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Old Nov 23rd, 2008, 18:20 PM   1
Deb&Matilda
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Join Date: Nov 2008
Location: Bolton, Manchester
Posts: 192

Special Needs Board Information Log


Hi all,
A few of us who were up late one evening thought it would be nice to keep a log of why everyone is here so any newbies or oldies can see all the people are going through the same things in order to ask for any advice etc.
No one as to provide any information they are not happy about giving this is obviously just something nice to keep before we get busy on here. So I have listed below the information which might be useful once we have got a few responds I will put this into some sort of order for everyone. Obviously you can add any further information which you might think useful:

User Name:
Name:

Child/ren Name/s:
Chid/ren DOB/s:
My Child/ren is/are fighting:

Any extra Info:

Ok think that is it if anyone thinks of anything let us send us a post otherwise hope to see you all replying so we can all get to know each other slightly better xx

Speak Soon
Debra



 
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Old Nov 23rd, 2008, 18:25 PM   2
Deb&Matilda
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Join Date: Nov 2008
Location: Bolton, Manchester
Posts: 192
Dont want to forget me when doing it or seem like I am not responding myselfxxx

User Name: Debra&Matilda
Name: Debra (Age 27)

Child/ren Name/s: Matilda Sue
Chid/ren DOB/s: 24/05/2008
My Child/ren is/are fighting: Spina Bifida, Hydrocephalus, Epilepsy, Arnold Malformation, Dislocated Hips and Knees and Talipes, Eczema.

Any extra Info: Think that is it unless anyone else thinks of anything else xxx



 
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Old Nov 23rd, 2008, 18:26 PM   3
Tegans Mama
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Join Date: Dec 2007
Location: Sunny Derbyshire
Posts: 16,719
User Name: hr.lr.07
Name: Lea (age 20)

Childs Name: Tegan Dakota
Chids DOB: 17/8/08
My Child is fighting: Spina Bifida, Hydrocephalus, Chiari Malformation, Mild Talipes, Hip displacement, Tethered Cord, and reflux (possibly caused by hydrocephalus and/or Chiari malformation)



 
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Old Nov 24th, 2008, 04:49 AM   4
Poloma
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Join Date: Apr 2008
Location: Cobham, Surrey
Posts: 692
Lovely Idea Guys xXx

User Name:Poloma
Name: Sharon
Child/ren Name/s: Noah
Chid/ren DOB/s: 16/08/05
My Child/ren is/are fighting: Currently being assesed for ASD
Any extra Info:

Noah has an appointment with the Occupational Therapist on the 1st Dec, hope to have some more info after that xXx



 
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Old Nov 25th, 2008, 17:13 PM   5
1st_baby
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Join Date: Dec 2007
Location: montreal
Posts: 3,873
User Name: 1st_Baby
Name: Melinda

Child/ren Name/s:Maxim
Chid/ren DOB/s: May, 16. 2008
My Child/ren is/are fighting: Hypospidias

Any extra Info: We will have it checked out more by a Urologist on Dec.18 th



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Old Nov 26th, 2008, 14:16 PM   6
JASMAK
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Join Date: May 2008
Posts: 15,210
User Name: JASMAK
Name: Tina

children's Names: Jasper, Makena, and Kelana
DOB's: Jasper, April 8, 2003; Makena, January 4, 2005; Kelana, August 16, 2010

Makena was diagnosed with: Pervasive Development Disorder (PDD-NOS), October 29, 2007 and Apraxia (DCD), February 8, 2011



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Old Nov 26th, 2008, 17:33 PM   7
Emmea12uk
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Join Date: Mar 2008
Location: Hampshire UK
Posts: 5,153
Name: Emma

Child/ren Name/s: Tomas Oliver
Chid/ren DOB/s: 4 July 08
My Child/ren is/are fighting: Spina bifida & hydrocephalus

Any extra Info:



 
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Old Dec 7th, 2008, 03:41 AM   8
massacubano
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Join Date: Oct 2008

User Name: massacubano
Name: Kathy

Child/ren Name/s: Bobby 5 (and his siblings ages 11, 7, 3)
Chid/ren DOB/s: 2003
My Child/ren is/are fighting: Autism

Any extra Info:



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Old Dec 18th, 2008, 09:07 AM   9
who's_mummy
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Join Date: Oct 2008
Location: Lancashire, UK
Posts: 642
User Name: who's_mummy
Name: Gemma

Child/ren Name/s: William, Oliver & Harry
Chid/ren DOB/s: Will - 16.03.04, Ollie - 09.08.05, Harry 26.06.07
My Child/ren is/are fighting:William has inherited Charcot Marie Tooth Disease (CMT) from his Dad. Ollie is clear and Harry is just getting to the age where we noticed Will having problems so should be able to tell soon.

Any extra Info:



 
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Old Dec 24th, 2008, 16:44 PM   10
samfam
Dad
 
Join Date: Dec 2008
Posts: 4
User Name: Samfam
Name: J (Age 49)

Child/ren Name/s: M
Chid/ren DOB/s: He's 5 now.
My Child is living with: Downs Syndrome, 2 much older siblings.

Extra Info: Well, "Downs Syndrome" (or Down Syndrome in the USA) seems to me to come with huge Gifts, random health-troubles, cognitive limitations and simply being. different. But what you do get is a load of LOVE.



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