my poor baby is in hospital because of a tummy bug hirshprungs disease has alot to answer for he has been in there for week now.
My daughter also has the tummy bug so i am at home with her whilst my partner stays with jack.
grrrrrrr sorry just ranting xx

My , Grandson was dx with Hirschprungs, when he was a few hours old, his whole colon was effected, at first he had the surgery and had a colostomy, He had that until he was about 8 months old, The only real problems we had at that time was keeping the bag on. But at 8 months old they decided to do the pull through and the night mares began. And because you stated you knew all about this dx now, thought you might be a good resourse for us. Timmy is now 2 1/2 yrs old, The GI doctor we got after the surgery just was not open to answering our questions, his peditrician tells us she knows very little about this and referrs us back to the GI, We have recently changed GI's and hopefully this one will work better for our baby. He has done a decompression for his distended stomach. the very first thing anyone sees him asks why his stomach is so distended. but the decompression only lasted a couple of days. He has recieved 2 botox injections which has had very little effect. But when most people talk about this, they talk about the battle with constipation, we do not ever have that problem, Timmy has constant liquid stools I worry about nutritional issues??????

Hi Bonnie, I'm not as familiar with Hirschprungs as the others are, but my daughter was born with IA and had the pull through surgery. What country do you live in? There is a children's hospital in Cincinnati, Ohio in the US that is the top place (or one of) for children with disorders like this. Even if you can't make it there, Timmy's doctors could consult with them.

Liquid stools can be very misleading. It may actually be a sign of constipation. What happens is, the harder stool is not moved through, but watery stools are draining around it. Doctors can mistake this as diarrhea. It's really important that you see a specialist that knows this diagnosis and how to manage these symptoms. If you don't live in the US, I have a contact you can call at that hospital in Cinn.

Here is an info page and a link at the bottom to contact the Colorectal Center.
http://www.cincinnatichildrens.org/h...rschsprung.htm

Hi Bonnie, also, has he been x-rayed for a bowel obstruction? That could be very serious and would cause the distended abdomen. Just make sure they checked!

Would like to bump this thread and see if anyone can give me some advice as my 6 month old baby girl has this horrid disease???

xx

Hiya my son's gastrointestinal paed has booked my ill one (nearly 5) in for a biopsy next Tuesday to see if he has hirschprung disease. He is constantly in hospital having clean outs that take no less than a week each time. He looks like a little Ethiopian (no offense), constantly has poo in his nappy, won't eat, no weight gain in over a year and constant tummy pain poor little mite...hoping to get answers next week...
Hugs to your ill one xxx