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Old Feb 8th, 2011, 20:04 PM   31
esperanzamama
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Join Date: Feb 2011
Location: NY state
Posts: 588
User Name: esperanzamama
Name: Holli

Child/ren Name/s: Brennan
Chid/ren DOB/s: 4-2-09
My Child/ren is/are fighting: Talipes/ Clubfoot



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Old Feb 11th, 2011, 15:51 PM   32
Aidedhoney
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Join Date: Mar 2009
Location: Scotland
Posts: 2,431
Hello

I tend to lurk but here is our bits

Mum to Alex 18 months, born with a CHD (Truncus Arterosus), had 2 open heart surgery's and during the second one at 17 months Alex suffered a stroke.

This has left Alex with mobility issues (right leg and left arm) also no one knows how he has been affected mentally or how he will develop in the future.

Alex is awaiting cardiac cath for shunts to be put in to the arteries going to his lungs (due to be done 8th march)
Awaiting MRI scan just before 2nd bday to assess the damage
Gets physio/Ot and speech and languge support (all say hes doing fabbie)



 
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Old Feb 18th, 2011, 15:53 PM   33
lottie77
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Join Date: May 2010
Location: Paisley, Scotland
Posts: 397
User Name: lottie77 & my name is Claire

Child/ren Name/s: Rebekah
Chid/ren DOB/s: 13th Jan 2011
My Child/ren is/are fighting: Down's Syndrome



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Old Feb 18th, 2011, 15:59 PM   34
JASMAK
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Join Date: May 2008
Posts: 15,210
Hey Lottie! Your little girl is BEAUTIFUL! Congratulations! Any medical difficulties from her DS?



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Old Apr 16th, 2011, 12:28 PM   35
BabyBumm
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Join Date: Feb 2011
Posts: 94
User Name: BabyBumm
Name: Lucy

Child/ren Name/s: Tommy
Chid/ren DOB/s: May 2002
My Child/ren is/are fighting: Currently being assessed for autistic spectrum

Tommy(8) is my 2nd child (others are 10, 4 and 6weeks)
I have always known something was not quite with Tommy, but all the professionals I spoke to said it was my personal circumstances that made him the way he is (domestic abuse and also his step father passed away suddenly when he was 6)

It was only 6 months ago that another professional read a list of concerns about Tommy that I had written and she referred us straight away. We are now on the first step of the assessment ladder. It has taken me 6 years to get here but I am determined to get my son the help he needs and has been denied for so long!



 
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Old May 1st, 2011, 16:59 PM   36
x Michelle x
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Join Date: Jul 2010
Location: Aberdeen
Posts: 3,313
User Name: mherkes
Name: Michelle

Child/ren Name/s: Tabitha
Chid/ren DOB/s: Feb 2011
My Child/ren is/are fighting: Congenital Hypothyroidism

Hi ladies, been lurking a while on here now!
My little angel is 10weeks and was diagnosed at birth with Congenital Hypothyroidism. This can lead to diminished mental capacity and slow growth but she was diagnosed really fast so we're just keeping our fingers crossed. she follows her weight centiles perfectly and now i'm just always on the lookout for the next milestone!
thanks Emma for putting me intouch with your friend



 
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Old May 2nd, 2011, 13:17 PM   37
Marleysgirl
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Join Date: Mar 2009
Location: Manchester
Posts: 2,541
User Name: Marleysgirl

Child/ren Name/s: Andrew
Chid/ren DOB/s: August 2009 - 11 weeks premature
My Child/ren is/are fighting: unmeasured bilateral deafness, delayed speech, delayed development, and feeding issues

I do apologise for missing this introductory section months back when I started posting in here!

Andrew was 11 weeks prem, had a pre-birth bleed in his head, and then during his first year he suffered from Infantile Spasms. He now has bilateral deafness but we disagree with the audiologists as to how severe; speech delay as a result of the deafness and his development; 4-6m development delay depending on what you measure; and feeding issues - he has only just started accepting stage2 lumpy food, he refuses to finger feed.



Forgot to say. He is also TINY He was IUGR, born weighing just 1lb 6oz. He's now 20m actual (17m corrected) but wearing size 6-9m clothing. He's well off the standard growth chart, lurking around -3SD on the low birthweight chart.



 
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Old May 3rd, 2011, 16:25 PM   38
xxClaire_24xx
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Join Date: Sep 2010
Location: Kilbirnie, North Ayrshire, Scotland
Posts: 2,954
Username: xxClaire_24xx

Name: Claire
Child/ren Name/s: Ellie
My Child/ren is/are fighting: Ellie is still being tested for mild cerebal palsy, she has either DDH or Hemihypertrophy of her left leg and torticollis, slow weight gain and her body only makes up 3 of the white blood cells it needs and doesnt absorb zinc



 
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Old May 3rd, 2011, 17:04 PM   39
Adanma
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Join Date: Jun 2010
Location: Illinois
Posts: 691
User Name: Adanma
Name: Judith

Child/ren Name/s: Ian (6), Preston (4)
Chid/ren DOB/s: Ian: Dec 17 2004, Preston: Jan 19 2007
My Child/ren is/are fighting: Ian is Dx with Asperger's ADHD SPD and tic disorder NOS

Wonderful idea!

Adanma



 
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Old Jun 17th, 2011, 11:47 AM   40
vicki.mummy
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Join Date: Oct 2010
Location: Scotland
Posts: 347
User Name: vicki.mummy
Name:Vicki

Child/ren Name/s: Robbie
Chid/ren DOB/s: 30/7/05
My Child/ren is/are fighting: we are having him tested for Autism

Any extra Info: Robbie has struggled with developmental delay for many years, since coming to live with us he has improved vastly. He starts primary 1 in September 2011 and sees a speech therapist reguarly.



 
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