A few of us who were up late one evening thought it would be nice to keep a log of why everyone is here so any newbies or oldies can see all the people are going through the same things in order to ask for any advice etc.
No one as to provide any information they are not happy about giving this is obviously just something nice to keep before we get busy on here. So I have listed below the information which might be useful once we have got a few responds I will put this into some sort of order for everyone. Obviously you can add any further information which you might think useful:
My Child/ren is/are fighting:
Any extra Info:
Ok think that is it if anyone thinks of anything let us send us a post otherwise hope to see you all replying so we can all get to know each other slightly better xx
Child/ren Name/s: William, Oliver & Harry
Chid/ren DOB/s: Will - 16.03.04, Ollie - 09.08.05, Harry 26.06.07
My Child/ren is/are fighting:William has inherited Charcot Marie Tooth Disease (CMT) from his Dad. Ollie is clear and Harry is just getting to the age where we noticed Will having problems so should be able to tell soon.
Child/ren Name/s: M
Chid/ren DOB/s: He's 5 now.
My Child is living with: Downs Syndrome, 2 much older siblings.
Extra Info: Well, "Downs Syndrome" (or Down Syndrome in the USA) seems to me to come with huge Gifts, random health-troubles, cognitive limitations and simply being. different. But what you do get is a load of LOVE.
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