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Old Jun 14th, 2010, 14:11 PM   21
Lottie86
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Location: Aberdeenshire (originally from South of England)
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I have just updated Findlay's one above



 
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Old Oct 18th, 2010, 17:14 PM   22
going_crazy
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Hi all, not sure if I can join or not?

Child/ren Name/s: M
Chid/ren DOB/s: 9/10/10
My Child/ren is/are fighting: TGA, VSD and Pulmonary Stenosis

Any extra Info: My daughter was diagnosed after birth with heart disease. She had her first heart surgery (B-T shunt fitted) when she was 4 days old . She's now 9 days old and getting stronger each day. She will hopefully be coming home soon so that she can grow stronger for her open heart surgery when she is about 8 months old. I'm scared about this so much


Anyway, I hope you don't mind me being here xxxx



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Old Oct 19th, 2010, 03:40 AM   23
Emmea12uk
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Location: Hampshire UK
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Of course you should be here! I got so much support here when my son was born and ge required surgeries.

I know how hard it is for you right now. There is nothing I can say either that is much use. Take each day aa it comes and stay strong. They are stronger than anyone can imagine xxx



 
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Old Oct 21st, 2010, 09:05 AM   24
~daisychain~
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Join Date: Mar 2009
Posts: 3,703
User Name: DaisyChain
Name: M

Childs Name- S
Childs DOB- 20/11/09
My Child is fighting- Infantile Spasms- a rare type of epilepsy

Any extra Info- Daughter started having seizures at 7weeks old. Diagnosed with IS...eventually. Been on lots of meds with horrible side effects, none of which have worked. About to start Ketogenic Diet. NHS has given up on her and expect me to aswell. If diet doesn't work, will take her to America to see a specialist there. S has the development of a 2month old if your lucky. Can take thousands of seizures daily and clusters of 100 at a time with just a few seconds inbetween.



 
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Old Oct 21st, 2010, 09:54 AM   25
Emmea12uk
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Location: Hampshire UK
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Welcome daisychain! I hope you find some support here!



 
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Old Oct 22nd, 2010, 10:30 AM   26
Midnight_Fairy
Other
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Join Date: Oct 2009
Posts: 45,273
Child/ren Name/s: M
Chid/ren DOB/s: august 2004
My Child/ren is/are fighting: Autism

Hope everyones ok xx



 
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Old Jan 30th, 2011, 13:34 PM   27
smileylexie
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Join Date: Jan 2011
Posts: 135
User Name: Smileylexie
Name: Lexie
Child/ren Name/s: Maisie
Chid/ren DOB/s: 3 years old
My Child/ren is/are fighting:Down's syndrome

Any extra Info:

Hi everyone,
i'm new on here but looking forward to getting to know you all!



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Old Jan 30th, 2011, 13:50 PM   28
Emmea12uk
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Hi!! Welcome!



 
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Old Feb 1st, 2011, 16:44 PM   29
capel
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Location: London
Posts: 322
Just saw this
User Name: Cape
Name: Carolina
Child/ren Name/s: Sofia
Chid/ren DOB/s: 11 september 2005
My Child/ren is/are fighting: She was dignosed with HIE (hypoxic ischemic encephalopaty) That means she is brain damaged because of lack of oxygen in her brain during birth. Her development is very delayed and she also has epilepsy.



 
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Old Feb 4th, 2011, 03:42 AM   30
Emmea12uk
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Welcome capel!!



 
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