Thought it would be nice to have this as a Sticky thread so everyone can use it and add to it to let other mums know of any useful websites/ contacts for our Special Babies. Im sure new expectant mum as well as us already mums will find it useful I know I would have done xxx
So please feel free to add any further contacts you might have.
DLA (Disability Living Allowance)
Care Compondent available from 3 months
Mobility Compondent available from 3 years
0800 88 22 00 - to request an application pack www.direct.gov.uk for information.
Please add to this thread any other contacts so that everyone can see who and where they can go for any sort of information they request. As I am internet research nerd I will add everything I find xxx
Got a really good one for you xx Did you know anyone who is either blind or receving DLA can get a card which means them and one accompanying person can go to the Cinema for free. The card does cost £5.00 but lasts for 3 years and I suppose it is well worth it.
Website is www.ceacard.co.uk.
Can i just add, that Contact a family is a MUST for anyone who is trying to claim the disability benefits. They will also help you out with any paperworks, relating to debts, finance etc. They are even setting up an advosory service. It is DEFINATELY worth contacting them.
Early Support is a government thing set up to help families with a child with multiple problems. They are fantastic. They co-ordinate all the professionals involved with your child's care and even hold meetings to make sure everything is being done that should be done, and to answer any questions you have. At Tom's last meeting we had his urologist, pediatrician, health visitor, GP, Physiotherepist and er..i cant remember the rest. But we established no one was monitoring his medication doses and they all explained things about Tom's development and his problems in more detail.
The best part about it was the casual nature of the meeting - even the consultants were chipping in on subjects like taking your child swimming etc.
DEF worth contacting them if you are fed up with trying to sort out all the people involved in your child's care - you need a referral and can get one from anyone - physios, doctors, health visitors etc.
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