Do you distance yourself? - Page 3

Midnight_Fairy · Sep 8th, 2011, 11:53 AM

Neurotypical = NT sorry I just hate saying "normal"

Foogirl · Sep 8th, 2011, 13:36 PM

My 12 year old nephew came up with a great phrase, she's not normal, but she's not abnormal, she is Abby-normal.

Tegans Mama · Sep 8th, 2011, 15:40 PM

I wish I had friends who have kids with SN's of any kind. I don't. Therefore I don't have any friends because I drive myself MAD with comparing, thinking she should be doing that, but she's not, and it makes me so sad.

So, I don't have any friends in RL who have children except my little sister - my niece is 11 months and for some reason I feel totally different about her.

Midnight_Fairy · Sep 9th, 2011, 07:08 AM

Quote:

Originally Posted by Tegans Mama

I wish I had friends who have kids with SN's of any kind. I don't. Therefore I don't have any friends because I drive myself MAD with comparing, thinking she should be doing that, but she's not, and it makes me so sad.

So, I don't have any friends in RL who have children except my little sister - my niece is 11 months and for some reason I feel totally different about her.

Mines getting worse, I feel like I am isolating myself from anything outside of special need groups and other SN parents.

I feel like other people just will never understand.

Midnight_Fairy · Sep 9th, 2011, 07:09 AM

p.s I would love to live closer to you and hayley

Tegans Mama · Sep 9th, 2011, 10:54 AM

xx

Lottie86 · Sep 9th, 2011, 13:56 PM

We use the abbreviation NFF - normal for Findlay

Lea: are there no SN groups near you at all? One of the Mums I'm friends with (met her when we were both pregnant as her baby had been diagnosed with mild SB and midwives thought I could talk to her about bowel and muscle issues) said our hospital has an SB clinic every 3 months where the children see all of their consultants in one go rather than going back and forwards to see each one individually and she's met other SB mums in the waiting room. Do you have anything like that at all at your hospital? Wish we lived closer to you as I'm sure F would love Tegan

Midnight_Fairy · Sep 9th, 2011, 14:24 PM

I think you should move here and come to SWANS lol I would be lost without it. I just cant communicate properly with some of the other parents unless they understand. A few do

Its just the braggy parents I cant stand. A tiny thing he does means millions to me x

Tegans Mama · Sep 9th, 2011, 14:28 PM

There is a combined clinic but it's not an SB only clinic. We go once a year and more often than not isn't another child there who has SB.

There are no SN groups here at all, I've spent three years searching lol and found NOTHING. I also find that even with other people who have kids with SB we are quite ostracised - Tegan's SB is a worst case scenario and she seems to frighten parents with very small babies who have SB and get left behind by parents whose children have mild SB because they face completely different issues to us. Wheelchairs that are a necessity and not a choice, pressure sores, standing frames. It's a LONG list, and it's no ones fault, but life with a child who has severe SB is worlds apart from life with a child whose SB is mild. Walking might not be everything but a lack of it sure makes my life harder.

Tegans Mama · Sep 9th, 2011, 14:30 PM

Quote:

Originally Posted by Midnight_Fairy

I think you should move here and come to SWANS lol I would be lost without it. I just cant communicate properly with some of the other parents unless they understand. A few do

Its just the braggy parents I cant stand. A tiny thing he does means millions to me x

I know a few of those!

I actually find some parents of children with SN's quite obnoxious if I'm honest... we were at the zoo at the weekend and a family whose son was in a wheelchair just pushed straight through a crowd whilst shouting "excuse me, coming through, disabled child, he wants to see"... I just stood there shocked! At least be polite about it

I have noticed a lot of parents expect me to have an attitude towards them because of Tegan's wheelchair but I don't. Yes I ask if I just put her in front of others so she can see but I'd never shout like that woman did!

Sep 8th, 2011, 11:53 AM	#21
Midnight_Fairy Other BnB Spammer Elite Join Date: Oct 2009 Location: South Coast UK Posts: 31,764	Neurotypical = NT sorry I just hate saying "normal"

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Sep 8th, 2011, 13:36 PM	#22
Foogirl Mum (Mom) BnB Addict Join Date: Jan 2009 Location: Falkirk, Scotland Posts: 5,981	My 12 year old nephew came up with a great phrase, she's not normal, but she's not abnormal, she is Abby-normal.

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Sep 8th, 2011, 15:40 PM	#23
Tegans Mama Mum (Mom) BnB Elite Join Date: Dec 2007 Location: Sunny Derbyshire Posts: 16,339	I wish I had friends who have kids with SN's of any kind. I don't. Therefore I don't have any friends because I drive myself MAD with comparing, thinking she should be doing that, but she's not, and it makes me so sad. So, I don't have any friends in RL who have children except my little sister - my niece is 11 months and for some reason I feel totally different about her.

Status: Offline

Sep 9th, 2011, 07:09 AM	#25
Midnight_Fairy Other BnB Spammer Elite Join Date: Oct 2009 Location: South Coast UK Posts: 31,764	p.s I would love to live closer to you and hayley

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Sep 9th, 2011, 10:54 AM	#26
Tegans Mama Mum (Mom) BnB Elite Join Date: Dec 2007 Location: Sunny Derbyshire Posts: 16,339	xx

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Sep 9th, 2011, 13:56 PM	#27
Lottie86 Pregnant (Expecting) BnB Addict Join Date: Jan 2009 Location: Aberdeenshire (originally from South of England) Posts: 2,730	We use the abbreviation NFF - normal for Findlay Lea: are there no SN groups near you at all? One of the Mums I'm friends with (met her when we were both pregnant as her baby had been diagnosed with mild SB and midwives thought I could talk to her about bowel and muscle issues) said our hospital has an SB clinic every 3 months where the children see all of their consultants in one go rather than going back and forwards to see each one individually and she's met other SB mums in the waiting room. Do you have anything like that at all at your hospital? Wish we lived closer to you as I'm sure F would love Tegan

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Sep 9th, 2011, 14:24 PM	#28
Midnight_Fairy Other BnB Spammer Elite Join Date: Oct 2009 Location: South Coast UK Posts: 31,764	I think you should move here and come to SWANS lol I would be lost without it. I just cant communicate properly with some of the other parents unless they understand. A few do Its just the braggy parents I cant stand. A tiny thing he does means millions to me x

Status: Offline

Sep 9th, 2011, 14:28 PM	#29
Tegans Mama Mum (Mom) BnB Elite Join Date: Dec 2007 Location: Sunny Derbyshire Posts: 16,339	There is a combined clinic but it's not an SB only clinic. We go once a year and more often than not isn't another child there who has SB. There are no SN groups here at all, I've spent three years searching lol and found NOTHING. I also find that even with other people who have kids with SB we are quite ostracised - Tegan's SB is a worst case scenario and she seems to frighten parents with very small babies who have SB and get left behind by parents whose children have mild SB because they face completely different issues to us. Wheelchairs that are a necessity and not a choice, pressure sores, standing frames. It's a LONG list, and it's no ones fault, but life with a child who has severe SB is worlds apart from life with a child whose SB is mild. Walking might not be everything but a lack of it sure makes my life harder.

Status: Offline

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