Sounds to me that you have been very let down by the system, and someone should answer for that,
The best piece of advice I can give you is to take each day as it comes. Don't think of all the forms and medical reports to do, just concentrate on one thing at a time.
Also don't think about what school he'll go to or what you'll do if you don't get EHCP. Worry about that when the time comes.
The one thing I did was after I filled out all the forms I photo copied the lot, I also got copies of all medical reports sent. Basically anything the was sent off I had a copy off. That way if something got lost I had a copy to send off, plus I found I was answering the same questions over and over. So instead of constantly thinking of how to word or phrase something I just looked back on paperwork and Id have the answer straight there.
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