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Old Apr 23rd, 2016, 05:18 AM   11
willow25
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The way you have described your daughter is as if you were describing my daughter at that age, and she is autistic, but obviously at 17 months a lot can change. Whilst I think 17 months is probably too early to assess her, I feel very strongly about the importance of early diagnosis in children as early intervention has massively helped my daughter, and the diagnosis has helped with school, doctors etc. There is a boy in my daughters class who was turned away by a paediatrician at three, and now at five he has become a school refuser, and is incredibly challenging at home and his parents have zero support and are really struggling, and the reality here is that it will take up to two years for them to get a diagnosis, and many months/years to get an ehcp in place , so he will potentially miss up to four years of education.
Thank you for your reply huni. I just noticed under your picture, your daughters name is Gracie so is mine hehe.
I understand at 17 months it is far to young to diagnose anything as they are changing everyday but I figure nothing else has been easy in her life so far so why not start pushing for things now Incase it takes a year or 2 to get anywhere. Plus everyone I have mentioned anything to so far has fobbed me off or give me the typical she's too young. I don't think you are ever to young to show traits of things. As I have said in my original I would rather push and push now Incase there is something wrong so it doesn't hinder her on other development than wait years to find out there is a problem so it will take even longer to sort. Like you mentioned with the little boy in your daughters class. Xx

Good for you to be so proactive for your little Gracie, you sound like a great mum, and with such a positive attitude your daughter is off to a great start whether she is autistic or not, and although every child on the spectrum is different, my daughter is much easier to look after than when she was a baby/toddler so keep positive.

I would keep a diary of all the behaviours/development areas you have concerns with - I have a terrible memory through lack of sleep lol and can never remember everything when meeting the paediatrician.

And there are some really nice support groups on Facebook



 
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Old Apr 23rd, 2016, 16:18 PM   12
VickyLou
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The way you have described your daughter is as if you were describing my daughter at that age, and she is autistic, but obviously at 17 months a lot can change. Whilst I think 17 months is probably too early to assess her, I feel very strongly about the importance of early diagnosis in children as early intervention has massively helped my daughter, and the diagnosis has helped with school, doctors etc. There is a boy in my daughters class who was turned away by a paediatrician at three, and now at five he has become a school refuser, and is incredibly challenging at home and his parents have zero support and are really struggling, and the reality here is that it will take up to two years for them to get a diagnosis, and many months/years to get an ehcp in place , so he will potentially miss up to four years of education.
Thank you for your reply huni. I just noticed under your picture, your daughters name is Gracie so is mine hehe.
I understand at 17 months it is far to young to diagnose anything as they are changing everyday but I figure nothing else has been easy in her life so far so why not start pushing for things now Incase it takes a year or 2 to get anywhere. Plus everyone I have mentioned anything to so far has fobbed me off or give me the typical she's too young. I don't think you are ever to young to show traits of things. As I have said in my original I would rather push and push now Incase there is something wrong so it doesn't hinder her on other development than wait years to find out there is a problem so it will take even longer to sort. Like you mentioned with the little boy in your daughters class. Xx

Good for you to be so proactive for your little Gracie, you sound like a great mum, and with such a positive attitude your daughter is off to a great start whether she is autistic or not, and although every child on the spectrum is different, my daughter is much easier to look after than when she was a baby/toddler so keep positive.

I would keep a diary of all the behaviours/development areas you have concerns with - I have a terrible memory through lack of sleep lol and can never remember everything when meeting the paediatrician.

And there are some really nice support groups on Facebook
Awwww thank you huni.

I keep meaning to make a dairy of things she does but it slips my mind by the time I get her into bed and finish cleaning up. I just want to relax. I really should start though. I have a few videos on my phone so I can show the paediatrician next time we see her as I figure seeing things for your self is a lot better than what I write in a book.

I'm glad your little girl is easier to handle now she isn't a baby/toddler. Xx



 
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Old Apr 23rd, 2016, 17:14 PM   13
smurff
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Hi, I agree with others on hear that 17mths is early to label a child as they can grow out of so many things, some of the things you describe my daughter did and she is possibly Autistic (waiting for the test) but some things you describe my son does and he isn't Autistic, I completely understand your worries and one thing I will say is if you think something is wrong or just not right go with your feeling, your her mum and you know her better than anyone. I knew from about 14mths something just wasn't right with my daughter, couldn't say what it was but I just knew there was something. I pushed and pushed to get her seen to and it was a long hard struggle and it was only for the fact that we moved and she got a new hv that things finally started getting sorted with her. Good luck x



 
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Old Apr 23rd, 2016, 19:42 PM   14
VickyLou
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Hi, I agree with others on hear that 17mths is early to label a child as they can grow out of so many things, some of the things you describe my daughter did and she is possibly Autistic (waiting for the test) but some things you describe my son does and he isn't Autistic, I completely understand your worries and one thing I will say is if you think something is wrong or just not right go with your feeling, your her mum and you know her better than anyone. I knew from about 14mths something just wasn't right with my daughter, couldn't say what it was but I just knew there was something. I pushed and pushed to get her seen to and it was a long hard struggle and it was only for the fact that we moved and she got a new hv that things finally started getting sorted with her. Good luck x
Thank you. As I have stated several times I totally agree that 17 months is fair to early to get a diagnoses for anything as they are changing all the time. I guess you just have to know her and see her to see that there might be a problem. I am not saying there defiantly is but there is a big possibility. She could totally surprise me and totally change again in a few weeks but I just can't shift this niggle. It's the same niggle I had when she was born. I knew there was something wrong with her but doctors and health visitors told me I'm a first time mum and worrying over nothing. It's just colic!!! Grrrrrr it took 4 months of constant trips to the doctors, visits with the health visitor and many trips to A&E plus I payed 200 for a private doctor to look at her. She was then diagnosed with severe acid reflux, eczema, and cows milk protein allergy plus other allergy. So I wasn't a first time mum that was worrying over nothing. My daughter would scream for hours sometimes days on end with out a break but know one believed me. So I feel like I can't just let this lie, I can't be fobbed off this time just Incase there is something wrong.



 
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Old Apr 23rd, 2016, 19:43 PM   15
VickyLou
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Ooops sorry for that rant there. I didn't mean to go off on one. I appreciate it is difficult for anyone to understand properly unless they know her or spend some time in her company to observe her. Xx



 
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Old Apr 24th, 2016, 00:20 AM   16
willow25
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Try doing the m-chat online test - it's a screening tool for 16 to 30 months, my daughter scored highly at 18 months



 
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Old Apr 24th, 2016, 04:21 AM   17
smurff
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Ooops sorry for that rant there. I didn't mean to go off on one. I appreciate it is difficult for anyone to understand properly unless they know her or spend some time in her company to observe her. Xx
I totally understand how frustrating this is, when you know there's something but no one will listen. My husband thought I was being irrational when I kept worrying about daughter. Of course you don't want to label your daughter but by getting her help early on if she needs it is helping her in the long run. I know there is a roughly a 2yr age gap between my dd and yours but I wish we we're listened to sooner as the process of getting my dd diagnosis for autism getting her funding and arranging schools and extra help is something that can take a year or so, I'm having to rush everything in the space of 4mths. Don't be fobbed off by anyone, as I said your her mum and you know her best of all. You keep pushing, it only takes one person to listen. Can you not get a new hv if your not being listened to, I went through 4 hv, 3 peadeatritions and numerous therapist before I got what I wanted. I was told that as I was a new mum I didn't understand how quick they changed. I even over exaggerated some of her symptoms just to get help. When we moved we obviously had new hv, when she came to first visit my daughter within the hour she knew something wasn't right, and I was booked in for hearing test development test peadeatrition app and speech therapist. As I said it just takes o e person to listen. Don't give up trying it will be worth it in the end x



 
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Old Apr 24th, 2016, 04:29 AM   18
VickyLou
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Try doing the m-chat online test - it's a screening tool for 16 to 30 months, my daughter scored highly at 18 months
I have done this and it states I need to see a doctor as its picking up some red flags. Xx



 
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Old Apr 24th, 2016, 04:33 AM   19
VickyLou
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Ooops sorry for that rant there. I didn't mean to go off on one. I appreciate it is difficult for anyone to understand properly unless they know her or spend some time in her company to observe her. Xx
I totally understand how frustrating this is, when you know there's something but no one will listen. My husband thought I was being irrational when I kept worrying about daughter. Of course you don't want to label your daughter but by getting her help early on if she needs it is helping her in the long run. I know there is a roughly a 2yr age gap between my dd and yours but I wish we we're listened to sooner as the process of getting my dd diagnosis for autism getting her funding and arranging schools and extra help is something that can take a year or so, I'm having to rush everything in the space of 4mths. Don't be fobbed off by anyone, as I said your her mum and you know her best of all. You keep pushing, it only takes one person to listen. Can you not get a new hv if your not being listened to, I went through 4 hv, 3 peadeatritions and numerous therapist before I got what I wanted. I was told that as I was a new mum I didn't understand how quick they changed. I even over exaggerated some of her symptoms just to get help. When we moved we obviously had new hv, when she came to first visit my daughter within the hour she knew something wasn't right, and I was booked in for hearing test development test peadeatrition app and speech therapist. As I said it just takes o e person to listen. Don't give up trying it will be worth it in the end x
The strange thing is my original health visitor was brilliant but she recently left. I saw the new one just as my daughter was turning 12 months, she picked up on the lack of speech then but I wasn't worried cause she was just 12 months. The HV said she oils expect her to have 3 words by that age but my girl didn't. Well she did but had stopped using them. I haven't seen her since, I had a call with a different one on the phone who just kept telling me to look online and mother and toddler groups in the end she gave in and referred to a nursery nurse. I don't no if she will be able to help, we will find out this Wednesday. Thank you for your reply huni. I appreciate it very much. Xx



 
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Old Apr 29th, 2016, 14:37 PM   20
smileyfaces
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A lot can change at that age but trust your gut instinct.

To those who say its wrong to label a child at that age...my son first started on the diagnosis pathway at age 18 months and had a diagnosis by 2yrs and 6 months. It was absolutely 100% the best thing to do to "label" him. He was able to get so much help and support and still does. If we had waited till he was older he would now be at school without his 1:1, without his EHC plan and feeling completely lost and out of his depth!

OP, follow your gut. Even if its wrong. Early intervention is very important IMO!



 
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