Child/ren Name/s: Esther & Daniel
Chid/ren DOB/s: E - Oct 09 & D - Aug 07
My Child/ren is/are fighting: Esther has recently been diagnosed with a developmental delay.
Any extra Info: The DD is mainly affecting her speech - she currently has 4 solid words and 3 signs at 3 years. She has also suffered unexplained seizures in the past - she hasn't had one since Feb 2012 but isn't considered safe from them until we got to 1 year since her last one.
Child/ren Name/s: Robyn
Chid/ren DOB/s: 04/09/12
My Child/ren is/are fighting: Charge Syndrome symptoms including. Bilateral Choanal atresia, Coarctation of the aorta, partial AVSD, Coloboma of the optical disc, undetermined level of hearing loss, poor muscle tone, developmental delays, inability to feed, currently feeding via ng tube on a continuos pump run feed.
Any extra Info:
Currently being investigated for immunology problems
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