Child/ren Name/s: M
Chid/ren DOB/s: 9/10/10
My Child/ren is/are fighting: TGA, VSD and Pulmonary Stenosis
Any extra Info: My daughter was diagnosed after birth with heart disease. She had her first heart surgery (B-T shunt fitted) when she was 4 days old . She's now 9 days old and getting stronger each day. She will hopefully be coming home soon so that she can grow stronger for her open heart surgery when she is about 8 months old. I'm scared about this so much
Childs Name- S
Childs DOB- 20/11/09
My Child is fighting- Infantile Spasms- a rare type of epilepsy
Any extra Info- Daughter started having seizures at 7weeks old. Diagnosed with IS...eventually. Been on lots of meds with horrible side effects, none of which have worked. About to start Ketogenic Diet. NHS has given up on her and expect me to aswell. If diet doesn't work, will take her to America to see a specialist there. S has the development of a 2month old if your lucky. Can take thousands of seizures daily and clusters of 100 at a time with just a few seconds inbetween.
Just saw this
User Name: Cape
Child/ren Name/s: Sofia
Chid/ren DOB/s: 11 september 2005
My Child/ren is/are fighting: She was dignosed with HIE (hypoxic ischemic encephalopaty) That means she is brain damaged because of lack of oxygen in her brain during birth. Her development is very delayed and she also has epilepsy.
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