because of that very reason and would hate to be so disheartened if he wasn't full of smiles when we filmed him.

Do you know if your little guy will be attending mainstream nurseries / kindy (?) etc?



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Old Aug 20th, 2015, 17:50 PM   24
deafgal01
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I've always been curious about the babies and kids first time "hearing" with hearing aids or cochlear implants. I'm not fond of those videos myself because I worry that they paint a "false" picture of hope for parents but I do wonder what my first time hearing with hearing aids was like. My mom doesn't remember that moment so I don't really have a way to know what that experience was like for my family.



 
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Old Aug 20th, 2015, 20:35 PM   25
SoBlessedMama
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Quote:
Originally Posted by mummyruston View Post
SoBlessedMama thanks for sharing your experience and your 'first time' with us. I'm choosing not to film because of that very reason and would hate to be so disheartened if he wasn't full of smiles when we filmed him.

Do you know if your little guy will be attending mainstream nurseries / kindy (?) etc?
I completely understand!! I filmed because my husband was actually out of the country on a school trip and couldn't be with us.

Our oldest is in mainstream kindergarten and is doing wonderfully! : )



 
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Old Aug 21st, 2015, 05:13 AM   26
mummyruston
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@Deafgal - do you wish your mum had filmed? Would you want to witness the experience good or bad?

I'm in two minds because I also think some of the YouTube films give false hope because not all children benefits and babies might not show a reaction yet are hearing etc.

But since youve just said that it makes me think I should film / photograph / document the experience in some way...

@ soblessedmama glad to read your eldest is doing really well. I really can't wait to meet people and share their experiences and most of all witness for myself many little ones enjoying a "normal life" with the wonders of technology.



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Old Aug 21st, 2015, 06:11 AM   27
deafgal01
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Sometimes I wish my mom had filmed it so I could see it myself what my reaction was since she can't remember what that was like.

If she did film it, I would want it to be private (like a home video type) not posted for public to see (unlisted) for my own viewing later.



 
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Old Aug 21st, 2015, 07:54 AM   28
SoBlessedMama
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Mummyruston, I don't know why I also didn't mention, especially since this is more applicable to your little guy--our baby (10 months) is right on track developmentally. He babbles all the speech sounds, and says hi, bye-bye, dada, and Deh-Deh (brother, Denny.) And he has severe loss in his right ear, and severe to profound in his left.

There is definitely hope. : )



 
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Old Aug 21st, 2015, 12:42 PM   29
mummyruston
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Thank you deafgal - I might film it and if there's a positive or obvious reaction I will keep for his viewing when older. If not I can always delete and film a more positive early experience that is more obvious.

@soblessedmama I'm really hoping we have the same journey as yourself and have predominantly a really happy guy who can experience what his hearing sister can do such as dance and sing and chat away etc.



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Old Aug 23rd, 2015, 13:37 PM   30
Misstrouble19
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mine did suffer from glue ear got hospital appointment on the 18th sept



 
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